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Autologous Stem Cell Trasnplant
My mum (age 56 y) I will need this for here treatment following relapse of grade iiia FNHL ( onc says its simiar to DLBCL). Anyone here knows what to expect in Asct? And after asct? Would appreciate any response. Thanks.
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When Will it End?
I have been in remission for the last 2 years (HL, IIA). I went through 4 rounds of ABVD and 20 rounds of radiation. For the most part, I have been feeling pretty good. However, whenever I get a cold or I feel fatigue my first thought is relapse or possibly another blood cancer. Going through the treatment and handling the…
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more platelelets
i had more plateles todaqy they were back down to 22300o do you think that means the cancer is still there blessings denise
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SLL Last treatment B&R sooo tired! Is this normal?
I had the last treatment for my SLL (Small Lymphocytic Lymphoma) on December 14th and here I am 2 weeks later sooo tired all of the time I can barely function. I was being treated with Bendamustine and Rituxan and will continue with a maintenance dose of rituxan every other month for 2 years. One dose every other month. I…
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Merry Christmas and a blessed new Year
I haven't posted in a long time. Most of you do not know me. I had Follicular Stage 3, diagnosed 4 years ago in January. I am feeling well and thank God everyday for that. I wanted to wish you a wonderful Christmas or Holiday time with your family. Family, spending time and loving each other is the most important thing as…
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Wondering about your treatment regimen for relapse NHL
Dear members - I am new to this community and am seeking your input for understanding the treatment regimen for a relapsed B cell (aggressive) or marginal zoneNHL (MZL/indolent). My mother (age 56y)was diagnosed with B-cell NHL in March 2011. She finished 6 rounds of R-CHOP followed by radiation therapy (30 rounds) and was…
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Wondering how people are coping with muscle deterioration after radiation.
I am new to this site. I posted a question to people with muscle deterioration about a month ago on here. How are you coping? How do you manage everyday life? I had to quit working about a year ago. I am waiting for hearing with the judge for disability. I don't know if anyone answered. How do I find out if they answered?…
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Happy Holidays!
I just wanted to wish everyone a wonderful Christmas and upcoming new year. May we continue to love, learn, and grow on our journeys and never give up! Thanks to all of you for your support and kindness. And oh yeah, big GOrilla hugs.... ☺ Merry Christmas Jim
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Aaron, haven't seen you online . . .
Hey Aaron, I haven't seen you on line for a while. I hope you are doing okay. When do you have your next treatment? Tomorrow or Wednesday? I'm down to one left and so thankful! The last couple have been getting a bit tougher. I've been taking my anti-nausea meds, but still have a bit of an icky feeling until about day 5 or…
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Maggie..
Hi Maggie, I couldn't reply to your post because of the new changes in the site, so I had to start a new topic. I'm not happy with the changes on CSN, but maybe they will get things straightened out soon. Anyways...I want to wish you a very Merry Christmas and a Happy (healthier) New Year. Hopefully after your surgery you…
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Blessed Holidays
To all my old and new friends, First, I wish for all of you, a blessed Christmas, and a healthy, happy, and New Year 2013. Forgive me, it might seem I am no longer around. But, here I am. This is not an excuse. My thoughts are always, always with all of you. Aside from being busy as all of you are. I am sure the medication…
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Husband relapsed post SCT with very aggressive DLBCL
Hi, I am new to the group and wondered if anyone has experienced the above subject matter? Any advice would be appreciated. He will be going in for Rituxin Christmas Eve. You can read my profile for more details. Thanks so much! Kristi
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pnumonla again
well i have pnumonia again this time was the worst i had to bagged6 times and i was on the vent for 9 days pray for me denise
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THE NEW LOOK
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CSN - planned outage tomorrow night
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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have questions looking for advise
a friend of mine was diagnosed at 21 years old with stage 3 non-hodgkin lymphoma. she was diagnosed over the summer, and began taking the chemo pill. the chemo pill was not working so she began taking shots at home. since then there is now a tumor on her spine and her lymphnodes are affected. This week she will be going to…
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Anyone familiar with or been treated with R-IVAC?
Hi.. I'm a 42 yo diagnosed with a high grade "double hit" lymphoma in July 2012: it is considered one of the most aggressive sub classes of DLBCL with an add'l mutation characteristic of BL. I've completed six cycles of DA R-EPOCH. I've seen four oncologists, including three specializing in lymphoma. My primary onc…
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Heartbroken
Well my friends, my husband will not win his fight against cancer. I am utterly hearbroken. The lymphoma is just so aggressive it is breaking through the chemo. Will try to have a nice holiday season. I wish you all season greetings and all the best in 2013! Hugs - Katie
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Depressing
I am going thru a period of depression. I have new lumps and increased leg pains and headaches. Lumps are small and may well be from something other than lymphoma so I am waiting till my next infusion in January to get it checked out. My neurologist wants to do a spinal tap to see if lymphoma may have infiltrated my spinal…
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Now on Treanda
Hope it works. Been thru the ringer. Not much of a typer :)
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Patient advice wanted for acute t-cell lymphoma
Hi, my 26-yr old grandson was recently diagnosed with acute T-cell Lymphoma. July was the date of diagnosis. He has been having lots of seizures, and can't hold food down. Both before being treated with chemo, he throws up food. He is very weak. He is at the Thunder Bay Regional cancer center. I heard from a friend here in…
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Thinking of you
Hello Dearhearts, I just wanted to say that I am thinking of you all and hoping that this holiday season brings you peace and love. This time of year can be wonderful, but also can be so difficult for so many. My wish is that everyone has some amount of joy in their lives and that you are surrounded and comforted by love…
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Migranes / neuropathy
Hi all, New to this forum, I was wondering if there are any folks out there who had ABVD chemotherapy who suffer from migraines, neuropathy or both. It has been over 18 years since I had my treatment. About two weeks after the last treatment, I developed a ‘shimmering’ in my field of vision. I had a week or two of terrible…
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Hodgkins Horsburgh is back
Hello everyone. I am back. I hope everyone is doing the best they can with their given circumstances. I have went through a auto bone marrow transplant. I was in the Hospital for 30 days. I was released the 26th of November. Boy what a process for me. Very hard to do that procedure but it is do able. My body has been…
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Christmas pics of Lizzy...
Hi guys, I can't help myself....had to share! Expression page. Love....Sue
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Diarrhea
Any tips on how to control this? My father is at the point where he is having accidents despite several doses of Imodium. He is very Discouraged now. Any tips or advice would be greatly appreciated
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Kidney damage from CT scan injected contrast, study on drug to protect kidneys
I now have mild kidney damage on top of everything else (fnhl, BC x2) and no family history of kidney problems so I went looking and found that CT scan contrast can damage your kidneys. I have had 9 full body scans in the last 32 months which means contrast injected twice each time, my GFR has been slowly falling and is…
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Joint pain
Anyone else deal with joint pain when it's cold.
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First Haircut in 16 months!!!
Hi All Wanted to share some encouraging news! June 12 2011 I was diagnosed with Diffuse large b Cell lymphoma. Did 9 rounds of chemo and then ultimately had to undergo an auto stem cell transplant on June 11 2012. Today I am cancer free and for the first time in 16 months I had my first haircut! I know that its small and…
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Remission
Hello Everyone, Well I saw my Onc today and he gave me the most wonderful news ever! I'm in REMISSION!!!! YAHOOOOO Thank God, he is giving me more time with my kids and hubby! I also want to give thanks to all of you that have giving me your support! I am still to finish two more rounds of Rituxan but hey I can difinetly…