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consent form signed
i signed the consent form thursday i had some teeth pulled today to make sure they didnt get infected my mouth is really sore, tommrow i have an infusion of retuxab. i go back home untill the7th when i have the cath placed i really feel good about this like its the miricle ive been praying for. blessings denise
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Here I am
Hi All Thanks for asking about me. I'm not lost or missing, just feeling down and so very tired. The pain is still with me, but mostly managed with the meds. The doc gave me another pain med to take for break through pain. I feel like all I do is take pain meds, then take other meds for the side effects of the pain meds…
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Chemo and Diet
Hello, Often, people tell me to stay away from sugar and most meat products, especially red meat. I still eat grass-fed beef and organic chicken occasionally. I am trying to have more of a vegetarian diet, however, it's just hard with all the mood swings and taste buds. I was never into sweets before all this happened but…
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Maggie moving
Hello to my family, I will be moving Tuesday, Sept 4 to a smaller house. I have been so busy packing and throwing things out. I am moving close to where i live now. There are so many of you struggling. It makes me very sad I will not be able to keep in touch with all of you. Especially, the ones that need my support,…
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TORTURE
King ranch chicken would have been AWESOME, but I guess I'll choke down a turkey sandwich... booooo
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Lisha (forme) - How ya doing?
Hi Lisha, Just wanted to check in on you. You doing okay? Looks like Isaac was kind to the Keys. I would have sent you some of Beth's (dixiegirl) King Ranch Chicken but my brother in law ate it all ;) . Just thinking about you and sending you warm hugs, Jim
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Swollen tonsil
I just had a tonsillectomy today. I had a swollen tonsil for about eight months. Well thats when I first noticed it. It never hurt me until recently. It was causing me some neck pain and pressure. The left one started to get bigger also but they were not the same size. I finally went to see the ENT this month and he looked…
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this is a full-time job
re-scheduled! and probably not for the last time. treatment #2 has been rescheduled to sept. 4, as my neutrophil level is really low and they want to give me extra time to recuperate before blasting me with more R-CHOP. funny, i feel fine, more energy than at any time during this previous cycle. went out shopping yesterday…
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overwhemed
Guys I have hit my limit. I just want to cry. I don't know what to do, other than crawl in bed and pull the covers over my head and stay there forever. I am so tired of this. I don't want to make any decisions. I don't want to do anything. The depression is winning right now. Trying to stay positive is getting harder…
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Mantel cell lymphoma
Hello all I am new here and don't know much about what is going on. I was diagnosed with stage 3 mantel cell lymphoma May the 7th I have gone through 4 intrathecal Chemo's and 4 R-CHOP chemo's.I am doing very well with treatment not bad side effects but I woke up this morning at about 5:30 with the night sweats. Is this…
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nhl bcell with marrow bone involvement
Diagonized with bcell NHL with bone marrow involement. Also orbital mass behind left eye which was removed. Had 3 treaments of RCHOP, Rituxan and Restulan (sp?) was told no cancer detected. On 2nd visit was told could not rule out bone marrow as would have to have another bone biospy, but said blood work was very good so…
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Off topic - prayers needed --- Update!
Hello Dearhearts I hope you don't mind me asking for your help. I know that I ask a lot from you all. But, really could use some prayers and positive energy right now. Many of you know that we have a business in Key West, Fl. We have been trying to sell it for the last few years and just recently may have a potential buyer…
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Friday update
Hello Dearhearts Just wanted to give a brief update. I seem to be holding steady right now. The pain is mostly under control. I believe that we finally found the right dosage of pain meds. I have small bits of time when the pain becomes worse. It seems to be close to the time for my next dose, so I just take it a little…
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allo transplant
has anyone ever had a transplant with an unrelated doner if so how was your transplant vh were you sick or did you how did you feel did you get gvhd bleddings denise
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finished testing
i finished testing monday and tuesday the only one i cleared for was the denisti have a couple of teeth i need pulled, which i will have done at home. i have my calendar for the transplant 9-1 retuxan 9-7 line placed 9-8 retuxan 9-9 fludarbine and cytoxin the same for the next two days then rest a couple of days and i get…
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Vibration / tingling in legs.
My husband finished treatment on May 31st ( 3 rounds of R-CHOP and 20 radiation treatments to his neck). He recently had a normal CT scan and his doctor said he was in "complete remission". Now, he says he has a strange feeling in both legs. He describes it as a vibration or buzzing from his thighs down. He said its not…
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Question for Vinny
Hey Vinny, You posted in my previous post that you still have an uptake of 2.5 in your hip. I was just curious if you had radiation? If you had radiation, was the uptake still 2.5 after the rads or was there a recurrence? If it was still 2.5 after the radiation what did the doctor recommend that you do next? Just wondering…
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Hey Sharlene
How are you, I know infusion 3 is today and I just wanted you to know I'm thinking of you. They bumped me back 5 days on my treatment so you and I are within a day on our treatment schedules now. I hope all is well with you and your family, keep me posted. Aaron
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Eustachian tube problems
Anyone else have problems with their estuation tubes due to lymphoma or radiation therapy. There was a tumor or node that grew next to mine on the left side that closed the “E” tube and cause fluid build up in the ear. I had radiation to destroy the tumor and the radiation worked and fluid disappeared, but since than, my…
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nerves
I go see onc tomorrow to see if r is working. I am scared this time. I don't think it's working. I hate being this nervous.
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Sue, thinking of you
Hi Sue, Just want to say that I will be thinking of you tomorrow and wishing you a very easy day. It seems like just a short time ago that you were starting the rituxin every other month. Now you are getting so close to the finish line. If my math is correct, after tomorrow you will only have three more infusions and then…
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Pet scan in the morning
I am scheduled for a pet scan in the a.m. With high hopes it will come back clean. Dr says that even though he expects a clean scan he wants to continue with my last three cycles. I am wondering if I will have this anxiety for the rest of my life wondering if the cancer is still there or if it has come back??? I am…
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Living in Fear
I finished my chemo in early May and then had a pet scan which showed a small residual mass with an SUV of 3. I was sent back to the specialist to see if he thought I needed a SCT and he told me that the metabolic activity could be caused by the chemo or scar tissue. So, he recommended that I have radiation. This was…
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dear jump
Did you have the allo or auto transplant? Blessings, Denise .
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Thinking of you
Hello Dearhearts I am sure you all are sleeping peacefully in your warm comfy beds, just not me. I have so much trouble sleeping right now, I am beyond tired. Even nightowls need some sleep... I have been thinking of you and how special each one of you truly are. I wanted to just let you know that. I hope that everyone has…
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John Private message
Dear John, did you get my response via private message. I never responded before to a private message. Let Me know. Love Maggie
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onc appointment update
Hello Dearhearts I am home from my onc appointment with both positive news and not so positive news. First, the onc does not believe that I have an abscess. Hooray! I did not think so either, but given all the pain, who knew. She explained that the pocket of fluid is not totally abnormal. She said that it was such a big…
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Really getting P1$$ed
ATTEMPT#5:Trying to get on the site is really starting to P1$$ me off. I do not know how many others are having these problems,but it is nerve racking.
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Sore throat and lymph nodes
Both on same side, should I worry. I get chemo today. Been hot here n Cali and wife has been sleeping with fan on
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Back at home
Hello Dearhearts, I am safe at home, my favorite place to be these days. I so hate hospitals! After spending a long 7 hours in the ER, and feeling like I was at my lowest point, I convinced them to let me go home. I have been resting most of the day, but I know that you all are waiting for my update. So here goes.. I…