Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for June 2010

possible help for bad taste
Like many after chemo, nothing taste good. a friend of mine came up with a solution. Every morning I take 50 MGs of zink and 250 MGs of magnesium. Not sure if it helped because the chemo was wearing off, but really made a huge difference. I go for more chemo Thurs and will keep you updated about the effectiveness during…
TUMOR SHRINKAGE OF THE ABDOMEN
Has anyone actually been able to feel the shrinkage in the abdominal tumors after chemo? If so how long did it take to notice. I have seen where some have seen a shrinkage in the ones in the neck and groin region, but not seen anything about the abdomen as of yet. I know we are all different but it gives me something to…
Anyone Else with SLL - NHL
I was diagnosed in November 2006 with SLL. I was stage IV, lymph nodes in neck, liver, spleen involvement. I did R-Chop with Rituxan and then maintenance Rituxan through last June. It was only in July last year that my enlarged spleen finally went back down to within normal range. I have had abnormal liver tests, as…
newbie to this type of cancer
Hi, I've been a member here since 2006, I had Head and Neck cancer which I had been in remission for about 3 1/2 years, just about three weeks ago everything changed, it was dumb luck that I was feeling dizzy and my Onocologist suggested I have a P.E.T. scan, I'm thinking a heart problem, turns out the scan found several…
REAL NUMBER OF LYMPHOMA CASES
I was talking to my onc. the other day and he was telling me there will be 66,000 new cases of nhl diagnosed this year alone. He said there are more people walking around that will never be diagnosed. Almost all cases are diagnosed thru test for other ailments totally unrelated to lymphoma. He said a great many cases are…
Staying in the positives?
Looking for suggestions here. I truly believe that positivity feeds positive and negativity takes over. So, any suggestions anyone?
Necessity of Humor
I just want to bring up the topic of humor. While this experience does have a lot of fear and uncertainty, humor my friends will help get you through it. We need to laugh at ourselves and our experiences. We do funny things, we say funny things and laughter is HEALING. Try to see the humor my friends. It helps. It takes…
Thank you Eeveryone
I would like to thank you all for the nice posts. I sure pray for everyone here. And wish everyone the best. I hope we can all get remission and keep it going. It is so nice to have you all to chat with. Hilde
I think my Dr is a perv
Ok so my first exam with my Onc, my husband and daughter go along with me. So after we talk for a while he has me get on the exam table. My family is sitting in chairs right behind him. He proceeds to check my nodes. He leans into me and puts his "package" into my knee. At first I thought well he didn't mean to do that,…
ANY GOOD R-CHOP EXPERIENCES
Just wondering if anyone out there has had a fairly good experience with r-chop.I am not refering to the final results. All I read is how sick everyone feels while in treatment. I start mine this coming week and am sorta scared. I know everyone reacts differently. Thanks
Cat Scan Results
Hi Everyone and Donald! I went to get my cat scan results. And after getting the Zevalin in Dec. Everything turned out beutifully. Had to see the Nurse practioner, my dr was on vacation. The only thing they worried about is that my last wbc March 31, my wbc was 4.0 Today it dropped to 2.7. So they do not know why that is.…
CHEMO RESPONSE
Does anyone out there know the actually response percentage to follicular lymphoma with chemo? I read different rates on the sites I get on. John
follicular
Hi!! I'm just a bundle of nerves. The cancer i have is follicular NHL grade 3 stage 4 I had my spleen removed. done the chop treatments now on my last round of retuxan in July. got to get c-scan 7-1 . But the last several months i'm expericing some major fatique and pain in lower abdomin area.. Depression is bad just found…
Pancreas Tumor and NHL?
I have been diagnosed with Stage 3, Low Grade, NHL and have been going thru chemo. My cancer was caught when they discover two tumors thru a CT scan. It showed two tumors, one on top of my pancreas (5 x 5.6 x 4.8 cm) and a groin lymph node. They took out the groin tumor, and since it did not have pancreatic cells, they…
Fertility
Hi everyone. I was just diagnosed with hodgkins lymphoma. I am still in the staging process. My biggest concern right now is fertility after chemo. I am 27yr old female. I do not have any children but it is something I want more than anything. And its not just having a child, because I know I can adopt, but I really want…
anyone heard of
Has anyone heard of having a diganosis of stage 1 low grade neg. bone marrow and Pet after removing lymph node and then getting a blood test come back saying small papulation of kappa light chain restricted CD5+ B-cells. For some reason my oncologist is puzzled, she expected this test to come back neg. since the bone…
OK, new complicaton for me
I just got a call from the Dr. telling me she is confused, great, the dr. is confused.I am the one who is 58 and just diagnosed with follicular low grade stage one with b symptoms.And my bone marrow and Pet scan were normal, good news right? So she calls to tell me that the blood work she just did on me does not coinside…
PORTACATH INSTALLED
Had my porta cath put in today and a little sore right now.They said it will be sore for a few days. Thought I would post this for those that are waiting to have theirs put in. It is a little apprehensive waiting , but its not that bad at all. Start r-chop next week and thats where the praying really starts. I see a lot of…
NHL:weight loss and swollen legs.
Hello all, My Sister was recently diagnosed with NHL. Its been a very diffcult time for us all considering she's just in her early 20s. If thats not bad enough,she has lost a great deal of weight. She has a swollen abdomen and now her legs are swollen.She's done all the test(no chemo yet) but is waiting for the results of…
lymph node removed and just have radiation in that spot?
I had a lymph node removed and is suggested to have just radiation in the groin? I have stage 1 low grade follicullar but with symptoms. Is it possible to have symptoms with such low grade? I have had some weight loss and occasional night sweats. Now that the lump is removed, shouldn't the symptoms go away? Still have…
Just diagnosed at 58
Hi everyone, I found a lump in my upper thigh/groin area and waited a few weeks to check it out. Never thought it would be cancer, but I had been losing some weight so checked it out. First I had an MRI of the pelvis and groin and it just showed an enlarged lymph node. So the whole lymph node was removed. Next day was told…
NHL FOLLICULLAR AT 60
Anybody out there diagnosed with follicular around 60 years of age. If yes how are things going for you? It is a scary time no doubt about it.Mine is stage 4 and will be starting r-chop soon.
ESHAP chemo anyone?
Has anyone undergone ESHAP therapy. I am 51yr old 1 1/2yr in remission after receiving RCHOP and now experience recurrence. I am starting ESHAP this Monday June 7, 2010, petrified, anxious of all the unknown. I tolerated RCHOP fairly well and am concernced about this more aggressive form of chemo. Would love some input…
ANY LYMPHOMA LATEST NEWS UPDATES?
Can anybody fill me in on the latest indolent follicular lymphoma news. Every site I go to gives different info. I know they have come a long way in the past few years, but its hard to tell just how far when you are new to the site as I am. I was diagnosed stage 4 recently, but from what I read that is not a death sentence…
epigastric pain
Anybody get bad epigastric pain? I used to get real bad during treatment, but now I have this strange sort of pain (3 months out of treatment). It has lingered for about 4-5 days now. If I push on various parts of my epigastric area it hurts. Almost like thhere's something inflamed in there and really unhappy. experience?
nhl w/ r-chop help
My mom was diagnosed on may 5th, 2010 with B cell Non-hogdkins lymphoma NOS with splenic involvement. About a week later, her spleen was removed and was the size of a nerf football. They doctor said that was around 90% of the cancer. So last friday, she went in for her first R-CHOP chemo treatment. It lasted about 8 hours.…
Cat Scan
Had my Cat scan yesterday. So now have the awful waiting time. So we will see what it is going to be. Keeping a good thought for sure. I dont want to be over confident. But trying to be positive. Have not felt the greatest of late. But hope you all are doing well. It just never seems to leave your mind. My prayers to all…
cutaneous follicle center cell lymphoma ct scan
Hello All, Thank you for all the information I have seen on this site and reading your discussions. I have a Primary cutaneous follicle center cell lymphoma. They give me a very good prognosis. However, I was bothered by the CT Scan which showed a non specific finding of haziness in the mesentery lymph nodes as being…
Side effects
I have been in remission for one and a half years. I had an auto stem cell transplant. I keep losing my eye lashes. They grow back and then after several months, fall out again. Has this happened to anyone else.
finding a job after cancer
It's been 3.3 years now. I had non-hodgkin lymphoma back 2007. I spent my next 2 years 2008-2009 resting from medications and I had regular check ups.I'm cured and well now. I can't seem to find a job or I don't know how to start my life all over again.I want to work abroad but there's no means and ways. Is there a program…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List