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PET Scan
I finished my RCHOP chemotherapy (six treatments) on October 30th. Now I am set to have a PET scan, MUGA heart exam, and echocardiogram. I saw my oncologist on November 15th and he wants the PET scan four weeks from the time I saw him. The scan is scheduled for December 18th and the other two exams for December 20th. The…
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last PET scan (i hope)
i had my last chemo infusion on wednesday and my last Neulasta shot today. now i have to go through chemo-hell one more time, and then on Dec. 13 i have the PET scan that will determine my fate--if i'm clear of lymphoma, then i just have to check in periodically to make sure it's gone. if there's still a little bit left,…
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can a cancer center refuse you treatment?
Hey everyone. My name is Jeffrey and I have been recently diagnosed with diffuse large b cell lymphoma. In New Hampshire where I received my first 2 infusions of R-CHOP. The place where I was residing in went to foreclosure and I had to move to Florida. My question is, is that the center in NH I was going to was working…
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Thanksgiving at Mayo
Hi all! Hope you all had a good Thanksgiving. I was up at Mayo with my husband. He decided to have his second round of OFAR so we went ahead with that. This round was a little rougher on him but he is doing OK. We need his spleen to go down so we are sending strong vibes to all the drugs to make this work. I guess at the…
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Dehydration
My mom is in her third week of her first treatment. Yesterday when she went for her regular appointment she was very dehydrated. They gave her fluids and today she will need to receive more. Is anyone else experiencing this? She has also had to take a strong Antibiotic called ZoVax for a VRE infection which they want gone…
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Belated Thanksgiving Wishes
Hello Dearhearts, I truly hope each and every one had a warm and loving Thanksgiving. I did my best to try and enjoy myself. It was very hard. My youngest daughter and her boyfriend came over, so I cooked for the four of us. It was a difficult day without my mom. My other daughters were elsewhere as were my grands. So all…
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Diffuse large B-cell follicular lymphoma
I was diagnosed with diffuse large B-cell Non-Hodgkin's Lymphoma in July 2012. The sub-class is a rare but aggressive "double-hit" translocation, as a result of two concurrent mutations: BCL2 & c-MYC. Consequently, the tumor was doubling in area every two weeks. I started treatment in August 2012. My regimen consists of…
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ANYONE had stem cell transplant who ended up with disease in different location during/post stem cel
Diagnosed with diffuse large b cell non hodgkins lymphoma... Nothing in lungs or chest area, only in abdominal prior to sct... Post stem cell ~8th day went back with low fever what they thought to be pneumonia was finally diagnosed with same lymphoma in chest and lungs few days later... Passed away less than a month post…
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Lymphoma Transformation
Hi everyone. Have any of you had FNHL that transformed into aggressive B cell? If so what were the symptoms? Did it happen while you were undergoing treatment or post treatment? Do you know if that means that the FNHL is gone or do you have both? The aggressive B cell is considered curable while the FNHL is not. One of my…
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First Post - Advice
I'm sorry this is so long. My mom recently had a biopsy on a rapidly growing lump she discovered on her back (2-3 months ago it was the size of a pimple and now it’s about 5 cm). Earlier this week, she returned to hear the results but was not given much in the way of answers. Instead, the doctor made an appointment for her…
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This Thanksgiving
I wanted to stop by to wish everyone a blessed Thanksgiving. God Bless all of you. You are never far from my thoughts and heart. Hugs and love from me to all. Love Maggie
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My Onc rocks
Instead of waiting until Monday for our appointment she decided to call me today with yesterday's pet scan results. She told me there is no uptake in any of the tumor sights so I asked "does that mean complete metabolic response?" and she said yes. Bless her heart she felt the need to call me before thanksgiving " so we…
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more good news
i seen my transplant onc today and he said everything looks good, im really happy with my blood counts before the transplant they would not come up, even with a viral infection that is making me feel compleatly draned i still am glad i went thru with it. i hope everyone is good blessings denise
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Burping
My father is day 15 out from his first rchop treatment. He is exhausted but in no pain and has had no nausea. Yesterday he started with uncontrollable diarrhea a d very foul burps. Is this normal for this type of chemo? Any ideas how to control either
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Thinking of you Shar
Hey Sharlene, only 3 more after today (woohoo) and I'm only a week behind. I hope the neupogen is getting the job done and keeping you on schedule, I got stepped up to 4 shots now for the duration. I'm off to get a pet scan today so I'll keep everyone posted on the results. I sure hope Santa gives us our lives back for…
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Happy Day!
Hi my friends, Today I am thankful for all of you for your caring support and understanding during my continuing journey with this dreaded disease. Have a Blessed Thanksgiving. We all don't need one day a year do we? Being grateful each and every day for the sunrise and all the things each day my bring! I pray that you…
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"YEAH" for John!!
Hi guys, Got an e-mail from John saying his scan came back totally CLEAR! This is his first scan since finishing his Rituxan maint. His son and grandaughter are visiting for the holiday so I'm sure he's busy enjoying their company, so I'm posting the good news without his permission. I'm thrilled everything is clear and…
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Biting the bullet
Hello everyone, I saw my orthopedic doctor on Monday Nov 12. My right hip has gotten worse. Not unexpected. Anyway, I am having hip surgery in Feb 2013. My good friend will be staying at my home when I have surgery and go for rehab. She loves animals and I know she will take very good care of my 2 cats, Portia and Lucien.…
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Labs after RCHOP
My father just had his first treatment with RCHOP for large b cell lymphoma. He had the neulasta shot and his white count dropped to one. he ended spending 3 days in the hospital as he was dehydrated despite large amounts of water and gatorade. Is this something that I can expect with his next treatment? Day 6-8 following…
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is it a good sign?
Hi, I am new to all of this. I found a lump in my groin area about 2 months ago and finally went to the dr who refered me to a surgeon. They are going to take out my affected lymph nodes and test them for lymphoma, but he said they had little vascular flow. Does anyone know if that is a good sign or does it matter?
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Intervascular White Cell Lymphoma
My mom was recently diagnosed with Inervascular White Cell Lymphoma. I know that it is rare, but is treated with R-CHOP. She is feeling much better since her first treatment. Is anyone currently being treated for this type of Lymphoma?
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Return to Work Problems: Disability & FMLA
I am presently trying to work with my oncologist and my work company on a time BOTH can agree when I can go back to work. As of now, I am taking spinal shots (which is my last treatment circuit - PET was clear) until December that land me in the pain clinic at times. Company policy is 26 weeks disability. HOWEVER, the…
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Depression and Anger
I am a 24-year-old Hodgkin's lymphoma stage 4b survivor. I just finished my treatments/stem cell transplant on October 10, 2012. It's been a month since I left the hospital after my transplant and all of a sudden I am feeling very depressed, anxious and just angry. I was pretty fine throughout my whole treatment (which…
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Missing you / update
Hi All, First let me say that I have really missed you and your wonderful supportive ways. I have tried to read the posts from time to time, but mostly I am just too tired. I'll try to bring you up to speed on all the different things going on right now. First, I went to the cardiologist about the chest pain. I had another…
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Other options
http://www.burzynskiclinic.com/
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Depression
I am a 41 year old woman with stage 3a hodgkins lymphoma. I just finished my 4th chemo treatment out of 12. Until the last month I was doing pretty well but the last few weeks I have become so depressed that I'm practically not functioning. Crying a lot , no interest in anything, not leaving the house, unable to sleep…
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So confused after my visit with my SCT doctor at The James Cancer Center
Was diganoised with aggressive B cell Non-Hodgkin's Lymphoma w/bone marrow involvement. After my chemo treatments I had 2 pet scans and both came back clean. Oncologist (whom I do trust)wanted me to get a consultation with the SCT dr. She told me that she had reviewed all my paperwork including lab results. She said that I…
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Missing my Dad sooooo much...
It really hurts a lot
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Great news! I am so thankful!
I had had a PET scan 2 weeks ago that seemed to show that I had failed the frontline treatment of CHOP-R for my DLBCL because it showed much increased cell activity. So I was scheduled for a biopsy a few days later. Just on Monday I got the biopsy results. And all it showed was necrotic B cell tissue and highly active T…
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More good news
I had my scans today - was there forever and had little sleep since I watched election returns until 1:00am and then woke up at 4:30am with "scanxiety". My appointment was at 8:00am so I showed up baggy eyed and sleepy ;) . I'm officially one year in remission now! My blood pressure was another story but we're gonna work…