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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2009

Hodgkin's Recurrence....stories and symptoms??
I finished my 6 months of ABVD the end of August. I just started radiation 2 weeks ago. One week ago, I developed a severe itchy rash that has spread and it even on my hands and in between my fingers. I saw 2 dermatologists who haven't a clue...gave me ALLEGRA and cream. So, I went to see my Oncologist who put me on high…
Concerned Husband Lymph nodes
Hi I just wanted to know about my wife’s situation she was sharing her neck was swollen and tender so I told he to see the Doctor (she did not want to) they did an ultra sound and said there were dead lymph nodes and abnormal ones there were some other lumps. I have to tell you that for a while she has had some problems…
prednisone/no hunger
i have to take prednisone 5 days every month and will finish my 5th day tomorrow. i am happy to say i have not gotten hungry yet. hope it will not do so since i am only taking it 5 days a month.
prednisone
i am on my 4th day of prednisone and one more to go. wow what horrible headaches i have gotten from this. anyone else have this problem? my dr. did give me a headache script thankgoodness.
power port
got a port put in and the next day and still it is so sore and bruised. anyone else experience the same?
Can you help?
Two of my friends (both mid-30s) were diagnosed with non-hodgkin's follicular lymphoma this year. They are both starting treatment this December. To help keep their spirits up, I would like to collect a bunch of inspirational, successful patient stories and present them to both friends in the form of a book or on a web…
Children after Chemo & Radiation?
I'm 27 and 6 months post chemo & radiation. I was diagnosed on Christmas Eve 2008 with Mediastinal Diffuse Large B-Cell NHL. I was trying to conceive my second child when I was diagnosed. Are there any young women out there who have had children after this disease? I don't feel well enough to jog around the block, much…
Confused with diagnosis. Please help!!
In December of 2008 I had surgery to remove a lump under my jaw. The pathology came back as atypical follicular hyperplasia with a subset of monoclonal b-cells. The pathologist defined this as possible follicular lymphoma in-situ. I was sent to an oncologist who did repeated PET scans. In April of 2009 we found a new mass…
round 1 of R CHOP
Greetings to all. I'm needing a little info from all of your experiences. Had 1 R CHOP treatment on 10-6 with 5 more to go. It didn' go too bad the steriods probably causing the most problems but were of short duration..5days. I had blood work done on Tuesday and recieved a call telling me my blood was very low and I…
looking for someone that has been through this
I have not been able to find a support group around me. I am trying to see if the chemo treatments are simlar to others and how you felt while going through chemo. Do the sweats go away my seem to be getting worse I am on chemo treatment 4 this monday and have 4 more to go. thanks Liaa
Sex After Chemo
Now I was told that just a kiss on the cheek was the only thing I could do with my partner. She has been very understanding and supportive throughout our ordeal. I have copmleted 6 treatmenst of R CHOP and the C Scan came back negative. Now.....I was also told that it takes 3 months for the Chemo to leave my system. Just…
one down, three to go on Rituxan
and 3 to go but I wanted to THANK YOU all for sharing your stories and knowledge of the potential side effects proved to be most beneficial. The whole process took 5.5 hours. Started with tylenol and benedryl, two hours into the infusion the side effects kicked in. First itchy eye, nose, then ears and throat, felt like I…
CVP with Rituxan treatment
my treatment will be cvp and rituxan for one day and just prednisone the following 4 days. this will happen every month for 8 months. has anyone had such a treatment routine?
hair loss
wondering how common hair loss is with chemo.
Mom refuses to eat
Hi, My mother was diagnosed with Large Cell Lymphoma three weeks ago. In the weeks leading up to her diagnosis her health steadily declined. One major change was her appetite,she had a major aversion to sweets. Then she became severly nauseated, she couldn't keep liquids or solids down. She has undergone her first round of…
Rituxan starts tomorrow
9:00 am for my first infusion. have to admit I am pretty scared... my mom is in bad shape and I keep thinking what if I have to stop treatments mid-way, anybody had this happen? I know we shouldn't worry about things that haven't happened. Keep us in your prayers, Sheila
CTCL/MF
I'm a 58 yr old minister with Cutaneous T-Cell Lymphoma (CTCL) Mycosis Fungoides (MF). This is my second occurence. The first was 13 Yrs ago. This time around July 2009. I have looked for support groups for this with no success. It would be nice to talk to others with like symptoms and set backs.
bone marrow biopsy
i had my bone marrow biopsy on the 9th and happy to say i felt no pain. i had pain meds. thru iv during the biopsy. i did however get sick from all the meds i recieved during and after the procedure but I am better today. i can't imagine anyone having this done at a doctors office, no way. mine was done at the hospital.
Non-Hodgkins Follicullar Lymphoma Stage 4
I have just found this support group. I have been diagnosed in O4. Had surgery on my neck and inside my left cheek. Did 20 Radiation Treatments. Then was in remission till almost 5 years. One more week would have been 5 years. Now I am on Treatment #8 coming up for Stage 4 Follicular non-hodgkins lymphoma. My Oncologist…
Need Help
Hello, My wife has just been diagnosed with Large B-cell NHL stage 4. She is only 21 and we have been married just about 2 years. This is a big shock in the family. She has been very healthy over the years and never had any issues. Instead of shopping for a new big home, I am worried about whether I have enough savings to…
Non-hodgkins Lymphoma
If you are a 5+ yr. survivor of cancer is your immune still weak?
first Rituxan infusion scheduled
It is really going to happen. My orientation is next Tuesday and treatment will start a week from Thursday. Normally I would be in a panic but my mom at 84 is in very serious condition in a hospital in Nashville so I am making the 500 mile trip this Thursday to go check on her. God works in mysterious ways; right now my…
side afects from prednisone?
just read about prednisone and this med has terrible side affects. has anyone been treated without this med with a good outcome. seems like it is used quite often.
radiation and chemo
has anyone NOT gained weight with chemo or radiation? what meds did you receive?
Darkest Secret of 1963
Anyone out there ? Survivors from the 60's ... I am, and never thought I'd be here today. 3 Secondary Cancers result of Primary Cancer in 1963. More so now that I'm older, I have trauma about the past ?? It is unfortunate children did not get recognition nor guidance. I was told to forget I had Cancer, not encouraged to…
Prognosis following PBSC transplant for progressive Hodgkin's Lymphoma
Hi, Posting from the UK - 14 year old daughter diagnosed with Hodgkin's Lymphoma stage 2BE almost 2 years ago. Completed initial 4 month course and was told that would do the job - no scan offered, not happy and eventually after 3 month delay, private scan performed only to show disease spread! Told it was 'progressive…
Side effects from ARA C (Cytarabine)
My husband was diagnosed with Non Hodgkin's Burketts Like Sept. 2008. During treatment he woke up and felt like the world was spinning. He had loss of balance and he lost his ability to speak. We were told that this was side effect of ARA C (Cytarabine)and that all would go away. It is now 1 year later and things have…
Long-term prognosis for non-HD Lymphoma?
Hi Everyone! I just reached my 10-year anniversary earlier this year. I was diagnosed with T-Cell Lymphoblastic Lymphoma at 11 in 1998, and was in remission within 2 weeks. I was on chemo for two years but thankfully received no radiation. No relapses, kind of a "dream case" (if you can call 2 years of chemo any kind of…
Is Radiation really needed?
I have hodgkins lymphoma and I am halfway done with my chemo treatment right now. After 2 cycles of AVBD I found out that I was in remission, but my doctor is still talking about radiation after my chemo is done with. What is there left to radiate, if I am in remission already? I have done a little research on radiation…

Lymphoma (Hodgkin and Non-Hodgkin)

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