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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for September 2013

Cancer sucks!
I wish I recieved better news today. The doc read last week's PET scan this morning. While we've made progress there are still 3 lymph nodes showing active cancer. He believes these are R-DHAC resistant cancer cells. He is starting me on R-ICE today. I'll do two cycles 3 weeks apart and rescan. He is going to talk with the…
Hi everyone, I'm new
A year ago my husband got a cough that just wouldnt go away. He went to urgent care and they did an xray. They prescribed him a steriod because they said he had pneumonia. In December it was back again, so they treated him as they did in September, excluding the xray. He found a new primary care doctor and was referred to…
Early Birthday Wishes, Sue
HAPPY BIRTHDAY SUE !!! I know it's a bit early, but wanted to be the first to wish you a wonderful birthday. Your travel plans sound like so much fun. Enjoy every minute and take in all the beauty around you. When you are in Calif at your sisters, if you have time, give me a call and maybe we can meet for some coffee and…
Just looking for some advice about my 3 year old son...
I'm new to this site and joined because I just wanted some advise from others and I want to say that my son is currently not diagnosed with cancer and is under a doctors care! My son is 3 will be 4 this December and i will give a little of his history from this year. Early January he had gotten the flu 3 times and…
Is Sue Lost at Sea???
I starting to get worried. Do you think maybe a gigantic salmon got Sue. JOHN
YAY! scan results all good !
I'm new here, I introduced myself below in "new here" I think... you people are amazing ! So I got my pet scan reults today and I AM ON CLOUD 57... ha. I am on third round of bendamustine rituxan. Its working, I have a 50 ish percent of shrinkage of all my tumors... yay... and she wants me to do three more rounds of the…
Jims snake eradicator
Jim, I don't know about that snake eradicator thing. I was fishing last week and all of a sudden I saw a rattle snake coming at me with a frog in its mouth. I did as you said. I took out my bottle of JACK DANIELS and poured it all over its face. He dropped the frog at my feet and scurried off into the woods. 15 minutes…
GKH and eye problems
GKH, In an earlier post you mentioned you were having eye issues. Just wondering what kind of eye problems are you having. I have developed dry eyes and was wondering if it was related to the chemo or not. John
Loaded with questions.
Hi everyone, I have just recently joined this forum and many of the comments I have seen here are quite helpful. I am not a patient but am the daughter of one. My father has been diagnosed with CNS Lymphoma and I being a teenager have absolutely no idea what lies ahead. I have plenty of questions to ask evry piece of…
Infusaport removal
9/23/13 I had ny port placed 12 years ago to receive chemo, CHOP. I have lymphoma, NHL, and the last time I needed it for treatment was 2012. I decided to have it removed, and read other testimonies how it was a breeze, and they were feeling so much "lighter" in their shoulder now. After the operation 3 days ago, my right…
Dropping By
hey everyone Sorry its been a while since ive been here but the last two months ive been traveling like crazy with work. Anyways its been a little over a year since I had my auto stem cell transplant or DLBCL and im doing well. Been dealing with allergies and sinus issues but hey that life right lol. Hope you are all doing…
RITUXAN AND PAIN
Hello folks: I have always had a problem with low back pain. Started Rituxan in 2012. In 2013 I developed pain in knees, hips and back. Eventually I am going to a physical therapist. Anyone had pain problems from Rituxan??? Nancy
DLCBL R-chop pneumonia
My husband is 74 yrs old and previous to the diagnosis of DLCBL he was in good shape. He has had 5 R-chop treatments but has ended up in hospital 3 times with temps. He received neupogen shots after the 2nd chemo. Now after #5 he developed pneumonia that was initially thought to be PCP but then after a bronchosope that was…
Checking in
Hello Dearhearts It's been way too long since I said hello. I do follow all your posts, and keep you all close. Summer has kept me very busy, flying cross country multiple times. I am in the midst of planning my next flight. Ugg I have been buring my head in the sand, and trying to avoid docs and tests and everything that…
Hello, New Here !
Hey ! New here. Reading your posts helps with a lot of questions I have. Thanks ! I am Jason, 40 years old, diagnosed with stage 3B FNHL in May this year. I just did my third round of Bendamustine/Rituxan. So far little side effects. I go Tuesday for my first PET scan to see if its working, kind of worried !? If its doing…
Lianadw anyone hear from her? Last login June 6th...
I hope she is fine and doing well somehow... Wishing everyone else is doing well too. Thinking of you all especially those getting ready for sct... Wishing for best results with all your treatments...
Rituxan only Treatment
Hello, My 85 year old grandmother was recently diagnosed with Diffuse Large B Cell Lymphoma. She is elderly and weak so chemo is out of the question. We were given the option of Rituxan only treatment. Although the side effects are very different then with chemo and seemingly less severe we are still very concerned about…
Scan
Hello Everyone, l had my Cat Scan done Tuesday and they called me to let me know it was ok. In those words. But I see the Oncologist on Tuesday. I am going to talk to him about fever spiking now and then of late. So I dont know what to make of that. I have not posted in a while, I have FNHL stage 4 with bone marrow…
Hodgkins lymphoma
I have recently been rediagnosed with Hodgkins again I was originaly diagnosed 2 years ago and a very small area has re apeared.I am about to go through the ice program which leads to stem cell transplant and high dose chemo.I am scared and worried and would like to heare from anyone who has been through stem cell and .I…
DLBCL and LDN ( low dose naltrexone)
Hi. My Dad was recently diagnosed with DLBCL. We don't know the stage yet because he needs to have more tests, but the Dr. says he's at least a stage 2 (with symptoms of sore abdomen, some fatigue and lost a little weight). The Dr wants to get him started next week on his treatment plan (standard therapy, including chemo)…
Sharing caregivers experiences
My new book "Cancer's Wife" now available on Amazon. It's the compelling story of an inter-racial couple's battle against cancer. A tale of love, struggle, betrayal, and hope. Check it out when you get a chance. — at www.amazon.com/dp/B00EZZNY4U Wished i had something like this to help me through my two year journey
Up and down
Since I posted my first post about how low I was feeling, some things have improved. The depression/low mood has lifted quite a lot - I haven't felt the "being poured down a drain" feeling for several days now. I still have some anxiety, and have to psych myself up to doing things that were second nature to me before the…
5 year breast cancer survivor with 3 enlarged underarm lymph nodes
I saw my oncologist Friday and he sent me for a STAT breast ultrasound. The results indicate the underarm tissue has changed, and the 3 lymph nodes are enlarged and palpable, however are benign. Radiologist recommends repeating test in 4-6 months. It seems like they should be biopsied. ???? Any thoughts? ( Double…
Updates on everyone
First and foremost, my apologies for being M.I.A for almost a month now I thought it would be kinda cool to have a link open to any and all that can update us on where you are with your diagnosis, treatments or remission< this is partly due to laziness or lack of time to research my LYMPHOMA family on here. So any and all…
Diffuse Large B-Cell Lymphoma (DLBCL) Recovery Time?
Hey. This is my first post here, so be gentle! In May, 2011 i was diagnosed with Stage III DLCBL. I am almost 2 years out from being told that I am in remission. I had 6 rounds of R-CHOP chemo - and while u survived, I'm wondering at this point at what cost? I wake up tired, stumble through the day, STILL have numbness in…
28 Year Survivor Non-Hodgkins Lymphoma
Today is 28 years I beat the disease it also marks 5 year brain tumor survivor. I just want to know if anyone else is a childhood survivor of this disease. I was first diagnosed in 1985 as a 13 year old kid. I would just like to share my post cancer issues due to the kimo and radiation I endured during my 24 months of…
That Old Rituxan Feeling
I had a Rituxan infusion Friday. I was at the clinic for about 5 hours. We left there and went out to eat. I was freezing and didn't have much appetite but otherwise felt OK. Saturday morning, I still felt fine. But Saturday afternoon, just about exactly 24 hours after my infusion, I started getting "that feeling". Yes,…
Always ask...Never take anything for granted !!!!
When you go to the Dr. and they say something you are not sure of...don't take for granted you know what they mean. You may have the thought go thru your head that they will think you are stupid, but forget that. You may find out you were stupid for not asking. I learned the hard way. Years ago I was working for a…
Life is beautiful.
"There is no evidence of cancer within his body." Kyle and I received the news today. I am still at a lost for words to express the feelings I am feeling right now. God is great and life is beautiful. I am so incredibly grateful and blessed to have you all in our lives. Love, Michelle and Kyle Bring on the stem cell…
DIFFUSE LARGE B CELL LYMPHOMA
HELLO EVERYONE, My son who is 18 now was dx PRIMARY MEDIASTINAL DIFFUSE LARGE B CELL NHL in jan 20013, stage 3 advanced we were upset as shud be. he was intially given 4 R chops followed by petsacan. about 70 % of the desease had gone the lymphoma was only left in the 6th rib and primarry mediastinal region rest of the…

Lymphoma (Hodgkin and Non-Hodgkin)

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