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Peripheral T-Cell Lymphoma (PTCL-NOS)
I have only recently joined, but can offer hope for those who are diagnosed with this rare and aggressive cancer. The prognosis is consistently given as poor, although this is changing. In mid-2008, I was diagnosed with Peripheral T-Cell Lymphoma - NOS. This cancer is rare, so there exists no standardized therapy to use…
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Pet Scan
Hello guy's had my Pet Scan yesterday, hard to believe it's been a full year in remission! I have been researching treatments for relapse for the past week, don't really know why. I guess I want to be prepared for the worst, is that crazy?????? Anyway thanks for the ear, I should get my result's tomorrow........ Vinny
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Advice on My 2 year old Son
I’m not sure if this is the right place to find some advice but I hope it is, I’m from the UK & I am finding it very difficult to find anyone who is or has been in my position as Lymphoma in children is rare. My two year old son has had enlarged lymph nodes for about nine months, it was first noticed with two in his neck…
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There's a lump in my arm
Hi Everyone, My name is Jen and I'm writing at the suggestion of my uncle Cobra666 (I call him Guy). Earlier this week I found a small lump at the top of my right arm and I'm trying to not worry too much about it because it could be anything or nothing at all. Cancer is something that is a possibility because my uncle is…
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Survivorship - some progress and setbacks
Hi, Dear Everybody, Since treatment of HL last February, hubby and I decided to take a big trip flying across US to New Mexico for 1 week vacation (two weeks ago). Before taking off, I was concerned because I had headaches often so I went to opthmaologist and found out that my eyes are very dry so took eye drops regularly…
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Round two...
Monday will be round two of AVBD and I'm not looking forward to it. I'm having trouble coming up with what to say right now.... I'm just not excited about it. Yesterday was the first real day I felt close like my normal self...4 days later, here we go again. I guess I feel like "poor me" right now. It's been hard wrapping…
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Here we go...
My husbands diagnosis was B large cell lymphoma. He had his port put in today and starts chemo next Tuesday R-CHOP. Any advice for what's in store anything I can do to help make this easier on him or help in his recovery. God bless to everyone dealing with this! Diane
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Happy Dance !
I got good news yesterday on my CT scan - still clean. Hope is alive and well at this site! Thanks so much for your prayers and thoughts. This deserves two dances :) Happy Dance Classic Happy Dance Prayers For You :) Hugs and laughs :) , Jim
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New to the board
Hi. I am new to the discussion board and wanted to introduce myself. My name is Joe and I am a Hodgkins disease "survivor". Sorry about the quotes but here's my background: first diagnosed in 2000 clean for 8 years, relapse found on a routine scan had an auto stem cell bone marrow transplant relapsed almost a year after…
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" FNHL Rituxan Treatment #7 is Behind Me
I found out I had FNHL March 2009. R-CHOP began Nov. 2009 and ended March 2010. Today was Rituxan treatment #7 and yearly CT scans. All was clear and I am still in remission with my last treatment on Feb. 8, 2012. I really have no side effects with Rituxan. Only issue is a sleepless night on treatment days because of…
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Good News
It’s been a while since I posted but wanted to share in the good news. Seen the oncologist yesterday for test results on my husband CTScan and bone marrow and they both show no signs of lymphoma. This was wonderful news to hear. As maintenance, he was given an option of either a Rituxan infusion every 2 months or a onetime…
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low grade non hodgkins
Hi everyone, i was diagnosed last october with low grade nhl i was recalled after a mammogram as apparently it pickec up enlarged lymphnode in my right armpit, i had a ct scan and bone marrow biopsy last november, im on watch and wait and thankfully so far im doing good. I had a flu jab last thursday whicjh i thought id…
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Halloween hello
Hi All, I have not posted much lately, feeling tired and dealing with some issues. But, I try to read almost every day. I just want to say Happy Halloween and that I am thinking of you all. Love, Lisha