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long day
Hey everyone, got back from my Onc. she was so busy, full waiting room of people coughing, just what I needed! LOL..... Hour goes by and I finally get in, no real change in my counts although I did have readings of something!!! YAHOO...... 0.5 on my WBC and are you ready drum roll please..... 0.1 my Gran, all joking aside,…
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Slow Grade Lymphomas Time Lines/longevity
We are all made up by different DNA. There is no definite answer to how long we have to live. Thats why the doctors do not know. There is several questions to be answered. Will we change out diet or intake? How would we react to different meds? Is are body healthy enough for a fight? Or mentally stong minded? Theres so…
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Anyone else have problems with Rituxan like me?
I have completed Treanda+R in June and am now on Maint. every 3 months for 2-4 years. I have had terrible reactions to Rituxan. Ever since the first session I get terrible hives, flushed and back pain. I know for many this is normal the first 1-2 sessions but my reactions have never gone away. By the 3rd session I went…
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i have a lg, tonsil .
dr thinks i may have lymmphoma .do i need to be under general aniastia to do a biospy. should he do other test first.
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Rogaine?
Has anyone (especially the girls out there) tried Rogaine for post-chemo hair regrowth? I've read that it can be effective if used during and after chemo to regrow hair more quickly. I don't see anything about use during chemo on the company's website, and I'll ask my doctor about safety. Just wanted to see if anyone else…
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Port flush
Hey everybody, I jumped right on the phone when I heard every month for the port flush. They said the flush schedule is not set in stone. Some places go every 4 months,some 2 months and and some every month. It did have me concerned as well when I read the responses. I got my power port booklet out and started going thru…
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Good Morning Vinny!
I think you and I are among the very early risers. How are you doing this morning? Mary
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Happy Birthday Sue
Happy Birthday Sue. I just wanted to be the first one to wish you a very happy day. What a special birthday. I hope you and your family have a wonderful celebration. May the year bring you positive healing and many many happy days ahead.. All the best to you today and always. Libra power.... Happy Birthday. Love, Lisha
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Onc visit
On my way back from the LRF conference I had an appointment with my Hemo/Onc specialist at UCSF. He is very knowledgable about my LPD NHL and I like and respect him very much. Although my blood work appears normal my immune system is haywire. Since I finished chemo in Feb I am sick on average every 2 weeks with a…
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LRF Conference
Hi All, Just returned on Monday from the 3 day lymphoma conference in SF and as usual it was very informative. This years conference was about 50% smaller in attendance than two years ago but still great to be around 300 lymphoma survivors. Wanted to let all of you with fNHL know there are lots of new therapies on the…
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Never a dull moment
Well guys, I just got back from my Onc. office with lousy news, I have no WBC's, do you believe it,the girl at first thought it was the machine, she ran it three time's, and they came back goose eggs, now my Doc is concerned that my bone marrow shut down, I have to go back and get another two shot's tomorrow and hope for…
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finally done with treatment and on maintenance and more afraid than ever / Why?
I have Stage IV Grade 1-2 NHL Follicular B-Cell. Age 39, Original Diag was made in Nov.09 and revealed I had all over body, Marrow and Spleen. Am doing well after 6 months on Treanda + Rituxan. Currently on maintenance but may stop too many Rituxan reactions. At the moment nothing in bone marrow and most nodes except in…
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new to this 29-08-10
hi guys my name is jason and im 39 yr old solo dad with a 13yr old daughter who live in new zealand.8 weeks ago i was diagnosed with follicular lymphoma and its ben pretty full on since then had every test under the sun.I started r-chop on the 8-9-10(wont 4get that date got hit by a big aftershock jus b4 bein hooked up)it…
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Puzzled
I received my order for my cat scan to be done on Dec 1st. But I was at the office three weeks ago and did a port flush. They took a lot of blood. Now on my cat scan order there is an added test which is called bun creatinine. I did look it all up it has to do with my kidney's. I have a feeling they found something on my…
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Ok Guys, have to admit
I am getting really worried. You all know I have a colonoscopy coming up, and the fear is starting to ramp up. I'm taking stool softners for the pain, and it's helping with that. BUT...the shape is ALL WRONG which is a warning sign of colon cancer and blockages. Crap. I hate worrying and at times I do pretty good, then…
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back from Onc.
Well it was what I thought, my HGB count is at 9.4, below 10 which is Anemic, my RBCs are at 3.24, she said giving me a transfusion with just coming off Chemo and the stem cell issue would not be a good idea. My WBCs are at 2.4. The did a oxygen test which was normal, she did find out my Vitamin D counts are way to low.…
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New Doctor
Hi all, What a morning! Started calling the clinic at 8:00 and I'm glad to report that I now have a new doctor. Don't have a clue who he is or what he will be like, but at least I can say I "have" a doctor"...ha! Needless to say the clinic was obviously overwhelmed with patients calling in, but after 4 hours of waiting my…
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Chronic cough and neuropathy and flu shots.
Hi Y'All, Just wanted to ask about a couple of symptoms. I had my 3rd infusion last Thursday. R-CHOP. Went well, only 6 hours. But I have developed a chronic chest cough that seems to get really rugged at times. Any one else have this problem? Also, a known issue is the neuropathy. Hitting really hard this time. Both feet…
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To All
Just a quick note to wish everyone well. I haven't had time lately to post to everyone but do keep up with all of you because I care and understand it all. Please hang in there and make wise decisions for yourselves. Good luck and God bless each of you. Your struggles will pay off in the end but I know it's not easy. When…
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Traveling with all of you
Hi All, Still feel nervous about the upcoming trip. We leave on Sat morn 10/2 San Francisco to Tampa. We will be there a week then spend the weekend in Key West. We have a hotel that we are trying to sell. Anyone want to buy a hotel,restaurant, caberet on the main street in key West... We need to check that all is going…
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Travel fears
Hi All, Just wanted to ask any of you about travel. I booked our flights to Florida, and now I am getting worried. I've been trying to save what little energy I have. The though of flying cross country with all my fatigue concerns me. But, I didn't have a lot of choice. Now seemed the best time to visit mom in law. We will…
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wow!
Hey Guy's I may be done my treatment, but dam!!! It's been a rough last couple of day's, trying to gut it out till Wednesday when I get my shot's, I really had a hard time yesterday, could not catch my breath, intense pressure in my chest. Hopefully today will be a better day!! Vinny
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I think its returned and he wont do a scan!
Agressive-Diffuse large B cell Mediastinal NHL Age 32 Female Completed 8 cycles RCHOP and 15 Radiotherapys in January 2010 Hi all, im experiencing similar symptoms, but not as bad, to when i was 1st diagnosed. I told my oncologist when i seen him in July and he said "unfortunately i will experience discomfort and problems…
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After treatment discomfort
I've had a relatively easy time with NHL, (compared to the experiences of many on this forum). I was diagnosed with NHL, 1 node on rt side of my neck diffuse lg B cell stage 1, had 3 treatments of RCHOP & 20 rads, my last PET scan was clean & I'm very, very grateful. Now that I'm about 6 weeks out from the radiation, my…
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Bad timing or what???
Hi guys, I received a letter in the mail today that said as of Sept 27th my cancer doctor will no longer be at my clinic. They are sorry for the inconvienence, and regret the emmotional distress this may cause,blah, blah,blah. What the heck??? Hubby never liked this doctor from day one and liked her even less after my BMB…
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No MMM!! More bumps along the road
Hi, Friends, I have been thinking that I am faced with the fact that I continue to have low WBCs and my doc told me no MMM - do not go to malls, metro, and movies or crowded areas or dirty areas!! Geez, I find myself kinda isolated at home. I also am faced with a dirty house. My hands hurt too much from neuropathy and am…
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Kaye...Thinking of you
Hi Kaye, Been thinking of you since you posted yesterday. I hope today is going a little bit better for you. Please remember if you need someone to talk with at "anytime" I am more than happy to give you my phone number..all you have to do is ask. In my prayers daily. Love...Sue Tom...how did your 3rd round go on Thursday?…
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Warning this is long and sad
I am at my end, I don't know how much more I can take. Many of you know my husband had a stroke and now has had 2 brain surgeries and another to remove a pick line that went thru his heart.He is home but requires 24/7 looking after. He has the mentality of a 2 year old and I don't know if it will get better. and he can get…
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Good News
Hi Y'All, Vinny, good to hear that you got through your last one. Of course I know there are still a lot of issues, but I hope you are enjoying the evening and not worrying about things you can't control. Still praying your way. Sue, even with your head hurting, you got through number 2. Congratulations. We had good news…
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Done!!!!!
Hi guy's thanks for all the responses, My blood work is such a problem, especially the RBC, my Onc wanted to send me to the hospital for a transfusion, but the more we discussed it, we decide against it, on the fact that if I have do stem cell, it's not a good idea. I may do the Procrit shot, the more I talked about it…