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Hospital bashing
Does anyone remember me posting something awhile back about a friend who bashed my cancer center? She spoke about my hospital receiving federal funding and this was influencing their diagnosis. A friend of her's has a spouse who had went to my well known cancer center for treatment. They told him he was terminal. She took…
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Worried about my mom catching cold
Ok, this may be silly, but I know that mom's white blood counts are down. They aren't too terribly low, but lower than normal. And just this evening I've started running a small fever and having a sore throat, and I'm the primary care taker. How worried should I be about this? I've got to go to her house tomorrow and set…
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primary peritoneal?
A group of us women are terrified for our dear friend. She was resently diagnosed and is visiting her first oncologist tomorrow. We have read that the debulking surgery is the intial tratment done prior to chemo. Tumors were not located using a PET scan. We understand that merely means that the tumors are under 2cm.…
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Feeling scared
A friend of mine who also has OVCA doesn't have much longer to live. Hospice was called in last week. She was diagnosed one year before me, she didn't even last 3 years!! This news has me really shaken up and freaked out. It will be 2 years since my diagnosis in April 2011. I'm only 32, so I have age on my side but I'm…
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Holidays
Anyone have any ideas on how to manage the holidays while on tx. Sometimes I am too tired to shop and decorate.
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December is break time
for me and my body. After my drama in the chemo room last week, I did go in for a heart US, and everything checked out fine. My doctor thinks it was "overall fatigue" and suggested that I take some time off to refresh. I am going to take him up on it, and so I might not be checking in so often in December. Over the last…
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Doxil
This is my 3rd treatment for OC, I was less than 6 months in remission when my numbers flew off the chart. I had my CT Scan and it showed 3 small tumors 1 in the pelvic, 1 in the Lrg intestine and 1 in the omentum. the Dr has me on Doxil now since I can't go back on Carbo/Gemzar or Carbo /Taxol ( due to nerve damage in my…
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ca 125 test
what does the result numbers mean
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first time contributor
I have been reading this board for awhile and decided I should contribute. I was diagnosed on June 15th 2007 with Stage 1V ovarian cancer. Fluid on my lung was cancerous. I had 6 infusions of carbo/taxol and have been NED since. I know that this is the kind of news I needed to read when I was first diagnosed and hope that…
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Advice for Linda
Having just read the heart-rending testimonies to Saundra from her husband Joe, and thinking about Bonnie, too, and further the post just recently on a 12 year survivor journey...want you all to know how much appreciated your encouragement has been to Linda and I during the last 5 years. I'm writing today for some specific…
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12 year survivor
I just recently celebrated my twelve year cancer free anniversary from stage 3C ovca and wanted to share with all of you. There are longterm survivors, not without side effects, but survivors nontheless. I think of all of you fighting for your lives and remember being there, and want you to know you are never forgotten. I…
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Pray for my niece think she has cancer
My niece just lost her Mother to cancer and now she may have cervical cancer, she get ultra sound the 10th if yuou can all pray for her
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Great news I am ok
just got back from my doctor yesterday, the cancer is still in remission and gone, guess I was just experiencing stress from loosing my sister Thanks for all who prayed for me and please continue to pray.
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So confused about mom's cancer
Ladies, I really need some help here. Ok, we've been told that mom's CT scans showed nothing in the way of any tumors in her abdomen. Her liver was unremarkable. But she has some thickening in her uterus. She also had severe ascites, that had to be drained four times before her first chemo. And it showed adenocarcinoma,…
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BLESSED, HAPPY THANKSGIVING!
I thank God for all of you today and always. May you all find something to be thankful for tomorrow in your quiet moments, even in the midst of all that you are going through. God bless all of you. Luv & (((HUGS))) Monika
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Afraid
I am really afraid right now. When I went to the bathroom to urinate today, I am seeing pink. I have put a call into my doctor but I am just scared to death.
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I am so afraid I'm going to lose
My battle. I was told today by my oncologist that after 2 rounds of Doxil, the PPC is spreading in the peritoneal lining. I was diagnosed the end of March of this year with PPC, with the cancer spreading to my lung. At the time of diagnosis I was given a 70 to 80% chance of survival. I went through the 6 rounds of…
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Great NEWS- re: mom's surgery
The Dr told her she had the "best scenario she could of had" after surgery--- she did NOT have any colon issues and her spleen did not have to be taken! She had a hysterectomy and a tumor taken- and a few more chemos will take care of that. She needed a day to really recover after the surgery..lots of nausea- but it's now…
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Saundra is at peace
This is Joe, Saundra's husband. Sandy died peacefully at 1:30 p.m. CST after 27 days in the oncology department and an additional 18 days in the hospice unit. Before she left us, she was visited by all three of our children, their spouses, and all six grandchildren—ages 14-22. Her courageous battle ended just as our…
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Never Give Up
I am having a recurrence of my 2009 ovarian cancer. Two months ago after a trip to the emergency room because of severe pain in the bowel, I had a CT scan that showed cancer specks all over the bowel and up on the liver. I was told that the reason I was in so much pain was because the bowel had pretty much adhered to…
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Can someone help me
I was diagnosed in Feb,2010 with stage 3 ovarian cancer. I had surgery which was not successful, they couldn't remove the tumor. I had 6 carbotaxoil treatments after the side effects were over I felt wonderful. Last month I started feeling a little nauseous & not wonderful. I went to my primary Dr & had CA125 test which…
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Not my wife, but that of a good friend
A couple weeks ago the wife of my freshman year college roommate passed away from ovarian cancer. How strange that two young men should grow up to share this challenge with their wives in middle age. I finally talked with him as I could not attend the funeral in Iowa as my wife was in throes of treatment here at home. But…
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New TSA guidelines
Just an FYI....although we all know that the metal detector at the airport will not pick up your port, the new body scanners most certainly will. And once they see something on the scan that isn't completely ordinary, you will be subjected to a pat down. This has happened to me repeatedly, since they installed the body…
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Wishing
all to have a Happy Thanksgiving with their family and friends and to enjoy their time together and not to think about what we are going through!! Toast to all, Joan
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Recurrent Clear Cell/Clinical trial for morab-003
My 2nd look surgery last week revealed that the cancer is all over my abdomen. They drained the fluid that was causing my pain. Saw the gyn/oncologist today and he is recommending I go back on the original protocol of 18 weeks carboplatin/taxol which put me in remission for over 18 months. He's also recommending a clinical…
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Saundra is close to leaving
Dearest Survivor Friends, this is Joe, Saundra's husband. She is in her 16th day in the hospice inpatient unit, and has amazed all the nurses and her oncologist by hanging on this long. Since last Monday she has been heavily sedated to control intermittent spasms. All three of our children have visited while she was lucid…
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Promising new OVC research on Gene Sequencing
OncoMap Gene Sequencing Finds 50 Mutations in Ovarian Tumors Elsevier Global Medical News. 2010 Nov 16, J Smith Mutational analysis using a Sequenom-based technique of ovarian cancer samples has unveiled more mutations than were previously known, and could become part of a personalized standard of care for these…
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Getting used to "new normal"
chemo has started...I still have my hair, however I have always used high end hair products because my hair is very fine and thin and my big hope was always if I used the best product my hair would...well be more what I wanted it to be like (never really happened). As I was in the shower yesterday (my first day for chemo)…
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Thinking about Saundra
Just thinking about Saundra this morning. Bonnie and Linda too.
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I hate Insomnia :)
it's 4am.I'm up for the 6th time tonight. you would think that with all the meds I'm on for neuropathy,hot flashes,leg pain,joint/body aches,stomach cramps and so forth, that one of them would help me sleep!!?? No such luck!!! I wake up 5-7 times a night. I don't want to add more meds to what i'm already taking. Isn't…