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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for November 2017

My mind is wondering again..so worried
Can stage 2 hodgkin's lymphoma be cured with stem cell transplant? From the start it was only stage 2 they did not stage my relapse. I know its borderline activity in 2 nodes. That was 3 weeks ago im still waiting for insurance to approve my chemo. But I read so many storied some people going through this for 7-9 years? Im…
Been awhile
It has been a while since i posted last, finally got this auto immune disease under control after being misdiagnosed for 7 months finally i know what im dealing with, oral lichen planus, which i will deal with the rest of my life. Last scan in Sept showed nothing as far as cancer, so i am 2 and half yrs in remission. Life…
Seattle T-Cell Lymphoma patient education seminar 2017
Saturday December 16th, 2017, 8:30 AM to 2:30 PM at the Seattle downtown Sheraton. It's that time again. Free breakfast and lunch. A very informative educational opportunity, providing the latest in research data regarding T-Cell Lymphomas, presented by Dr. Andrei Shustov, one of the luminaries in the lymphoma world. A…
Mets to spleen? Anybody?
I have not yet been diagnosed. I have a diagnostic screening mammogram and ultrasound this afternoon. Currently I'm category 0 because it was my very first mammogram that they found: 1cm mass/focal asymmetry on lower outer right breast. I also haven't had a huge lump in my armpit for quite some time on the same side. But…
Testing to see if I can post new thread
I keep trying to post a thread and I keep getting an error message saying to try again so I'm just doing a quick little test to see if this one posts.
Biopsy with sedation
has anyone ever done a biopsy with sedation? I had one before without any and it was horrible. Now my doctor is letting me have sedation from the bad experience I had before. Was wondering what they give you? & if Your in pain when you wake up??
Last treatment!
First off......Hello!!! My name is Ross and I was diagnosed back in June of this year (2017) with nodular sclerosis Hodgkin lymphoma and have been undergoing the standard ABVD chemo regiment ever since. It's been a long tough journey to say the least but next week is my last treatment!!!! Finally!!! I'm new to this whole…
nodes getting bigger Mantle cell
So my mother just had another check up with her oncologist to go over her recent blood work which all looked good. She actually said her blood work has been getting better her last few check ups. However she said that it appears her nodes to appear to be increasing in size. She has not been treated as of yet. The doctor…
How do you handle it when your DR/nurses mess up? (Mistake leads to infusion reaction...)
I am undergoing maintenance therapy every 2 months for follicular lymphoma with the newer immunotherapy drug, obinutuzumab. This drug has to be given at a slow drip EVERY single time due to the strong infusion reactions it causes (unlike rituxan which can be given more quickly after the 1st infusion). This past week,…
advise for possible cancer w/no insurance
I rarely go to doctors. When i do, it's usually an emergency. Lost job & have no insurance at the moment. I've been feeling pretty bad for the most part of the past year or so. I finally decided to try to get things cnecked out. I ended up going to an adult medicine doctor at an income based clinic in my area. He & the…
brentuximab
Has anyone ever tried this chemo before? My doctors are giving me this and then stem cells transplan.
Mother-in-law, Large B Cell Lymphoma
Déjà vu all over again. I see on the caller ID it’s the Cancer Institute, I pick up the phone to hear the results of the biopsy only this time it wasn’t for me or my father but my mother-in-law. Once again I stand in lymphomas playground. I with follicular cancer NHL, my father with mantle cell NHL and now my…
Lymphocytes in the bone marrow starting cytoxan and rituxin
i was wondering if anyone out here he’s had just cytoxan and rituxin...with 1000 mg of prednisone (the steroids are only for 5 days) it looks like I will have to do this for 5 times...with 3 weeks in between.... Any feedback will be appreciated !!! They said I have enormous amounts of lymphocytes in bonemarrow and it’s not…
Treatment rash
Did anybody experence a mild skin rash during chemo? and did it stay a little bit after chemo?
Double Expressor Large B Cell NHL
Good afternoon. My mother was diagnosed with Double Expresor Large B Cell NHL about 3 months ago. We found out she is in remission after 2 rounds of da-rpoch. She will continue to get a total of 6 treatments followed by methotrexate infusions. We are aware that the cancer my mom has is very agressive and can potentially…
Biopsy Reaults!!!!
My results are back my doctor said that it’s the same exact Hodgkin’s lymphoma I was first diagnosed with , it didn’t spread and is in two lymph nodes they biopsies. i might need ice chemo? Or something that starts with a B a out patient chemo and then stem cells in Februar. I’m so scared lost and worried. Does anyone have…
Hepatosplenic T-Cell Lymphoma
My younger brother was just diagnosed with Hepatosplenic T-Cell Lymphoma. This is likely attributed to some meds he was taking for Crones. We want to talk to people who are fighting the same disease or family members of those who have it. His is the alpha-beta type, which we are told is "more treatable", however, we don't…
Questions - My sister-in-law
My sister-in-law said she had Non-Hodgkins and it was in both armpits and groin [Gland or tumor was the size of an avocado pit]it has also in the bones as well. At this point, let me add my brother was in poor health and in and out of the hospital and care facility most all of 2016. I would guess 80% of the time. During…
To Port, or Not to Port?
Starting a new thread since this is more of a specific question...My wife just started ABVD. My cousin, a RN who worked an oncology/treatment floor for a year plus, had asked if my wife would get a PICC or a Port...she explained what was meant by using a central line versus standard IV and also the pros and cons of the…
Update from paella
Hello all – Sorry to be so silent…been super busy with Mac’s caregiving. No complaints, mind you, but it is, indeed, overwhelming. I think a lot about you all and just wanted to say hi. I’m doing fine and am 16 months in remission now from the return of my Folicular NHL and an autologous SCT. Mac's pancan (Acinar Cell)…
False Negative?
Hi everyone - I had/have left sided neck lymphadenopathy for about 6 months. I finally saw my PCP, and she noted it as well, and we talked about other symptoms I didn't realize might be related, like widespread itching and fatigue. I didn't (and still don't) have any symptoms consistent with infection or autoimmune…
Paranoia
Hey guys, i just finisged 6 rounds of abvd chemo and i had a pet scan after 2 rounds and they said eveything looked great, i finished my last abvd chemo 2 weeks ago and i have a pet scan in 2 more weeks. The doctor is talking like everything is going to be fine and really there is no sighns it shouldnt be, basically im…
PTCL NOS
Is there anyone currently being treated for Peripheral T Cell Lymphoma NOS?
bronchoscopy
Im scheudled this Friday for a bronchoscopy biopsy! Anyone have this Done before? I was told it’s not invasive or anything bu wondering about the recovery of it ? I heard your throat and mouth are numb which is a little scary to me I feel like I’m gonna wake up and not be able to talk? Any info will be appreciated.
Nasua, vomiting
Hey, i am actually finished with my 6 rounds of avbd chemo, but before i was diagnosed with hodkins i was vomiting and nasua after almost every meal. The reason i am saying this is because I did not really find that as one of the symptoms for hodkins but once i strted te chemo it went away. I was considered stage 2…
ABC Vs GCB
So I keep reading about how ABC (activated b cell) has a worse prognosis than GCB (Germinal center b cell). Can anyone elaborate?
Follicular lymphoma
Hello, I am new to the forum. I was diagnosed in Sep 2015 with Follicular lymphoma and have a Power Port implanted in my left upper chest. In the last year I have had chronic pain and numbness in my left arm, shoulder and upper back. It seems to be my main side effect other than tiredness. Has anyone else experienced this?…
About to get a biopsy and so scared.
Hi, I'm currently laying on my hospital bed and very scared. I have a mass on my back, touching the spine, that has been causing me hell of pains, so now I'm getting to the bottom of it, except that the bottom looks very scary. They have high suspicions that it's lymphoma. Today I get the biopsy done, but it won't be until…
Has anyone ever had a lymph node chest biopsy??
So I just found out after finishing 12 rounds of abvd for classic Hodgkin’s lymphoma, I need a biopsy on one of my lymph nodes in my chest since it like up on a pet scan. Has anyone went for this biopsy before??? Was it always cancer back? I have no idea what to think I was told this is the most curable cancer and now I…
Has anyone ever had a lymph node chest biopsy??
So I just found out after finishing 12 rounds of abvd for classic Hodgkin’s lymphoma, I need a biopsy on one of my lymph nodes in my chest since it like up on a pet scan. Has anyone went for this biopsy before??? Was it always cancer back? I have no idea what to think I was told this is the most curable cancer and now I…

Lymphoma (Hodgkin and Non-Hodgkin)

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