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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for July 2010

Needing Info
Hi there, everybody. My 59-yr-old husband was just diagnosed with diffuse large B-cell lymphoma after a mass was removed from the lymph nodes in his neck. We just got back from a week of grueling tests @ M.D. Anderson Hospital in Houston. We'll return on Tues, Aug 3rd for results, staging & treatment plan. We were told…
Where's Cobra??
Cobra are you out there?
Watchful Waiting"
Hi all... Looks like I will be doing the "Watchful Waiting" process instead of chemo.Un-real how things change in two days time!!! I didn't even get to see the chemo nurse this morning, but was instead directed sraight to my doctors office. Apparantly my primary doctor was very un-comfortable with me starting chemo on the…
Half Way There!!!!
Hi guy's just got back from my fourth treatment, it feels good to say half way there!!! My blood counts both white and red are still pretty low, I got to go on a pill that will help fight infection, can't remember what my Onc called it! Chemo Brain!!! Go tomorrow for my shot. Did any of you guy's get a Muga scan half way…
Another new test!
Just venting again guys. I've been having some continuing eye problems since I finished treatment last February with RCHOP. Saw my eye specialist yesterday and he isn't really happy about the changes he sees. Even though my tests are negative or inconclusive, due to my having pain on the right side of my head, he is…
pain medication that works
I haven't been online recently with any questions. But, each day I read the posts. After reading the posts, I say a prayer for each and everyone that submittedd the post. On one of the posts i read, someone posted a pain medication that really works. I tried finding the post, but was unsuccessful. At this time I have no…
RA DRUGS
LESLIE, I read the article on ra and lymphoma. You mentioed that the RA drugs you were taking may have caused your lymphoma. Just wondering what drugs were you taking for the RA. John
Lingering chemo effects
My apologies if this has been addressed in a previous thread. I did a quick search but didn't see answers to my specific question. My 46yo husband just finished up 12 rounds of ABVD on June 30. By way of background, he was diagnosed with Stage IIB Hodgkin's at the end of December (right before Christmas). He began chemo…
Need advice/opinions pre biopsy
I am writing for a friend who is allergic to computers :-) Here is some backround about what is going on: Last yr. at age 46 she had her first mammogram. Apparently, there was evidence of lymph node enlargement in both armpits, which they never told her about. This year, her mammo showed the nodes again, but they were…
Long term effects from Radiation and Chemo and Zevalin
I am so very tired I get up from bed and one hour later could go back to sleep. I just can not shake this tiredness. My last cat scan was in March. It was good. Somehow I just feel like something is not right. I go for my next appointment on Sept. 1. I guess it is just puzzling to see what you get left with. Mine was…
Lots of news...
Hi... Spent 2 hours at the clinic today. UGH! Soooo much information to sort through! First of all...the cancer hasn't gotten to the bone yet.BMB showed no sign of cancer. However...my doctor does not want to "watchfully wait" but instead start chemo on August 10th. She is worried about my loss of weight and the tumors in…
Sue
Well, it's late in the day. I wonder if Sue started her chemo today? First day is sooo long. :) Hope she's doing ok.
Can't win for losing sometimes
I went for my treatment last thursday and my onc said he won't do another scan until I tell him I don't feel right again. He doesn't want to expose me to any more radiation than necessary. Said for each pet/ct scan it's the equivalent of 250 chest xrays! I figure at this point I am over 1700 and that didn't include my…
Partner of Hodgkin Lymphoma survivor
I met my partner almost a year after his treatment ended for Hodgkin Lymphoma. He's an amazing individual and I care for him dearly. I understand that I have no concept of what he went through but I'm trying to learn and understand as much as I possibly can. His diagnosis is excellent and his last CT scan shows that there…
Upcoming CT Scan
Well I'm 5 1/2 months out of chemo, RCHOP, and 4 1/2 months since my last scan. My Onc wanted to wait until Sept to do my next scan. I wasn't comfortable waiting that long so I'm having my CTs this Friday. So now I'm getting nervous and wondering why I do this to my self. Last time we went 6 months I had my recurrance so…
I think I'm done...
Well I got some news today that I wont be doing chemo for atleast the month Of August and possibly be done for good!! They rescheduled my PET scan for the 18th, exactly 4 weeks after the last chemo, I'm so pumped right now!! Once they get the results back I'll find out more about the radiation that I will have to do, I…
This is creepy!!
I just need to ask if anyone has had weird stuff go on with their toenails during and after treatment? I noticed my nails looking odd before I was done with treatment and they just kept getting uglier. Well now they are falling off one by one. I only have 3 left and they look like they could go at any time. It's not…
Monday at 10:15
Cancer clinic just called and asked if me and my husband could meet with my doctor on Monday morning at 10:15. The nurse said all of my test results from the BMB are back and as soon as they get the heart test results (tomorrow) Doctor will be completely ready to share and discuss her plans for starting my treatment. I…
Wish me luck
Today is #4 chemo treatment. I should also find out when my scan is.
Why call at all?
My doctors nurse just called to tell me 2 of 3 parts of my BMB results came back. So far it shows no cancer...BUT...the last part is still needed to "CONFIRM" no cancer. I was just so happy to hear about the 2 parts being cancer free that I failed to ask anymore questions like...what part are we waiting on...blood…
Why call at all?
My doctors nurse just called to tell me 2 of 3 parts of my BMB results came back. So far it shows no cancer...BUT...the last part is still needed to "CONFIRM" no cancer. I was just so happy to hear about the 2 parts being cancer free that I failed to ask anymore questions like...what part are we waiting on...blood…
P.E.T. scan results
Hi everyone, my Oncologist called me this morning about my PET scan, she said the treatment is working, the one lymph node in my chest is gone, the cancer is still present in the four different areas of the bone, but she said that's to be expected. I'm kind of confused because I thought she told me earlier that it should…
hey cobra666 blood work
Hey, hope you are doing well, you asked about my blood work and it seems to be an on going theme with me, everything was in the dreaded L zone! the Chemo just takes me to zero, what made it worse is I had my P.E.T. scan this morning and could not get my shot's on Monday,so right after scan ,I went to my Onc and they give…
Newly out of stem cel transplant
June 16, 2010 was a day of miracles. As many of you know, I am a young mother of three small children and FEARED my upcoming autologous transplant. I researched, studied, analyzed, and PRAYED like never before! I was scared with the booklets my hospital passed out and honestly some of the horror stories I read. I just…
personal experience with Treanda and Rituxan
My husband just started this drug regimen. His WBCs and RBCs are down after his first treatment. Has anyone experienced this and how long did this last for you? Did the low blood counts affect your treatment plan? What helped?
Joint Pain
Is anyone else out there experiencing joint pain from chemo? The past few weeks have been torture for me. I can't sleep more than 2 hours at a time, if I am even sleeping at all. My doc prescribed Mobic for me which is to help with arthritis but thus far it is not helping. I've tried swimming and soaking in a hot…
Symptons
Can anyone tell me the symptons of Lymphona. My gp wants me to go see a blood oncologist because my iron is 500. She says it should be around 150. Did anyone have high iron in their blood before they were diagnosed?
To All
To all of you who are waiting to begin treatment and currently in treatment just a quick note to tell you good luck and that I'm thinking about you. Keep sharing and taking advantage of this site. Those of us who have already made this journey are so happy to help you if we can. We may not be able to make the journey for…
HOW LONG DOES CHEMO CONTINUE TO WORK?
I have read the chemo stays in your body for about 8 days to 2 weeks, but was wondering if anyone knows for how long it actually continues to work in the body. It must be working on the hair continuosly because it never stops falling out. Just wondering how long it works to destroy the bad cells too.
HAVING THE ZEVALIN July 21, 24, 28
Hi Everyone, Following in Mary's tracks and taking the Zevalin. Sure hope I do as well as she did. Mary, thanks for all the information you've posted on the Zevalin, it sure helped me understand the process. Can't say I'm not scared, but then I was really scared when I took my first chemo too. This is supposed to be…

Lymphoma (Hodgkin and Non-Hodgkin)

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