Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2017

Eyebrows,head hair, etc
Hi everyone, I just finished 6 rounds of ABVD chemo and am currently waiting to take my final pets scan. i didnt compley lose my hair but jt thinned quite a bit but i lost my eyebrows, eye lashes, arm pit hair, pubic hair and leg hair. i am a male if that matters. I was jsut curios how long after treatmenr it normally…
Pet scan results!!!! Even more scared!!!!
Has anyone had a pet scan done show low activity and still be relapse??? My pet scan show border line activity and now I need a biopsy again!! This time they are gonna do a biopsy in my chest ! Does anyone know if his is painful??? The acticity shows like a level 5 which my doctor said it’s borderline and that’s why she…
Mantle cell lymphoma stage 4
My husband was diagnosed with stage 4 MCL a month ago. Treatment is chemo plus Rituxan once a month for 6 months. Then bone marrow transplant if needed. Can chemo and Rituxan treat the bone marrow issue too or is it a given that he'll need the BM transplant? I am in shock over this whole diagnosis. He is in great shape. 56…
Newly diagnosed and need support
Last Thurday, October 26th I was diagnosed with Follicular Lymphoma. They don't know what stage it is yet. They do know I have enlarged lymph nodes in my neck, both arnpits and groin. Those are the ones they can see. I am getting a port put in on Monday. This type of Lymphoma is not curable but they can at least manage the…
Mantle Cell Lymphoma Diagnosis
Hello All, My 59 year old husband was recently diagnosed with Mantle Cell Lymphoma. Small lump on the right side of his neck started the whole process. We live on the outskirts of Houston and have been blessed to arrange an appointment with Dr. Hun Lee at MD Anderson in the Lymphoma and Myloma Clinic on October 31. He will…
Still waiting
is it possible to relapse from classic Hodgkin’s lymphoma so quickly after chemo finished if I had such good scans within 2 cycles the cancer was gone. I’m so worried about my scans since a ct showed a slight increase of the lymph nod in my chest. Just wondering if anyone else relapse that quickly after chemo!!??
Pleural Effusion - please suggest
Hi, I Have a query - can anyone please suggest, is this happen in such scenarios? My father being diagnosed of advanced NHL - large mediastinal mass and skeletal involvement , went through 2 cycles of chemo - R-CHOP. this week was his third week of 2nd cycle - his next one is due on 31st Oct. Last tuesday night he has been…
Chest infection in third week - Second Cycle of R-Chop
Hi all, My father being diagnosed of advanced NHL - Dlbcl aged 55 has gone through 2 cycles of R-Chop so far. First two weeks after treatment are always good and can say quiet "Normal", but third week of his first cycle and now again in second cycle is very tough. He has caught diarrhea - doc has provided Flagyl and other…
Very Afraid with Symptoms PLEASE HELP ME
Here is some background and a timeline: Last year after a bout of the flu I was diagnosed with an Autoimmune disorder named Parsonage Turner Syndrome, which left me paralyzed for a few months. Since then I have recovered my muscle strength. Timeline: 1.5 months ago- Following a spider bite I got a mild 99 degree fever for…
CAR-T Gene Therapy Approved this Week
http://www.dana-farber.org/newsroom/news-releases/2017/fda-approves-car-t-cell-therapy-for-non-hodgkin-lymphoma/
Terrified of relapse!!!’ Opinions plz
I’m 28 years old and February 2017 I was diagnosed with stage 2 Hodgkin’s lymphom. In April I started ABVD 12 treatments. ( 6 cycles ) I had clear Petscan within 2 cycles and finished my treatment until September 12th! I was not feeling good the week I went for follow up CT i was having coughing and having minor chest…
Finally diagnosis
My daughter had a pet scan and CT done on Tuesday. She had port put in on Wednesday and her 1st round of chemo(ABVD). Doctor called me yesterday and said she had classical Hodgins lymphoma, stage 3 with symptoms. She has a 9cm mass in chest. They going to send her to radiation for consultation after she's done with chemo.…
Wait & Watch continues:) NHL (follicular)
Hello all. Just returned from oncologist visit and results of my CT scan show the 2 nodes in groin and hotspot in pelvis same size since May. No symptoms, will continue "Wait and Watch" for another 3 months. Some of you know I live in No. California and just experienced the horrific fires. My heart goes out to all…
Deauville Score 2
Well I posted inside a thread but thought I would post it in a new discussion because threads sometimes get old or jumbled. Finished RCHOP July 3 ,2017. PET scan in early September showed some activity and a Deauville Score of 4. My local Oncologist wanted me to go out to MD Anderson since my spleen was so enlarged and the…
Allogenic Stem Cell Transplant
I have friend who has a niece who will be getting an allogenic stem cell transplant.can anyone tell me what is the most critical time during this process. He is in another state and was wondering when he should be there for support. Sandy Ray
Rituxan Hycela: Rituximab via injection
Hi - I have never posted before, but thought my recent experience might be of interest to anyone receiving Rituxan therapy. I was diagnosed July 2016 with SMZL - splenic marginal zone lymphoma. My bone marrow, spleen and blood are all involved and my blood numbers were such that my cancer was categorized as stage four…
R-Chop Fatigue
Hi, my father being diagnosed of NHL stage 4 - age:54 , has completed his second round of R-Chop last tuesday. First week was pretty amazing alhamdullilah. No nausea or anyother issues - mild pain in bones after neulasta shots on day 3,5 and 7. Today is his 8th day and he is feeling extremely fatigued, both physically and…
Systematic or hypochondriac?..... help
I could go on all day, I’m 41 yr., healthy mother of two, was doing cross fit 3 to 4 Times a week, but I’m just gonna go ahead and type up my symptoms Again I am sorry. Over the past year I’ve been experiencing multiple ear infactions (right ear only)every 2 to 3 months. finally after the 4 one my doctor sent me to an…
Rituxan maint done
Today was my last Rituxan maintenance treatment. All went well plus I met my new oncologist. (The Dr I had retired at the end of Aug.) She is very young and very enthusiastic. We went over my treatments and such. My prev Onc wanted to do a CT scan and bone biopsy before the end of the year. My new Onc told me that she…
Is there a case to support no radiation?
How many of you have declined radiation and why? Have your doctors been reluctant to give you radiation? I will talk to my dr.this week. I think because I'm getting 6 rounds of R-chop, my tumor in the testicle was small, no infiltration, my lactate dehydrogenase is normal plus no other activity in ct scans he doesn't…
Who do I see?
I have a somewhat complicated situation and I'm not the best at communicating my issues but, I'll try my best. A little over two years ago I was undergoing a series of test, after going to my doctor for lumps (which turned out to be lymphnodes), night sweats, severe fatigue, constant fevers and trouble focusing. I had…
DLBCL: My Dr. said a PET Scan is not necessary
Hello everyone I am almost finished with R-Chop and intrathecal therapy. I didn't have a PET Scan at the beginning of treatment. My Dr. said unless there is something suspect he won't give me a PET Scan. How do I know I am in full remission without a PET? Have others gone through treatment with no PET Scans? Your advice…
DLBCL with involvement in testes: What is the risk of a local recurrence without radiation?
Hello everyone, I'm almost done with 6 rounds of R-Chop and 6 rounds of intrathecal methotrexate. My doctor (a hematologist) ata public hospital in San Jose, Costa Rica said he doesn't think I need radiation. I am stage 1, localized to the teste with a tumor that measured 3x2.5cm (which is too small to be considered a…
My 10 year son has swollen groin lymph node
Hello! I am a worried Mom of a 10 year old boy. He has a swollen groin lymph node. I noticed it about a week and a half ago by accident. I walked in on him getting ready and bam it was right in my face. I don't know how long it was there for. We immediately went to the doctor and they had him start on antibiotics. It's…
New to site- Late radiation effects
Hellp everyone. I am new to this site, but not to cancer. I wanted to reach out to other servivors to compare notes. (Please forgive spelling and/ or terminology errors. Neither a strong suit!) I was diagnosed with Hodgkins in 1976 on my 16th Birthday. Treated with several surgeries (including laporaodimy w/ splenectomy)…
lymphnodes
Hi i was wondering if anyone could help answer some questions. I recently had a pet/ct scan and lymphnodes were shown that had a suv up as high as 6.9. Does inflamation go that high. I am having a biopsy monday and not sure about any of this. Please someone respond???
R-ICE and Autologous Stem Cell Transplant experiences?
Hi, my name is Kaitlyn, I just found out that my cancer has returned. My Oncologist is scheduling another biopsy to make sure of the type of cancer, which less than a year ago I was going through R-CHOP for stage 4b NLPHL. He has already told me what the treatment plan will be no matter what it comes back as. He wants to…
SMZL
Good Morning, I was diagnosed with Splenic Marginal Zone Lymphoma B-cell Non-Hodgins around 2 years ago. I had my spleen removed last June in order to make a true diagnosis of cancer. I know this type of cancer is slow growing and is rare. I was wondering if anyone that has this cancer had a relapse and if any scans or…
Chemo delayed for 1 week
My father 55 years old been diagnosed of NHL and been given first cycle of R-CHOP on 12th Sep 2017 . The three weeks he has coped well with chemo and side effects - there was an improvement in his eating habits as before the tumor was pressing his food pipe and he could not eat or swallow. He did'nt develop any fever or…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List