Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for July 2012

Pet CT Scan
I had my Pet CT Scan done yesterday, Monday July 30 in the afternoon. I was informed the results would be in the next day Tuesday. I find this very interesting. Why do some patients have to wait so long for their results of a scan? I am seeing my oncologist Monday August 6. Will I call today Tuesday, or tomorrow Wednesday?…
Lymph nodes are uncomfortable
Hi, I'm just on day 5 after my first round of chemo and my axillary lymph nodes are achy. I'm also getting weird twinges in other areas where there are lymph nodes. Has anyone else experienced this? I'm telling myself that this is the chemo on attack! I hope I'm right! My lymph nodes also go tender when I had alcohol.…
Second Opinion
Tomorrow I am going to get a second opinion from another Oncologist. I am 4 months into ABVD chemo bi monthly for stage 4 Hodgkin Lymphoma . I have a lot of questions for this doctor. I have no idea what to expect. Has anyone else done this? Any specific questions I should ask? -Emilie
Talked to Lisha ....
Hi guys, Lisha called me last night and said to tell all of you "Hi". She's had a lot of pain since surgery, but is taking pain meds that are helping. She's sleeping quite a bit, but to be expected. She said she's moving around slowly...even goes up and down the stairs from her bedroom. Wednesday she goes to the…
I am looking for someone who has had Angioimmunoblastic T cell lymphoma with a relapse after stem ce
Hello all, I am new to this site. A very good friend of mine has had a relapse of angioimmunoblastic T cell lymphoma after stem cell transplant. He has asked me to find anyone who has had a second transplant and survived. He is recieving RBC's, has liver and spleen involvement. The plan is to start Gemzar and one other…
Ofatumumab
Hi all, I hope that you all know what this sight and your support mean to me. Everyone of you is so special to me and I thank you. Waiting for a phone call from the hospital in Philly. Getting admitted tomorrow for an all day infusion of Ofatumumab. This will be a test run to see how well I tolerate it. This is an antibody…
still cant get over my mum being gone..
its been just over 9 months since my mum died infront of me in the ICU and i still find it difficult to grasp and get the last week of her life out of my head. my mum went through a bone narrow transplant 6months before she left. she pretty mich got everything you can get from having a transplant and she soldiered through…
Mantle Cell Lymphoma
I was diagnoised with Stage 4 Mantle Cell Lymphoma on March 2, 2012. I was given a 3 phase treatment plan. R_EPOCH, Spinal Tap injections of chemo and stem cell transplant. First phase treatment consisted of 5 days in the hospital for R-EPOCH chemo by IV then 2 weeks out at home for 6 separate treatments. Second phase was…
Just talked to Lisha's husband...
Hi guys, I called Lisha's home at 1:00 today(Pacific time) and talked to her husband Keith. Lisha is home...released from the hospital yesterday. Keith said she has been sleeping and he hasn't been able to get her to stay awake for any length of time. His words..quote.."not good". I told him the group was concerned and…
Welcome AngeH
AngeH is new and posted in a few places already. To simplify, I posted this topic to welcome her. I sent her a private message as well... Her Bio/Profile: AngeH Below is paste of one of her posts: ========================================= Hi!! I'm new here too! I just found this site while doing a search for more…
lisha
I am getting very concerned. Has anyone heard from her or keith? I keep checking and don't see anything new. I didn't want to say this but after being so scared, I would be having a mental breakdown even with the great news. I a very worried about her guys.
Friend with Night Sweats
Hello to my friends here on the HL/NHL Boards, My boss was out from work for the last ten days. When he came in he said he felt like he had had the flu or something, and had run a high fever off and on. I did not think a lot about it, but the next day he mentioned that he had lost 18 pounds in a week, "due to that sweating…
Hi, I'm new here. . .
Hi everyone, Aaron invited me over from another board that we post on. He said that you were a great bunch of people. I'm 54, and was diagnosed at the end of June with NSHL-IIIA(S). I'm doing six cycles of ABVD. Had the first one today and it went very well. Now just trying to drink lots and stay on top of the meds.…
changed mind
i have decided not to have the bone marrow transplant, i feel there are to many risk i can gethost versus graft disese the graft may not take i could get an infection and i have been told it will be an infection that i will die from and you can get host versus graft disease up to two years up to two years after its done i…
Hodgkins first day of stem cell harvest.
Yeap today was the first day of my stem cell harvesting. It went pretty well. They hooked me up to a machine for about 4 hours to try and extract my good stem cells from my blood. They will call me later to give me my counts. Then they will let me know if I need to return to have it done again. I hear most likely I will…
City of Hope conducts first-in-world clinical trial of T cell therapy for non-Hodgkin’s lymphoma
For those of you who have T Cell http://www.cityofhope.org/about/publications/news/Pages/city-of-hope-conducts-first-in-world-clinical-trial-of-t-cell-therapy-for-non-hodgkins-lymphoma.aspx
The chair
Well I go for my first rituxan treatment this morning. I am hoping that I don't have any nasty side effects since it's the first time in 15 months. I will check in later. Have a good day although it's starting good..it's rainimg...yahoo!!!
Sutter Hospital
Has anyone be treated at Sutter Hospital, Sacramento or by a Dr. Kiwan. My oncologist wants to refer me there.
Update via email from Carol
I emailed Carol on 7/15 and got a response today. I think overall, she has good news :) . Per her request, I'm sharing with everyone I have not responded yet - have to run some errands and visiting a nearby friend for a day or two. ======================================================= From: cbpgill26 To: jimwins Subject:…
Worst day(s) during cycle
Hey everybody, just curious what everyone's worst days were as far as fatigue and malaise during their cycles? Today has been a doozy, I don't remember ever being so devoid of energy ever before. I sure hope it improves.
Excellent news concerning Lisha!
Hi Guys, Lisha's husband, Keith, just called me and said everything went great for Lisha. The mass/tumor in her stomach is benign! NOT cancer! They did a partial hysterectomy and removed the tumor and from what Keith was told by Lisha's doctor she will not require any chemo after this. She will be in recovery for the next…
Remission Questions
Hi Everyone! I'm new to this site so here's my story first.. I'm 23 years old I had Diffused B-Cell NHL in my chest in January. Did 6 rounds of R-CHOP and now I am 12 weeks out and considered to be in complete remission. I have felt totally fine but the past two weeks Ive had a lot of pain in my jaw and armpits and also…
T minus ten and counting
Dearhearts I am now in a styling gown waiting for the nurse. Then comes the iv. That part will not be fun. But a must for the promised good drugs. I am using hubby's iPad, so forgive any errors. My girls and hubby are still out in the waiting room. After I get hooked up and all the other fun stuff done, they will allow…
Heading to the launch pad
Dearhearts Thank you so very much for the loving prayers and genuine faith in me. I slept a little but figure I'll be sleeping most of today, so I'll get plenty of rest. The fear factor has mellowed a bit, the drugs are helping with that too.. I have no doubt that when I get into the car and we drive over, it will start to…
Houston, we have count down
Dearhearts, It is true. I am all set to go tomorrow morning. I have to be at the hospital at 5:30 AM!!!. Most of you know that I am NOT a morning person, so this just adds insult upon insult... I am the first person to have surgery tomorrow. The start time is 7:30 AM. If all goes as planned I should be in the recovery room…
BIG HUGS FOR LISHA !!!!!
Lisha, We will all be there with you tomorrow in the operating room. BIG,BIG HUGS. John
Feeling a bit scared
My husband has CLL with transformation to Large B Cell Lymphoma. He finished his 6th round of R-CHOP June 25th and goes in tomorrow for PET scan and bone marrow. We are afraid it has not worked. He can feel a couple of swollen lymph nodes in his neck which I assume is the CLL. Does anyone know if the lymphoma makes your…
back home from visit
Hi All Well the visit went way better than I expected. It's always the fear of the unknown. I am so glad that I told her. I also told my cousin who is still battleing rectal cancer. She will be having another surgery on Tuesday. We decided to email each other from the hospital when we are in a less drugged up state. She…
Sunday checking in
Hi All Well, I have made it to Sunday, still keeping it together. But, boy is it getting hard to do. Seems like the tears just start welling up,and it takes a lot to keep it from becoming a flood. I'm going to visit our close family friend this afternoon. She is the one I have talked about who is like a second mom to me.…
Side effects of treatment or relapse?
My husband had 3 rounds of R-CHOP then a 6 week break, then 20 radiation treatments for Diffuse Large B Cell Lymphoma, left tonsil. His last radiation treatment was about 6 weeks ago. Between the chemo and radiation, he had a PET scan that showed no sign of cancer. He was feeling pretty good until last week. He always…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List