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Bone Marrow Transplant
I'm new to this community, and feel I need to reach out to others on this crazy cancer journey. I was diagnosed with large b-cell lymphoma last October, and have had 6 cylces of chemotherapys so far. My last Pet scan showed a partial response, and so I've been referred for a bone marrow transplant, using my own bone marrow…
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Hi to all.
To all of my friends who know me hi and I have missed you. To those of you I do not know I am glad to meet you and hope you are finding what you need here. To everyone I hope this finds you well and staying strong. I am hanging in there but now am doing the pre followup anxiety. I will go to Rochester tomorrow for…
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Hi to all.
To all of my friends who know me hi and I have missed you. To those of you I do not know I am glad to meet you and hope you are finding what you need here. To everyone I hope this finds you well and staying strong. I am hanging in there but now am doing the pre followup anxiety. I will go to Rochester tomorrow for…
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are we allowed to give phone numbers to speak to CSN members or send emails for support?
I've been trying to find out if members are allowed to contact each other. Never do I see this in messages, so I am assuming no. It would be nice, however, to actually speak to those who are experiencing the same feelings - support is so needed at the critical time. I tried to enter the CSN "Chat", but the page isn't…
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Final diagnose NLPLHL 3A, treatment starts almost a month from now, is it wise?
Hi All, I like to take your opinion on my final diagnose status, I got a call from DR today that BM biopsy is clean, and I am at stage 3A. I asked DR to have some time to visit with family (parent) living outside united states. The DR said NO problem we can start as soon you get back starting on 2/18 with Heart and lung…
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I just can't stop worry. Waiting on BM biopsy. Is it Possible ?
Hi All, I have been diagnosed with NLPHL stage IIIA so far, one under armpit , one in nick and one lymph in the pelvic area. Did Bone Morrow last week and waiting for biopsy results. My anxiety growing by the hour that the disease have spread to the bones. And even getting more worry that the chance of having different…
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long-term radiation survivor
My husband is a 19-year survivor of lymphoma. He was treated in 1994 with both chemo and radiation, not whole-brain but focused. In recent months, we have seen significant deteriorization of walking and cognition. The consensus is radiation damage. Has anyone else run into this? Suggestions for "treatment" or…
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Enlarged lymph nodes
the otehr day I went to my family doctor for few reasons: * sever night sweats * weakness and being tired at all time * loss of appetite * random itch all over my body she wanted to do a blood test and she checked my neck and groin and she said i'd like to send you for ultrasound. i did the ultrasound and after a week went…
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Anal Burning
My father has finished 3 rounds of chemotherapy for stage 4 T-cell NHL. Since the initial treatment, he has experienced severe rectal pain and blood with bowel movements. The inside and outside skin has been effected. He has undergone many tests (all negative) and 2 scopes. GI doctor said everything looked better with 2nd…
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Question?
Hello everybody, I have a question to anybody that may know or may have an idea about it...question? I was told by my onc that I was in remission in Nov. at that time my white blood cells were in the normal range. I have been doing Rituxan treatment this past 3 weeks and today I saw my onc, and he mentioned that my wbc…
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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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My blog about beating HL
http://langfordbooks.com/2013/01/cancer-and-the-orlando-magic/ I needed something to hold on to and a magical season from my favorite team was just what I needed.
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FIRST DAYS OF HD-- FINDING OUT, PRE TREATMENT, AND FIRST ROUND CHEMO
PLEASE HELP ME HELP MY FRIEND....... My friend was diagnosed 2 weeks ago after finding this lump under her arm, at first we thought it was just a bump....then it got bigger. After dealing with it for a week and a half she went to the hospital, completed the blood test, then received the news. She was EXTREMELY emotional…
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Fingernails
Has anyone on here had problems with fingernails after diagosis with FNHL and Rituxan therapy? I have two which ceem to be coming off.
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Carol (cpbgill26)
Just sharing an email I got from Carol today. I responded to her and told her I would post. She goes for PET scan tomorrow. Sending her positive thoughts for great scan results! Jim I have lost out on this site. Can't recall passwords etc. Think I have it straight but who knows. I finished chemo Aug. 14, 2011 I had a PET…
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share with me?
How many folks have a Facebook page? I have fighting this cancer battle for quite some time. (my story is on my profile) and of all this time, I have done a poor job at reaching out to others affected by my same disease. Stupid, right? I have an over-all positve outlook, but I always seem to fall into this "no one gets it"…
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Any advice on Bone Morrow in office?
Hi, I am shedulled for Bone Morrow, Not sure if it's the Asperation type or the biopsy or what the different. All i know the DR said it will be done in the office with a littile uncomfort and prusser. Ant suggestion on how to go through itwith less pain possiable?
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Feeling Insecure and Broken
Hi, I'm a 26-year-old female who was recently diagnosed with HD Stage 2A last October. I have currently completed 4 of 12 ABVD chemo treatments but this last week have experienced a significant amount of hair loss. When first diagnosed, I cut off a few inches of my hair in anticipation of treatment, but now I'm really…
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It has been a while since i was here last
Hi it has been a while since i was here last, i was first diagnosed in 2008 with FNHL, did RCHOP, and maintence chemo until Oct 2010, was diagnosed again this past August, and just finished 2 sessions of retuxan, and also an infusion of Zevalin last Tuesday 1-15.I didnt quite make 2 yr remission, so i will be monitored…
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Low Iron
My six-month lab work all came back great, with no indications of cancer. I am nearly four years out from treatment now. But, my iron (HGB) is low. I am getting a colonoscopy next week, but have had no signs of G.I. disease. It may be from the amount of Tums and asprin that I eat all day long. I am not worried, but would…
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Oral mucositis
Since the fourth cycle of treatment, I've been battling to keep oral mucositis at bay... ulcers flare up at the tip and margins of the tongue... thanks to the effects from the mega doses of chemo. This typically occurs a week after treatment and goes away temporarily before the next round (so long as it is treated). I also…
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two for two
Hey everyone, had awesome news twice yesterday, had my bi yearly tumor surveillance of my head and neck, and all was clean, received my PET scan results no evidence of lymphoma! Really surprised me the way my neck has been aching lately. Wishing everyone well..... Vinny
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Cat Scan
I had my cat scan two weeks ago. Saw my Oncologist. And they found some mesentery nodes in the midabdomen So they want me to do the cat scan again in 3 months instead of 6 month. So will see. Hope you all are doing well. I have been in remission for three years and had this diagnosis since 04. I am stage 4 , and had it in…
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Over active sympathetic nervous system???
I'm hoping someone can help. I have been cancer free for 1 year now and I have been getting very sick anytime I over exert myself ie.shaky, nauseous, vomiting, light headed. Etc. I went to my onc and she didn't know what was going on so I just went to my primary care. He told me he believes it's a sympathetic nervous…
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New to site and just rambling I guess...
Hello, my name is Amanda. I am 23 years old and just recently diagnosed with an aggressive t-cell/b-cell NHLymphoma. I am struggling with what to write, or how to even navigate this site. In all honestly I have no clue what I'm doing. All I know is that it no longer helps just trying to talk to my family and friends. They…
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1St PET scan after treatment
Hello everyone. My dad is having his first PET scan after 4 cycles of R- CHOP for stage 3 B cell lymphoma. does anyone know tthe statistics of how well the treatment works? I know this sounds like a dumb question but I need to prepare myself as I am afraid that if he is not responding, then he will not continue the…
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symptoms
Hi I have non-Hodgkins Lyphoma, stage 3. I finished my last treatment 7 months ago and I would like to know what kind of symptoms people have from the after effects of the drugs. I tend to feel dizzy(for a better word) now and then. I don't have any trouble standing and feel like I could fall it is just a sensation. I feel…
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Types of Biopsy's?
Can someone tell me a little about Biopsy's. Is the FNA as accurate as a full removal? If you are very nervous and have quite a few symptoms, what is the best route to go?
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Has anyone experienced an "IMMUNE REACTION" (ENLARGED NODES IN GROIN) after 4 yrs. of remission for
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…
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Has anyone been in remission for Diffuse B for more than 4 yrs then suddenly developed enlarged lymp
Feb. 2008, went thru 8 rounds of R-CHOP, then a total of 26 treatments of Rituxan (2 1/2 yrs after radiation). Have been in remission; however, in mid-Nov., noticed a pea-size lymph node in right groin (always check under arms and groin areas), as last time enlarged nodes were in left arm-pit. Because I always had terrible…