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Hola Jim, Emily, and Sue
Thanks for the well wishes, we're having a great time. I'll watch the horizon for our ship, if it comes in, we'll send you tickets........well except for Jim, you'll have to fly yourself, think your shoulder needs more exercise hee hee. Will send pics soon. Bill and Becky
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Countdown
Hello Dearhearts, The countdown has begun. In just under 30 hours my beautiful daughter will walk down the aisle on the arm of her dad. Today the weather is beautiful, an early peek of spring. Tomorrow in San Francisco it is supposed to hit 70! The great weather should hold through Saturday night, which is all I care…
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Could it be?
hi guys after reading all your posts and stories i have to ask ( and i am sorry for asking ) had swollen hard glands for about 5 weeks now in throat an groin they are hard but the ones in my neck have deffo gone down in size but still rock hard, i have been to the doctors who told me they were nothing to worry about but…
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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X-husband with bcl-2/myc looking for others
He was dignified in nov 2012. Went to Houston in dec started epoch. Was stage 4. Horrible shape, byet the end of January they discovered tby bcl-2 amend myc issues. They say its rare but after reading this forum I'm not so sure. They now want to do a sct. They don't think they can cure him without it. His marrow was clean…
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Auto-Immune disease after R-CHOP 2 years Post
I broke out with Shingles this last weekend. I was in tremendous pain from my right rib area around my back. I didn't know what it was till monday morning when I got out of the shower and looked in the full mirror! My wife was all excited and said, "you have to go see the Doctor, Call him NOW"! I got in next day to see him…
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No change
Saw the doc this past Monday, labs show no change at all, doc said if my counts drop lower another transfusion will be needed, still have to inject with Neupogen ugh, wont be able to have a scan until counts go up so i will try and be patient,still have bruising, looks awful, so on Monday i will have labs again and see if…
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Anyone heard from Vinny?
I haven't seen posts from Vinny or Beth (dixiegirl) in awhile. I emailed both and heard back from Beth but not Vinny. I don't think he's posted in quite awhile. Thanks - Jim
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Memory problems slowly getting worse
I had Stage 4B Nodular lymphocyte predominant Hodgkins lymphoma when I was 17.Lucky me I didn't have it in the liver or bone marrow, but did have it in the left lung. I am now 46, and for the last 15 or so years I have been getting bad migrains and slowly losing short term memory to the point that 20 or more times a day I…
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First ABVD treatment and throbbing pain in left ARM.
I am having a throbbing pain in my left arm (not Hand). My arm feels warm and the pain comes and ago, it's almost sever to the point I forgot all my symptoms. Does anyone have this kind pain?
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Anything I can do about arm pain 3 weeks after first chemo treatment of Rituxan and Treanda
I am getting ready to do 2nd round in 2 days, I think I will switch arms, still a little nervous about getting a port
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Unsure and very worried!
Hi there first time poster, nice to meet you all, about 4-5 weeks ago i noticed 2 glands ( one either side ) in my neck had swollen up but no pain came from this so i went to doctor and he told me that unless they had been up for 8 weeks or more he didn't care ( the actual words he used ) so i trusted him and kept on going…
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We are strong... ♥
A couple videos reminding us just how strong we are: I have cancer but cancer does not have me (About 3 1/2 minutes) About cancer changing my life - my fight back... (About 6 minutes)
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Any news from hiccup?
Emailed him but did not get a response, he is quick in responding... Wishing his sct is going well... Please let us know if you read thisMSG...
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Long term effects of radiation and bariatric surgery
Hi everyone, I had Hodgkins in 1991 and have been cancer free ever since, although I have had some side effects from therapy that many of you have mentioned here . What I am interested to know is if any of you have had or know of any survivors who have later had bariatric weight reduction surgery. I ask because my surgeon…
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Sue's last infusion! Add hugs here :)
Tomorrow is Sue's (allmost60) last Rituxan infusion. Two years (I think) of this and she's been a trooper through it all and a great support to us all! So, sending a warm hug of congratulations and wishes that this is completely over for you Sue forever! So "woohoo and party!" . Add your hugs here...
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One ABVD down and 11 to go. :(
Hi all, I started my first dose of ABVD yesterday and so far i am doing good. Max, Aaron I know you both have the same HD I got at the same stage (NLPHL IIIA) and I noticed that you both have Chemo and RT. My onclogist said yesterday the RT is not on the table for treatment, only chemo. Was not sure if RT used only if it's…
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Prayers for Diazr1
Please pray for my dear friend Diazr1 as he is close to losing his battle with cancer. Many of you may have seen his posts on this discussion board. He's been battling Hodgkins for the last 4 years and I just found out that he is no longer doing well. I'm still praying for a miracle :'(
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High Blood Levels Post-spleenectomy
Hi all, I am wondering if anyone else has had continued high platelets and or white cell counts after having their spleen removed? HD Survivior 1987 ABVD Treatment
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Pcp pneumonia
Well one cycle from completion of my fathers r- chop regimen and he was recently diagnosed with PCP pneumonia, community acquired. His last chemo has been postponed for 1 week and he is on 3 weeks of double dobahri trim along with oxygen with exertion. My father has no resp history. Has anyone ever had this while in chemo…
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Platelet transfusion
Had my transfusion yesterday,had a allergic reaction right before the fusion was about done. My body is so full of bruises due to the Zevalin tratment i had, sure would like to know if all i have been thru is working,thought i would never say this but i cant wait for my next CAT scan, have to get my blood taken Monday, im…
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Introduction Looking for Support!
Hey all, I am so happy that I have found a site that talks about long term survival, relapse, and support! I am having a bit of a hard time right now, have had a number of health stuff going on. Let me tell you a bit about me I was diagnosed with HD at the age of 13 in 1988 stage III A only symptom was back pain, after…
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My girlfriend has just been diagnosed
Hello, Sadly my girlfriend has been told she has Lymphoma. She had a large Lymph node swell in her groin. It was removed and we have been told it's cancer. The node has been sent for more tests (at the moment they think it is either HL or T-Cell NHL). She has also had bone marrow and CT tests. We get the full results in 2…
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new avatar
i'm feeling soooo much better!!! doing exercise of several different types, and feeling stronger every day. my 3-month checkup with the onc is next month and my next PET scan is in june, but i feel confident that my lymphoma has gone away. better living through chemotherapy, indeed! i feel singularly fortunate in my…
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Oh, Oh. New Question
I got a question. It may sound dumb but it may clear up a lot of things for a lot of us. I know when we get CAT scans they are checking for any uptake that may be present in the lymph nodes. The question is will it show any activity in other organs of the body as well. I am refering to cancers such as pancreatic,…
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I have a few more questions...
So I was talking with my younger sister today about everything and she rose a good question. Which was even if my lump in my lymph node is 2.2cm, that doesn't mean I have cancer correct? Or after a certain size that's when they worry? I am not sure...Also I did not know that my doctor ordered a CT scan for my entire body?…
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Had a Biopsy today
I had a byopsy on one of the lymph nodes in my neck today. I went with the needle asperation, but he did it twice to make sure he had a good amount of tissue. I did not expect to be so sore. The proceedure wasn't too bad, just really sore now. Is there anyone else here just waiting to find out whether or not they have…
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Mom just diagnosed b cell lymphoma non germinal
Hi everyone my mother was just diagnosed with lymphoma b cell thats non germinal she is 69 has a lot of health problems diabeet,s 3 heart attacks , high blood pressure ,are the main ones So i am wondering what this means i have heard people say that lymphoma is very treatable but the dr said that a non germinal diagnosis…
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Happy Hugs Day!
Happy Valentines Day! I won the "Hugs Lottery" and though I won't be able to take everyone to France for chocolate crepes I do have more hugs than I need so I'm sending them out to you guys! Warmest and positive thoughts to everyone! Hug someone you love today! They're free and contagious - in a good way . Hug yourself…
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Info on a new clinical trial for lymphoma
Was reading an article on a clinical trial was very intersting and very hopeful sounding you may have to copy and paste in your browser http://fhcrc.org/en/news/releases/2013/02/high-dose-vorinostat-effective-treating-relapsed-lymphomas.html Chris