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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2011

low grade b cell indolent marginal zone lymphoma
hi everyone, i am a 56 yr old female diagnosed with low grade indolent b cell marginal zone lymphoma on 1/18/11. my regimen is a 7hr infusion of rituxin and treanda on day 1, treanda day 2, and neulasta shot on day 3, every 28 days. so far i have only experienced fatigue and slight nausea, actually i have been feeling…
at last
thank god at last they found the problem with the weakness thyroid gland is low. why do y.ou have to keep insisting to doctors that somtings wrong befor they listen do they because we dont have that degree that we are stupid
Entered a Blog explaining what's up, it's too long for here
Everyone, I wrote a letter last night to my brother explaining the process. I entered under my page in a blog. Let's get this day over!
WOW!!!
I just got my first bill for the R maint and was shocked to see that it costs almost the same as my CVP-R treatments. $13,249.80 for my Feb 14th lab work, onc visit and R-infusion. I don't have my deductible met for 2011 yet, so I got socked with a $927.00 co-pay amount...(patient responsiblity). Well, I guess the one good…
Radiation
Hello, I will find out soon if I'm finished with chemo (finished 6 cycles of ABVD), and then I'll be moving on to radiation. Has anyone had radiation for Hodgkins? The area that will receive the radiation is by my left lung. What was your experience? Thanks!
We have a plan
I am going to be doing RICE after all. I start monday. I will have a port put in monday morning and ice later in the afternoon. Ice again on Tuesday, RICE on wednesday and neupogen shot on thursday. The ice will be about 3 hours each, and rice day about 6 hours. I'll get a two week rest, then will do rice on monday, tues…
trip to the doctor
thank all of you for your hel and support i am calling my doctor tommow to have bloodwork done he does it in his office so i wont have to run to much the only thing i will have to wait a couple of days to get the results. i hope that all it is, my blood count is low. i hope everyone is feeling as well as they can
Dry Eyes Continue
Hi Peeps, Saw my eye doctor today, my eyes are dryer than ever and the dryness is causing scratches on my corneas. Not good! I'm not so good with eye drops, they just don't work well at all, and I get most of the drops on my cheeks not my eyes, LOL. So my doctor put plugs in my tear ducts. Now besides being dry and…
Thinking of you Beth
Hi Beth, I will be thinking of you today as you meet with your doctors. Please let us know what they have to saw, as it must be so frustrating not having started chemo yet. And now wanting to change the chemo drugs must be both frustrating and scary for you. I do know that RICE is a very common chemo used for recurrances…
Lost our dear friend today..
Hi, Our dear friend battling colorectal cancer passed away this morning. We had a nice visit with him last night, so it was comforting to be able to give him hugs and love before he passed. I thought we might have a bit more time, but it was not to be. Love...Sue
Not feeling well
I hate to be complaining. I just can not put my finger on this but just do not feel well. I do not know why. Seem to have like needles and pins in my arms or legs recently. My last chemo treatment was was 11/2 years ago. And Zevalin Christmas 23, 09. So I dont know. I read all the posts. To keep up with you all. I pray for…
FMLA
Now thats its been a year on FMLA. They have reduced the FMLA to one day every 4 months that I can miss? What should I do,just get off of it? Since I never use it or should I stay on it?
feeling weak
does anyone ever feel raelly weak on top of the every day fatigue i have felt felt so weak for searal day i cant evan take a shower. can stress cause this or should i be worried? mabey its somthing else. denise
Thinking of you
Hi All, I just wanted to say that I am thinking of all of you. I don't think I have enough energy to respond to every post, so I wanted to say hi to all. I know that some of you have things coming up and some of you are waiting. I hope things begin to get easier for all of us. Stay well and know that I am thinking of you…
Bendamustine & Rituxan
My husband was diagnosis with Non-Hodgkin’s Follicular Lymphoma (StageIV). He has just completed his first round of Chemo (Bendamustine & Rituxan). His side effects thus far have been manageable, thank God. Our main concern is when his blood cells are low which we were told would be 7 days after treatment. The plan is to…
Liz..how to find Doug..
Hi Liz, Maybe you can explain your story to someone at your clinic. They can check their records for Doug and surely come up with his last name. How many Doug/policemen could be getting chemo the same day as you..ya know what I mean? You can ask them to call him, relay your e-mail address to him and also ask them to tell…
Met with transplant doc/clinic today
Well, I liked the doctor and the nurse coordinator. I have never been so overwhelmed in my life. Transplant is an outpatient procedure. I will not be able to work for 3 months. I'll be doing Treanda & Rituxan first to get back to remission. They will do a scan and bone marrow biopsy to make sure I am in remission before…
Thinking of John
Hi John, Just wanted to let you know I'm thinking about you while your getting your first maint R-infusion today. Had mine on Feb 14th and all went well...next one for me is scheduled for April 11th. If your not too tired when you get home, let us know how it went. The pre-meds allowed me to take a 3 hour nap during the…
Surgery
Going in for surgery on Monday to remove a lump that was found after my last PET Scan on February 10th. It started out just being an abnormality in the lymph nodes in the neck and no lump was found by my Oncologist. Was referred to a surgeon for a biopsy and the surgeon found the small lump in the left/front side of my…
Needle biopsy of abdomen
Hi Y'All, Anyone every have a needle biopsy of the abdomen? I have one scheduled for this coming Monday AND Tuesday at MD Anderson. I can't find much about it on the Internet. And Anderson doesn't have much about it either. But they said at my onc's office that it would be scheduled over 2 days. I really don't know what…
Uncertainty abounds
Hi Y'All, Just want to let you know that I'm still around and do read the board whenever I can. Right now I'm very busy with trying to get a very disorganized set of books (accounting records) ready for my tax accountant to make sense of. And I'm running out of time. Last week was my first post-remission follow-up testing…
R-Epoch - Recent Experiences?
I saw a couple of threads on the R-Epoch regimen. I was curious about other people's experiences. I began the regimen on January 24, in the hospital, but have done my last two rounds as an outpatient with the pump. I had a CT scan after my first two rounds which showed a 50% decrease in the size of my tumor. I'll have a…
Update
Hi all, I feel like I have been away for such a long time. I have tried to read the most recent posts to get myself updated. Thank you all for caring and you are never being nosey or a busy body. Hubby is doing better than expected, hooray for that! I have had a few set backs. First was the hypertensive crisis and all the…
Moving on after cancer
I just finished treatemnts for Hodgkins 2a bulky disease. I am relieved to finally be done with treatments but at the same time I find myself not really knowing how to procceed. I want to just forget this whole cancer nightmare and move on with life, but I don't think I'll ever be able to do that completley. Especially…
I feel so overwhelmed
I can't handle all this stress. It's too much. I feel broken. I need icecream and bed.
Bone thinning with treatments
Anyone having problems with your bones?My bones have been doing lots of cracking lately.Sounds like Rice Krispies getting up and down.Have a knee with an old injury that has swelled a few times after treatments.Done so many treatments over the years and no one has mentioned my bones.Was reading some place about this, any…
Mantle cell lymphoma
Hi Everyone: My husband was diagnosed with mantle cell lymphoma in September. He went through R Chop and had an auto stem cell transplant in February. First Pet scan after stem cell was negative. Are there any stories from long term survivors of mantle cell lymphoma? After going through Rbeam and the transplant we are…
Stem Cell Transplant
This is in my future, will have to do Treanda first to get back to remission though. I would love to get some input from anyone who has done both the treanda and the SCT. I am scared, and just trying to get some information from those warriors who've been through it. My armpit is still killing me, but I know it's going to…
New Doctor approved cancer website
My oncs office gave me some new forms to fill out and they have advocated a new website, it's actually really good. Cancer.net Lots of great information and approved by oncologists.
fatigue
i have fatigue and my cancer has been in remission for two years i take a small walk every das and i try to eat right but my appitite is not that good anyone else have this problem. any help would be apprceciated.

Lymphoma (Hodgkin and Non-Hodgkin)

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