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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2014

Mass in right eye...
Hi friends, Just thought I'd tell you that I will be having biopsy surgery on my right eye,Tuesday morning at 7:15. First of January a small spot in the corner of my right eye..(tear duct) showed up and has slowly grown to quite a large mass over the last 3 months. It is causing blurred vision, headaches and pressure…
Rituxan Interactions
Since several of us are receiving Rituxan therapy, I would like to encourage everyone taking Rituxan to carefully read the drug interactions list. Other than the well known live virus vaccines you will find that several common herbs and food supplements are listed. This list includes echinacea, vitamin E, zinc and several…
"How Doctors Think"
I am scheduled for an electrocardiogram on April 8. My new NP thinks my inability to breathe and my staggering when walking may be heart failure from Adrimycin . Based upon the dose I received, I have a 18% chance of heart damage from Adrimycin, which is a drug used in ABVD, CHOP, and several other combination therapies.…
Humor?
After a recent discussion here, I have decided to call my bathroom the Jim rather than the John. It sounds so much better if I say I went to the Jim first thing this morning.
Back from Stanford
In our hotel room that is. What a good idea to stay over! We would be in bumper to bumper and not home till 8 or 9 at least. Now we are getting ready to walk across the street for Thai food. It is pretty much what we thought, we mainly just hurried up to wait but they were very accomodating. The doctor told us it is a no…
Education Program: Mantle Cell Lymphoma
I got a mailer yesterday announcing a free telephone/web education program sponsored by the Leukemia & Lymphoma Society on the topic of Mantel Cell Lymphoma Update on Treatment. The program is on Thursday, April 3, 2014. To register, visit their site at http://www.lls.org/ Even if you don't take advantage of this education…
Scanxiety
Hi All.. Well time for my testing and six month check up and of course I'm feeling it. Anxious and pre-occupied with thinking about possible outcomes. Silly I know since worrying isn't going to help or change anything. I just seem to feel this way every time I have a check up. I know you all get this. Others try to…
A Story - Feelings of Cancer [non-hodgkins Lymphoma]
Once you’re in it, it’s like: All right, I can do that. I did it. I had that sense of accomplishment for my part, as microscopic as this was stacked up with the efforts of my Doctors and Caregivers. I felt as though I had been conditioned for that situation, as weird as that may sound. Much of my parents' strict…
Weak Right leg, Hurts when I walk and at Times I fall
Hi Every-one this is my 1st post. I will get to my point. I was diagnosed with non hodgkins Lymphoma 8 years ago and in 2013 I started treatment with chemo after 12 treatments it did not work, next I was treated with 20 sessions of radiation. The radiation did shirking the tree lymph nodes on my right leg. Moving forward…
New to the group. Any one has Primary Intraocualr Lymphoma?
Hello, My mom (61 years old) was diagnosed with Primary intraocular lymphoma in early February 2014. Primary intraocular lymphoma is lymphoma in the eyeball, and considered as CNS lymphoma. She has diffused large B-cell type lymphoma in her right eye only. Her brain MRI and chest, abdominal, and pelvis CT scan came out…
emotions
Hi all, first id like to start out by saying that i was diagnosed in january 2013 with non hodkins large bcell lymphoma. when my dr told me that i had cancer i was scared shitless! they started me on rchop treatment. a week later i had a bone marrow biopsy and the drs determined that i had 2 mutations in my cells instead…
planned maintenance on CSN this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
How Much Do You Drink?
And no, I'm not asking about booze (per se). I wonder how much fluid you drink in a day, including water, coffee, tea, milk, juice, sodas, and also any booze. I am still having problems with low blood sodium. After my first chemo, my sodium dropped to medical emergency levels and I wound up in ICU. My levels still haven't…
Karl (Shoopy...How are you?
Hi Karl, We are all wondering how you are doing? Check in when you can, or feel up to it. Keeping you in my prayers. Love...Sue (FNHL-stg3-grd2-typA-Dx 6/10-age 63)
VA disability for Mantle Cell Lymphoma (Vietnam Service)
I have just been diagnosed with Mantle Cell Lymphoma. Apparently it is directly related to my service in Vietnam. Has anyone had any experience in filing a VA claim? I am going to the DAV this morning and file the initial claim to get the date of claim locked in, and will talk to them about the procedure for getting VA…
Mantle Cell Lymphoma and R-CHOP
Hello Everyone, My name is Angelia. I'm 56 years old. I was recently diagnosed with Mantle Cell Lymphoma stage 3 on Jan. 24, 2014. I also have a history of Lupus, Fibromyalgia, Sjogren's, Raynard's and Plumonary Fibrosis. I started the R-CHOP regimine on March 3, 2014. I will be recieving this treatment every 21 days for 8…
Max Alocohol and NLPHL
Hi max, Bill. and all other friends I want to know can we have some beer. What reaction it will have on us. May I have your opinion. Suresh
PET scan results
Well the results from the PET scan just confirm that it is an active cancer, same area just a bit lower than the last time, i talked with my Oncologist and we agreed that i will wait for 3 months and take another scan as i am not mentally ready to go thru hell again. It has been a little over a year since my last chemo…
Training for school
Friends....just wanted to share that I had an epic 6 hours in the ER the other day, observations only...dang it!! I got introduced to the Dr and then to a bleeding artery in a woman's head immediately thereafter. I am not trying to gross you out, I promise. We saw 28 patients within a six hour period and I swear to you…
Hello friends, remember me? I hope so.. I am back and need some help/words of encouragement
Hello friends! It has been about a year since I have posted on here, because I finally got the news I was hoping for after 7 long months of different doctors and biopsies. I thankfully was diagnosed with “over active lymph nodes” and not the scary C word. Since last year a lot has changed! I no longer am a single girl! I…
The New Treatment
I figured I'd let you guys know that I was released from Area 51 (Roswell Park) last Monday. I'm still experiencing mild shortness of breath and fatigue but I guess that's expected after tha rough 3 weeks I've had. I figured I'd mention that the new chemo I'm on is R-GemOx (Rituxin, Gemcitabine, and Oxalplatin). I received…

Lymphoma (Hodgkin and Non-Hodgkin)

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