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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for November 2012

White blood cells
Hi everyone, I was refractory to R-CHOP, and now am working towards R-ICE salvage therapy and an auto transplant. However, I'm in this dubious holding pattern that is keeping me from starting my R-ICE. My white blood cell counts are too low! The strangest thing is, I haven't had chemo since September. I just had my…
Lisha??????????????
Sue or anybody, Sue, I hate to bother you. Or even intrude on Lisha. I was hoping at least, since you and Lisha are close, that she would send a private message to you. Have you or anyone heard anything from Lisha or her family?? Please Lisha, send a few words to us. I miss you and am sick with worry. Maggie
Hi Cathy
Dear Cathy, Here we go again. Since you also live in PA, please stay safe and warm. I am keeping my fingers crossed this new storm won't impact me or too many of those already suffering. It is so wonderful I have the option and relationship with my doctor (internist) to email my concerns to him. Today I received an email…
Happy, happy,happy!!!
Hi all, Just got home from oncologist follow up visit. NO Maintenance Chemo!!! Just watchful waiting for now. Calling it partial Remission. I don't see her until January!! She originally thought maintenance Ofatumumab was the way to go, but my numbers are looking SO GOOD she is more comfortable with waiting. It's a bit…
Aaron, how are you doing?
Hey Aaron, Haven't seen you post for a bit. How are things going? Did you get chemo last Tuesday as you thought?
good report
i seen my onc that did the transplant today, he said i looked better than he thought i would he cut down 1 on the prednisone, and said i will feel weak for a while my blood counts are coming up good, my platelets that wouldnt come up over 23 is now 101 white count is good a big warm hug for all the prayers hugs and well…
Stem cell transplant
So scared about my appointment on Tuesday with my appt. with the specialists at the James Cancer Center. My family and close friends are pushing me to go ahead with the transplant,but it's the biggest decision I will ever make in my lifetime. As you can see it's very late, but blessed sleep just wont' come, mind is racing.…
Dreams
Does anyone taking long-term Rituxan maintenance have trouble with dreams? I dream of snakes most every night. They are not scary dreams but I am wondering if the Rituxan can stimulate such dreams. I am also using Cymbalta so it could be that.
Need Info
Can anyone tell me how good the PET scansarre at finding indolent lymphomas? I am convinced I have something going on in my left leg. Nothing showed on a PET in March or a Ct in April. I am wondering about the skill of the radiologist as a factor. My onc said PET is not always good at finding small indolent lymphomas,…
good news
i had a PET scan on thursday, and my oncologist called me later in the day to give me the results. i am almost completely clear of lymphoma, just a couple of patches in my abdomen. i have two more chemo sessions to go and then the final PET scan t n=make sure that the residue is gone, and then i'm good to go! i'll have to…
Help
Hodkins Lymphoma Stage 4. I've been told I've relapsed and I'll be on a chemo to control it but it's in curable. SGN stopped working
Holidays Approaching - Recipe Sharing ☺
Hello everyone. It's that time of year again and the holidays are fast approaching. Last year I set up a website to allow us to share recipes and it is still around but not much activity in awhile :) . Many of you contributed recipes and maybe have some new items you would like to add. Also, we have lots of new folks on…
Mantle Cell Lymphoma Support for Loved Ones and/or Spouses/Partners.
Hi, if you would like to join a Facebook Support Group for Loved Ones of... and/or Spouses/Partners of those afflicted with MCL, please contact me (by message) on Facebook at ‘Mcl Lymphoma Spouses.’ To join our groups (one is Caregivers and Loved Ones, the other is specifically for Spouses/Partners of those with MCL) you…
Rituxan scheduled
I had an appt with my Hemotologist Onc. today and he gave me two options. I could do watchful waiting or 4 wks of Rituxan once each wk. He said if I wanted to wait to decide until the first of the year that would be fine. My Dr. is very young so I asked him what he would recommend if I was his mother, and he said Rituxan.…
Lisha...Where are you????
Hi Lisha, I called your house and left a message, but still no word from you. I am hoping your silence is due to you feeling better and that you are out and about doing more activities. We miss not hearing from you! I will call again this weekend and hopefully catch you at home. Take care my dear and know you are in all of…
Auto cell transplant
Saw my oncologist yesterday and while my PET scan showed no cancer in my vital organs, found hot spots on my right hip. I have been having pain but thought it was from the two biospies I had earlier. He wants me to meet with drs. at the James Center at OSU about an auto cell transplant. As I stated earlier I have…

Lymphoma (Hodgkin and Non-Hodgkin)

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