Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for December 2010

18 yr old with ovary issues. helpp
i am a 18 year old female and i have a cyst on my right ovary, well ive known about the cyst for about 3 1/2 months now and the doctors said it was nothing,well i had alot of ovary pain and so the doctors prescribed me birth control that i have periods every 3 months to stop it. it stopped for a lil while but now its back…
My dear wonderful pets
My two dogs are amazing and they rarely leave my sidr. they know when i am not feeling well and stay close even outside the bathroom door!! My one little shitzu slepth with mr and peed on the bed as she would't leave me Do any of you have pets? they help me stay focused also I am buying them a nice big bone of course they…
red/white blood counts
Just had my second chemo yesterday. Glad to report all went well, except for one potential snag. My red counts were up higher than last time. That of course is good. My white count was just barely below the threshold of allowable for chemo but he signed me off to have chemo anyway. I was very surprised because I have been…
20/20 last night
Did anyone see this show last night? Little girls Mom had advanced ovarian cancer: http://abcnews.go.com/Entertainment/rhema-marvanne-year-gospel-singing-sensation-amazes-crowds/story?id=12285881
Stage 3 Ovarian Cancer at 25
I am new to this site and I am glad I have found a place to turn to. I was diagnosed with Stage 3 ovarian cancer at 25. I am cancer free now for almost 2 years. I had both ovaries removed but I still have my uterus. Finding out I can never have biological children of my own was the most devestating thing. Everyone around…
I am here to stay
A friend sent me this song. Don't know if others have heard it or it has been posted about but it is great. The story behind it is wonderful. I think this is how to post a link but if not it is Sarah Mattea on you tube singing I am here to stay. http://www.youtube.com/watch?v=_FDOdC7wEkA Lori
looking good with cancer
I read an amusing article about a woman with cancer and how people would always comment how good she looked. I got a chuckle out of it thought you'd might enjoy it too. http://www.mskcc.org/mskcc/shared/graphics/Living_Beyond_Cancer/Bridges/Fall_2010.pdf
What I want for CHRISTMAS hOW ABOUT YOU?
I would like some nice warm night gowns and pjs. Also a nice warm hat for cold weather. I would really like my ca-125 to go very low and get rid of this cancer. I want to hug my grown chidren and 6 grandchildren and go outside and throw snow balls at my hubby. what do you want????
Happy News :-)
GREAT NEWS!! My CA125 is now 9.5! Initially it was well over 1000. For months before my surgery in August I was stuck around 14. I am so thankful it has dropped! I pray it continues to do so. Blessings, Natalie
Get this monster out of me please!!
On December 6th, shortly after I woke up, I noticed a large lump in my abdomen. Soon, I was being examined by a doctor friend of mine who told me to get to urgent care. I immediately went, and was told to go get an ultrasound performed. Got it. One hour later, I received the news. "A 12.8 cm solid and cystic mass in right…
I am back :)
I have just noticed you had a thread about me and I am so touched to know that so many of you care..............I feel humbled. Well, I had a high fever and got admitted into hospital. They put me on IV antibiotics but it took over a week to stablise my temperature. They did blood cultures and things statred to grow…
Pain and itching after hair loss??
My hair is almost all gone now after 2 weeks of chemo. now my head hurts and my scalp is very itchy, I am scrathing my head and leaving marks I can't wear my wigs right now because of this wearing my scarves and chemo caps. Does anyone else have this problem too? Also my eyelahes are almost gone and sometimes my eyes feel…
MICHAELA MARIE
I am sorry to say that we have lost another sister in this fight with such a horrible disease. Dear MM passed away yesterday, as I was informed by her daugther today via email. My last communication with MM was after an emergency surgery that she had, and hardly survived. Her words were brief, but her spirit was still…
Elizabeth Edwards
I wanted to let you guys know that you can get Elizabeth Edwards latest book, Reliance, as an e-book on Amazon for $8. I downloaded it onto my i-phone and ipad. I started reading it last night and there are many many gems regarding her coping style and way of viewing her life (death of her oldest son, breast cancer and…
Did you feel well even on the good days during chemo?
My mom reports that even after the 8 or 10 days post chemo infusion (and the real yucky days) she still doesn't feel "well". I told her that I thought that the effects of chemo may linger for even a few months after it is all over with. She remains concerned about it and plans to ask her gyn-onc. My dad thinks it is…
Drama in the chemo room
After battling the snow (we've have OVER 3 FEET in past 3 days!), I made it to my chemo session. Halfway through mt carbo portion of my chemo, my palms starting really itching and then turned hot and the color of raspberries. Then the extreme itching started in my ears and then my feet and groin! They stopped the carbo…
At her fingertips
Linda has had sore fingertips, especially the nails. Today at her scheduled chemo appointment the nurse called everything to a halt and consulted the medical oncologist, who called our gynecological oncologist (different hospital.) The Cisplatin/Taxotere mix was called off for today. I guess the sore nails are a bad sign,…
Is it my fault I have ov cancer???
Sometimes I wonder if I could have done more for myself and not getting ca. I misssed my gyno appointment and later found out in2009 I have st3 ov cancer. I had pelvic pain and bloating. I feel I should have paid more attention to my boday ...maybe It would't have spread. Anyone feel the same way sometimes?? stay strong Val
What kinds of things do you do to take your mind off this monster?
Thank you all for your suggestions about diet in fighting this cancer. You have helped me to let go a bit and enjoy a few of the pleasures of life like eating some of my favorite things. I guess I'm learning about not allowing this monster to completely control my life. I was wondering, what kinds of things do you do that…
CT/PET results today: mets to the liver. 4 little spots. :(
Anyone have any encouraging words for me on a dark day? Please someone post and tell me you have liver mets that shrunk away with chemo or that linger without causing trouble! They're small (only one slightly larger than a cm & 3 other tiny ones noted on the report that my gyne-onc couldn't even FIND on my scan images) but…
Chemo tomorrow.. then parole
Hi Loves, I go in for my zillionth chemo tomorrow, well actually I've been chemoing since last January and then I've been given the rest of the month off. I'm giddy with feeling of freedom that a mere three weeks will allow me. My CA-125's are still elevated, but a cat scan shows that my disease is stable, so I intend to…
Need some insight
So Mom went to have her 7th treatment today and my sister tagged along for the first time. Mom is going for a second opinion on Wednesday so the oncologist did not do the chemo incase the other oncologist wants to do something else. Otherwise chemo will go forward next week. Here is what we learned: 1) Mom's tumour has not…
Going back for a real second opinion
So as many of you may remember Mom's surgery was unsuccessful due to the location of her tumor. We asked for a second opinion at Princess Margaret Hospital in Toronto and Mom's oncologist begrudingly sent her for one Sept 27th. Well it turns out Mom did not see a oncologist or a surgeon. She saw a clinical studies doctor.…
New here...
Hi, I'm Tawny. My mom got diagnosed with ovarian cancer on Nov 4th. She just turned 50 in April. As devastated as we all are, I'm planning on arming myself with the best info I can to help her through this. She had a full hysterectomy on the 23rd of Nov with an appendectomy, removal of her omentum, and debulking. Got a…
I've burnt the lot!!!!!
That's it tomorrow is D.day! I've just thrown every smoking product I own on the fire! Hooray, I've been taking champix for 7 days now and that is it I'm giving up my stinking habit for me and for my children. Wish me luck ladies, I've done it twice before for my babies with no help ,so I am sure as hell i can do it with…
Next round of testing....
Just an update... New: weird, soft, lump on my left ankle (disappears when I'm not standing)...not a blood clot...Doc has no clue MRI scheduled for Dec. 14. Also scheduled for Dec. 14: Mammogram (routine) 6 month blood draw: Jan. 5 6 month CT scan, abdo, pelvis, chest: January 12 6 month Onc. appt: January 17 7 month Gyn…
Our favorite things (Just for fun)
As you are out and about (or surfing the net this holiday season) reply here to post a few things on your personal wish list (selfish, material things only...) This post inspired by my new favorite nightgown.... a fleecy, long sleeved, knee length, lavender cardigan knit nightgown from Walmart @ a very affordable $15.00.…
Jayne Armstrong....world's most amazing woman
Jayne posted a couple of days ago on Face Book that she had been out bike riding with a friend. She must be the only patient in the history of Hospice who can do that! Jayne has just passed her 8th anniversary with OC and continues to fight, even though she is no longer doing active treatment. The world needs more heroes…
Good news I think
Mom and I went to the oncologist today. Her tumor markers with chemo only are down to 102, she's had two chemo's. They started at 770. So we are hoping and praying that the chemo will get it in remission before she even has surgery. The onc said the gyn/onc was very hesitant to do surgery on her because it might be…
Is this normal behavior?
Right on schedule my hair has started to fall out 2 weeks post first chemo. I went and paid $60 for a darling pixie hair cut that will last what? 2 days, 3 days? Geez, I should have used it toward a wig, some scarves, hat...but but....Oh well, I did ask her if I would have to pay for the hair cut if when she went to blow…

Ovarian Cancer

Discussion List