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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2015

FNHL
Have not posted in a long time. Have been diagnosed with Fhl in 2004 and did 22 radiation therapy after surgery. That took out my submandibular gland out and in my left cheek. Then I went to 2009 and had to do the right side and it came back in my bone marrow and abdomen. did 8 rounds of chemo and zevalin. So have been in…
R-chop & Prednisone
I have completed 3 out of 6 chemo sessions. At the time of the first one we were still waiting for insurance aproval for the Rituxan so it was just Chop. On the day of chemo I have to take 100mg of Prednisone, in the form of 2 50mg tablets, before I go to chemo and for 4 days afterwards. The first time I didn't feel much…
Surreal
Saw stem cell doctor last Wednesday,it is a lot to take in, i was over whelmed and emotional when i left her office. One thing came as a shock to me was my Oncologist failed to mention the results of the multiple biopsies i had, was that my cancer is now transitioning in large B cell or aggressive, it was a surreal…
pre cancerous, Ugh.
Have been very quiet latley. Finished Bendamustine, Rituxan and nulesta treatments in February. Starting to feel human again. Start 2 yrs of Rituxin maintenance in a few weeks . Had weird spot show up on the apple of my cheek a few weeks ago.I went to dermatologist and he froze it and said if it disappears completely in 3…
Lots of Symptoms Yet No Answers
First off, I have not been diagnosed with any form of cancer or anything to be quite honest but my symptoms seem to point in the direction of some form lymphoma. I have been to see my regular doctor who sends me to specialists who perform countless tests over the last 3 years with small abnormalities but not enough to…
cuzjon
hi Jon, I'm so sorry I haven't answered right away, I just got very busy. I am so glad you did well with B/R, think you know that Bill did also, but does'nt seem to be the case with some. We researched and even emailed 2 docs in Germany and one in WI about him getting a stem cell transplant and they all suggested not to.…
Help for my 12yr old daughter
Hi all. This is my first official post here and while you all seem like such a wonderfully supportive bunch, I'm quite sad to be posting here. A quick intro: my name is Aly & I'm from Cali ;-) I'm a mom to 5 crazy, cute & lovely kids ranging in age from 12 to 22mo. My oldest daughter Anni- (pronounced like Annie) has been…
Treatment
Has any one else had breathing problems after treatment? Like radiation to the chest can that cause lung problems? I had breathing test done but they said nothing was wrong every thing came back good but I still can't breath I take my inhaler but it don't work.
The latest
I had my first round of chemo last week which was 2 days in a row, of retuxin and treanda first day, and treanda only the second day, then neulasta the day after, it totally whipped my butt, i used regular Claritin for bone pain which helped a lot, but after al was said and done i am not so sure i can handle stem cell now,…
Scared and frustrated
Hi, where to start. A couple years ago I noticed a bump on my left clavicle. It wasnt hard but it was big. I went to my pcp and he said it may be a fatty tumor so he sent me for a cat scan. Cat scan showed a nodule in my left lung and somewhere else in my neck, the lump on my clavical was diagnosed as a lapoma < spelling?…
Scan results tomorrow morning
It has been way too long since I have been on the site. I have been traveling with work from october til now like a crazy person. I had my scan monday and get my results tomorrow. I am being optimistic but still dealing with these ugly thoughts and anxieties. I have been in remission for about 2.5 years since my Auto…
Three months after my last chemo
Hello my friends (the ones I met here almost 9 months ago)! It's been a while since I posted here or even read any of the other posts. Today is exactly 3 months since I had my last chemo but it feels so much longer and I just couldn't be happier that it's all over. I have some good news which I receivied the day after my…
BR versus RCHOP for Follicular Lymphoma
Hello, I am new here, posting for my 45 year old husband who was just diagnosed with Follicular Lymphoma, Stage 4, Grade 3a (30%) Grade 1-2 (70%) after a surgical biopsy on a lymph node in his neck. We are in the process of getting several opinions for treatment and struggling since there is not aggreement. Most of the…
Nutribullet or other juicing do's and dont's
While going through chemo is there any fruits or veggies or powders that should be avoided? that might harm the chemo's effects? and is there anything that you all recommend? a favorite recipe while on chemo?
Help with Stage III B Cell Large Lymphoma
Hi, my mother in law recently got diagnosed with B Cell Lymphoma. For a few months she was experiencing weakness and also what her primary considered pneumonia (in fact she is still taking Levaquin). After she was taken to the hospital and many different tests were done she was diagnosed with Stage III Large Cell Lymphoma.…
Concerned about lymphoma
About a year and a half ago I had a lump show up on the back of my neck. I believe it is the occipital lymph node. It is about 1.5 cm from my best guess. Other than the lump I feel just fine. I also have a small node behind my right ear and a couple under my jaw. About a year ago I had an ER doctor feel it and he said it's…
Girlfriend was recently diagnosed with cancer and needs help.
Hi guys, my girlfriend Gemma has recently been diagnosed with a certain type of Lymphoma cancer. Unfortunately she does not have health insurance so all health costs will have to be out of pocket, but we do not have the resources for it. Her family is considering selling the house she and her brother grew up in just to pay…
Hello everyone!
Hello everyone! Hope everyone is doing good (health wise). I apologize for not checking in sooner but since a lot of things changed for me including oncologist, I didn't want to post until I had news to report. I have a couple of questions that I'm wondering about and hopefully you guys can help me out! First the results…
New to site
Hello, I haven't been diagnosed with anything yet but I have some concerns and I don't know what my next step is. I started having pain under my arms in Dec 2013. Normally, when I shave my armpits, I always wipe with alcohol when I am done. But I didn't this particlar time so I figured my problem was related to this. Then…
Thyroid cancer x2, unexplained pulmonary embolism and enlarged aortic lymph node on PET SCAN , not f
I don't know what's going on but I have flank pain on left side and fullness and pain in abdomen left side which Is where the enlarged lymph node is . Confused. Could I have csncer for the third time ? A diff type? And an unexpained pulmonary embolism. Help anyone!
Latest & Greatest
With the most sincere apologies for being MIA, I am more than eager to say that today is the day that Kyle is receiving his brand new donor stem cells at The Colorado Blood Cancer Institute. He left last Monday February 23rd, 2015 to sign his final consent, have his central line placed and admitted to the hospital to…
Stem Cell
Well it looks like stem cell will be in my near future, not going to lie, i am very nervous about it all, Oncologist said this is my only option at this time, i have heard good results and a few bad, i hope this will be it for me as far as treatment goes for a very long time, will post more as i learn more, please pray i…
on the edge of a cliff
Everyone has their share of trouble, and Ive mine. Though things tilted into the realm of ridiculous when at 21 I was suddenly diagnosed with terminal stage IV cancer. Though I survived with the aid of an iron will, I was damaged. With tumors on my pancreas, liver, lungs, i could go on but it'll be easier to say from top…
New to this site
Hi, my name is Karen and I was diagnosed with Follicullar Lymphoma stage 1 in Dec.2012. it was caught early because I had blackfly bites in the summer and one bump had not gone down. My family dr., endocrinologist and plastic surgeon all told me it was a lipoma but upon removal, they discovered a 5cm tumour behind my right…
radiation
Lease post your year of diagnoses for hodgkins , include staging and surgerys and side affects! Lets find the common links between us for discussion. this could simplify our efforts of charting our side affects. Thank you Kevin 1987 stage 2b
starting our MCL journey and so scared
I an new here and lost the last thing I posted...not sure where I posted it! My husband was just recently diagnosed with Mantle Cell Lymphoma. We go this week for his bone marrow biopsy and PET scan results. They have already staged it at 3 with the CT scans and said it could be 4 when we get these other results. We are so…

Lymphoma (Hodgkin and Non-Hodgkin)

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