-
Update
Hi All Well, I have spent a good deal of time trying to come up with the best way to describe what's going on with me. Hopefully I will make some sense and not ramble on to much. So here is my update that I have been promising you. As most of you know, I spent time this past summer getting rad tx in Houston. Not fun and…
-
DIXIEGIRL-- THANK YOU
So sorry, I forgot to mention your name earlier. Thanks again. june
-
BETH, COUPE, ALMOST60, JOANIE, VINNY59 AND JIMWINS
Guys: Thank you so much for your kind words. Unfortunately, my daughter did not have lymp. she was diagnosed today with ALL acute leukemia. I am heartbroken and devasted. June
-
Post Treatment Anxiety
I was 41 years old when I was diagnosed with Stage 2A Hodgkins Lymphoma. Needless to say, it was the worst thing I could have imagined. My mother died when she was 48 years old 18 years ago of metastasized breast cancer and I feel like I am headed in the same direction. I completed ABVD and radiation in December 2010 and…
-
NHL 3B with Fluid retention in left lung
Hi Everyone, I hope someone can help me. I started having back and abdominal pains over the 4Th July weekend and after a CT scan in August discovered an 8x10cm mass in my lower abdomen and my left lung almost filled with fluid. Unable to breathe I went to a Lung specialist who after doing a Thorax Xray removed 2 liters of…
-
Relapsed NHL-Rituxan Maintenance or Stem Cell?
I recently was diagnosed with a relapse of NHL (diffuse large B-cell/aggressive). 4 years ago I was treated with R-CHOP and now they are giving me DHAP since I had a bad experience w/ RICE. After two treatments-I am presently in total remission My primary oncoligist (the Dr. who treated me 4 years ago) has recommended that…
-
I need prayers everyone, I think my cancer came back, or it just never went away.
Well, back in July I was declared in remission, meaning there was nothing showing up on my PETs, and then I got two more rounds of intense chemo and was still clear. Three days ago I got a follow up PET and today my oncologist told me that there were two tiny metabolic spots. I can't do anymore chemo, so my options are…
-
Belated Thanksgiving Wishes
Hi All Just want to say Happy Thanksgiving to all. I hope everyone had a peaceful and happy day. And lots of yummy food to. Keeping you all close to my heart.. Lisha
-
Just had preliminary diagnosis. can this be wrong? Please help!
Hello everyone: My 45 year old single daughter was having leg pains, back pains and difficulty walking since September of this year, was seeing a Chiropractor and getting therapy. Last Friday went to ER due to excruciating spasm, sweats and fever. Found lesions on the liver and preliminary biopsy thinks it is lymphoma.…
-
A blast from the past!!
Just popping in to wish everyone a happy Thanksgiving and to remind you that I think of all of you all the time. God bless us everyone! Mary
-
Happy Thanksgiving
Hello everyone, Just wanted to wish everyone a Happy Thanksgiving! For those still in treatment, please stay strong and try to stay positive! Vinny
-
Stroke, Non Hogkins Lymphoma and lymphoma of the brain
On July 30, 2011 my mother in law was diagnosed as having a stroke. Within days they discovered tumors around her heart and lung. Later to be determined to be Non Hogkins Lymphoma. They also found a tumor in her stomach area but did not do a biopsy. She declined daily. She started chemo treatments and the third week she…
-
First chemo
I am suppose to start my first chemo treatments Dec 1st and having a porta cath put in on Nov. 28th, I am considering backing out. My ct scans are the same, but the fatigue, weakness some days are awful then i have good days. I wonder if I am starting to soon and should wait until the ct scans show the lymph nodes getting…
-
Crushed dreams-maybe surrogacy???
Just found that my ABVD treatment I received five years ago has given me arrhythmias and cardiomyopathy and that I will not be strong enough to carry a baby. My autoimmune clotting condition just adds to this along with my terrible thyroid. I use to think my cancer was a blessing in disguise and it showed me how strong I…
-
Thanksgiving blessings
To everyone and their famalies, This Thanksgiving, when I am sitting with my family and friends, I will say a special prayer for all of you. There is not a day that goes by, that I do not think of you. Each day I read the good news, and days the struggles are at their worst. Give us the courage to take what comes our way.…
-
Anyone who has/ had/ experienced Gamma delta t cell lymphoma ctcl ?
My wifes is 35yrs old and we just had 4th treatment of chop chemo and she is in icu critical condition!.
-
Relapsed..Kellie
Hi Kellie, I hope you don't mind that I copied and pasted your most recent post to a new discussion. You have been a huge help and always one to help and in case others in the group missed reading about your relapse, I thought they should know. I'm so very sorry about your relapse Kellie and feel sad knowing you will be…
-
clean pet scan
I just wanted to do an update on my dad. He had a pet scan after his third treatment and it came back clean with no signs of cancer. Yeah, I was so excited!! I expected it to be 50% shrunk. He did his 4th treatment and he still has two more to go. After that he has to do another pet scan and bone marrow testing. I am so…
-
Is 8 cycles of R-CHOP chemotherapy normal?
Hello everyone, I have non-Hodgkin's lymphoma cancer. After 6 cycles of R-CHOP chemotherapy every 3 weeks, my cancer doctor has told me that "metobolic CR attained". The "CR" means "Complete Remission". He said that the tumors I had are all gone. He wants to do 2 more cycles of R-CHOP chemotherapy to consolidate metabolic…
-
Roller coaster ride trying to decide
Thought that the decision had been made..still deciding Chemo every two months for 2 years or Radiation infusion Zevilin. Worried about secondary cancer that maybe cause by radiation. We know that we shouldn't be worried about the unknown and deal with what we do know and that's making sure lymphoma is kept away, but still…
-
Anyone had a problem with this...
My husband had his first chemo 11/08/11 of R-Chop, since then he says he has a feeling of fullness in his abdominal region pushing up. He says it's better when he can burp but will fill up again. He has taken to drinking ginger ale which he says helps him burp and relieves the pressure. It creates more nausea with him…
-
R-EPOCH
Hi, I'm new to the boards and am wondering if anyone else is or has been on R-EPOCH. I have primary mediastinal b-call lymphoma, and have had one round of chemo so far. I'm wondering what other people's experiences have been and any suggestions you may have. I am 39 years old with two kids (7 and 8). I think I am still…
-
anyone else with this problem
my daughters was on the fouth, i spent 3 day s looking for the right present i found it on the last day, and the rest of the time paying bills and grocery store i feel so woreout ifeel i feel half dead, does any one else feel this way after getting a lot done blessings denise
-
Dear John-Your mom
Dear John, I did respond to your post about your mom. I wanted to make a separate post for you to read. I am pasting a copy below. So sorry John Dear John First, let me say, how sorry I am on your mom's passing. Since losing my mom my life is not the same anymore. Losing one's parent is horrible. I read and re-read your…
-
Friday hello
Hi All I just wanted to say hello. I hope everyone is feeling okay and has a lovely weekend. I am waiting to hear from my Dr, he is supposed to call today. Still waiting. Once I hear from him, I will post an update. Thinking of you all Lisha
-
Honoring our Veterans
11-11-11..Veterans Day Thank you to all of the Veterans for their sacrifices and service. Also a big thank you to my father Robert, Steve's father Art, Steve my hubby, who all served in the NAVY, and our youngest son Josh who served in the Marines. We fly our flag with pride and gratitude. Great day except I tweeked my…
-
My heart is broken
I am so angry and confused and distrustful right now. When I was 18 I was treated for Hodgkins Lymphoma with ABVD, my treatment went great. I had some terrible nausea and lost about 20 lbs but my counts never dropped, no transfusions, no hospitals. I am now a little over 5 years out and it seems like everything is…
-
Pet Scan!
Morning Guy's, my Pet Scan came back with a little scare ,but upon further review... lol, all is good! When we picked up my scan it showed activity in my hip bone,(where the original cancer was it's worst). There is still a SUV uptake of 2.1 there, but in talking with my Onc, this is a byproduct of treatment and not a…
-
Very ill mother
Here is my story. My mother was taking care of her mother at my home for over 4 years. My grandmother was on hospice and bed ridden for the past 5 months. She was 94 and would have been 95 Nov 12th. Well my mother started for fall ill and I had to put granny in a nursing home on Oct 31st, so I could get my mother to the…
-
TERMINAL & WITH KIDS
Good afternoon all. I am new to the concept of forums per say and by nature am a very private individual. Having recently come to learn of one's fast express way ticket to understanding "terminal" i confess my mind is somewhat in a pickle. Currently I am drawn not to concern over myself but alas ones childeren. It causes…