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Including info on 1st line
Hello All, I want to offer a suggestion when posting on this site. Perhaps the first line in the body of the post, should include your origianl DX, and date of DX. It might be easier for some to see the different treatments available, side effects, etc. to their specific illness. No matter what post I read, I carefully…
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New labs
Hi guys, I got my labs done yesterday and the WBC's were a little low..3.8..(RBC"S stayed the same) but the counts that dropped the most were...Neutrophil% Auto (Sept 17th) they were 31.5 which was low, but yesterdays lab report showed it had dropped to 22.6. The other low count was with the ABS Neutro Auto (Sept 17th)…
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Anniversary
Hi all, Just wanted to share that yesterday 10/07 was the 18th anniversary of my first breast cancer diagnosis. I said something to my husband about it being my anniv. and he said, "how do you ever remember these dates". Guess it has to happen to you personally to remember it for so long. It is getting more difficult with…
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Anger!
I was Diag with Mantel Cell Lymphomia in July I am going thru r-chop therapy, I am getting my 3rd treatment next week I though I could deal with all this but over the last few days I have become VERY ANGERY i know my wife is trying but i keep finding myself being a real A**hole. I dont know why. Normally i am very balanced…
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what a day
I wish I could say I'm feeling better, been fighting this fever now for a week now. I refused to go into the hospital, I feel there is more germs there! LOL!I had to get blood cultures yesterday to rule out infection other then viral, it was interesting because they draw blood from both arms. Here I'm sweating like a pig…
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Trip part 2
Hi All, Well we are getting ready to leave Tampa tomorrow afternoon. Heading down to Key West for the weekend. We leave KW on Monday night to head home to Calif. Spending my birthday there, but really wish I could be home with my family. Oh well... The visit in Tampa went well, except for the bad news part. It was so…
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new at this 2nd r-chop
Hi guys thanks for all the positive comments and advice it takes me a while to reply cause i dont have access to a computer very often.My 2nd round went ok except a reaction to the rituxin that made me feel like i had a bad case of hayfever uncontrollable sneezing.They rang the oncologist and they gave me a couple of jabs…
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Anybodyb heard from Natalie ?? and CATWINK???
I was wondering how both of you are How you are well. Joanie
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fever
Still fighting this fever!!! It's been three days now, 101.6 last night! Been taking Tylenol, breaks it, then it goes back up, going to call my doc, On way to the University of Penn for that Stem Cell consult, this should be fun......... Take care Vinny
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I'm back
Hi all, Oh man...I didn't take my new laptop with me and boy was that a mistake! I can't believe all the posting for only being gone 3 days! Yikes...I read all of them, but won't even try to catch up...Ok? I kept all of you in my prayers and kept good positive thoughts. Your going to think I'm nuts, but... I left my new…
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Disappointment
Yesterday would have been my mothers 8th R-CHOP treatment however she had a cold and the Dr. wants to wait another week. She did not even get blood drawn. I understand it is for the best but mom has had so many disappointments and prolonging the treatment is just another downer. For me I drive home 6 hours for treatment…
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Vinny and Sue??
Where are you guys?? Hope all is well. Kind of worried. Mary
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Colonoscopy
Well, the day is here and I check in at 8:00, test at 9:00. Lord how much I hate this test. I really want my coffee! Wish me luck everyone. Beth
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Moffitt Hospital ....WOW
Hi All, Well we had a long day at Moffitt. But I do need to say what a warm and caring place Moffitt Hospital is. I was very impressed. The news for my mom in law is not so good. They stopped the chemo, since it is not working. They have offered her a trial to start at the end of the month. She is thinking about it. Not…
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An open letter to cancer doctors
Have been writing the "Reader's Digest" version of my book for our local news and today wrote an open letter to cancer doctors everywhere. My inbox has been slammed with messages saying, effectively, that every doctor should have a laminated copy, and many have emailed to their doctors. Here's the link if you want to read…
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Has anyone used Radioimmunotherapy (RIT) for NHL?
Found today I didn't get remission with CVP+R and headed to Moffitt Cancer Center in Tampa next week to talk about options. One thing mentioned by my Oncologist was RIT - Radioimmunotherapy drugs. Attacks only the cancer cells, given by IV for one week daily and good chance of remission if you find the right one. New to us…
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In surgery
My aunt is in surgery...still. Probably got another 2 hours. I hate cancer and what it takes away from us.
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Cookingirl
Anybody heard how her PET scan came out? As for the cookbook I have a couple recipes I could share.
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Stem Cell Transplant
I am scheduled for a stem cell transplant in a couple of weeks if my PET scan is clear. I will be using my own stem cells. I am very scared. What should I expect? - 32 yr old mother of two little girls
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Like the Cookbook Idea!
Hi - Liz, Leslie, Vinny, Sue and anyone else you enjoys cooking - love the Lymphoma cookbook idea! The reason my name here is Cookingirl is because I published my cookbook, Fran's Favorites, 5 years ago. I've cooked all my life, had 350 recipes too good not to share with family and friends, and it turned out to be a…
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checking in
Hi All, Just wanted to check in and say hi from Florida. I'm feeling pretty tired right now, but okay. Yesterday was busy with family from Fl. This morn. I am taking it easy, still in my pjs. LOL. We will meet up with Fam in the afternoon. My mom in law is in good spirits and looks okay too. We will be at the hosp all day…
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Pacemaker - long term effects - ED due to pacemaker and or heart pills
The Hodgkins was cured a while ago, but the long term effects left my heart in trouble - it actually stopped. A pacemaker was added to bring back my electric pulses - all ok - but also came a few daily heart pills: Beta Blockers, etc - these were not actually directed to the electric problem. Now there is ED. Life with ED…
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How's our Vinny doing today?
Hi Vinny, I just got done cleaning everything up from our fish fry and thought.."Whew"..I'm exhausted...and then I thought of you for the 3rd time today....first time was this morning when I woke up feeling tired and remembered it was fish fry party day, so had to push through the tired feeling...second time was when hubby…
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Hey Sue
Didn't want to say anything on your birthday, but have you noticed your hair starting to wave.......bye bye yet? I think it was right after my 2nd treatment I thought I was shedding. Still got a lot of it but it is so thin. The nurse asked me the same thing after my 2nd treatment. Told her it was getting thinner. She said…
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Ready to go
Hi All, I am ready to go. My luggage is packed. My nerves are kicking in. I will be thinking of all of you and try to stop in now and again. Long flight tomorrow. Have a wonderful weekend everyone... Peaceful healing always, Lisha
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This is for Tom - Vitamin B treating Neuropathy
Hi, Tom, Just remembered (here goes my chemo brain) my intention to let you know that I asked my onc about your question about vit B 12 question. He said it is the B complex that helps with treating neuropathy. I did quick check on the internet - not much but saw something interesting from Canada's services for AIDS…
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Fran...PET scan results?
Hi Fran, I had a note reminding me that you go for your PET scan today. What were the results? I've got my fingers and toes crossed that you climbed passed the 40% mark and all is looking good for you. Will check back later to hear what the "GOOD" news is! Positive thoughts always....Love...Sue
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Port Question
Today i just finished my last treatment of Chemo! Praise the Lord! I am also scheduled to have 4 weeks of radiation starting in October. I haven't had a chance to talk to my doctor yet, but i'm wondering when I can get this stupid port taken out! My chemo nurse said that older individuals usually just keep them in, but i…
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Dealing with MORE bumps along the road
This week - am experiencing many physical effects and taking different medications that helped mostly. But coping with headaches remains to be a question: I had what is called the beginning stage of migraines so I was given Topomax by my neurologist. I am wary of its side effects (weight loss, some memory loss, tingling in…
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Very sad news
Hi all, I just got home from a walk. As I went past my neighbor and friends home, she popped out to say hello. She said that her husband is in hospice right now. They were at the house and she introduced us to them and all the family from out of town. Her husband has esophageal cancer. It's so sad, he was such a leader in…