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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for August 2005

High blood levels
We have just completed round two of DBVE. We have been giving Jared his daily injections of GCSF to maintain his blood levels. Well, they never did drop, and as a matter of fact, they are so high, too high now. The hospital has told us to stop giving him the G shots because now he is experiencing back pain. This is my…
CALLING ALL 2OR MORE TIME HODGKINS PEOPLE.
HI, I'M 22 AND POSTED QUESTION RIGHT UNDER THIS ONE. I WAS WONDERING IF ANYONE HAS HAD HODGKINS MORE THAN ONCE. AND WILL I EVER BE CURED FROM THIS GOD AWFUL DIEASE. I HAD A BMT AFTER IT CAME BACK(5MOS REMIS). NOW MY DR. SAYS IT MAY BE BACK. ALTHOUGH I FEEL FINE. IT'S IN MY CHEST AGAIN. SO LOOKING FORWARD TO SOMEONE WHO IS…
Scared, can anyone help?
I was just wondering if any of you have had an autologous bone marrow transplant. I recently had a relapse of my lymphoma and this is how they want to treat it. I am really scared. Can anyone tell me what to expect?
Any one been thru this more than once
I was wondering if anyone has been thru a BMT more than once. I would like to hear your sucess stories. I AM VERY SCARED TO THINK I MAY HAVE TO DO THIS AGAIN. Please email me with any info. Thanks,looking forward to hearing from anyone Arica, strngchic8@yahoo.com
Am I going to lose my friend to NHL?
My friend was diagnosed last monday with NHL type B. We are both 21. She began her treatment on Thursday. She's receiving CHOP chemotherepy. I'm seeing a whole different person, and i am taking it really hard. I cant even fathom how she is feeling. All i can do is cry because i dont want her to go through this alone. What…
Having a BMT and it didn't work
I had hodgkins disease in 1999. I thought I got it taken care of in September of 2000. The area was in my lungs and throat and spleen. Now its near my liver and pancreas. I have 5-6 massess and the largest was 8 cm now its 4. It is going down but will it go away? Well, I called my doctor and he told me to get with my…
8 years later and my port is out!
Well it has been 8 1/2 years since my last treatement and all is good. I had my port out on Friday morning. After the surgeon calling for a fleet of tow trucks and a small crane it slipped out. All in all not too bad 2 days and 25 vicodine later I feel great. God speed to quick revoveries for everyone. Robert
Wits end
Hello! I don't know if am am paranoid or paranoid ... I am trying to keep a sense of humour about how I feel. I have been sick for a few years now and my body is changing again. It is like my body is progressing through something and I don't know what it is. The neighborhood I used to live in as a child had a ...i can't…
cancer from radiation treatments
I am 45. When I was 19 I had Hodgkin's Disease. I had a spleenectomy and radiation treatments. Last year I found out that I had Breast and Thyroid cancer. They are both a long-term side effect of the radiation. I had a bi-lateral mastectomy, a thryoidectomy and 6 mos of chemo.I lost my breasts, lost my hair and gained a…
telling new friends
i just started my son in kindergarden and he has new friends and play dates..i scared to tell any of the moms that i have cancer(hd IV) & going through chemo . i dont want my son to loss his new friends.i ve been lucky w/ chemo ,no hair loss..almost no side effects. you would never think i was sick by looking at me. i want…
pet/ct
Hi IAM 21 SOON TO 22. I HAVE HODGKIN 2X. I ALSO HAD A BONE MARROW TRANS. MY FIRST PET/SCAN CAME BACK OK. WHEN I WENT A MONTH AGO SOMETHING SHOWED UP .ONE OF THE NODES WAS ENLARGED. THE DR. SAID HE IS NOT SURE WHAT IT IS. I HAD A LUNG BIOSPY AND AM WAITING ON RESULTS.I FEEL GREAT AND MY BLOOD WORK WAS FINE. I'M VERY SCARED…
newly dx mantle cell
Hi, my father (65) was just dx with mantle cell lymphoma stage 4 - he is going to go to md anderson in houston for experimental treatment of intensive chemotherapy and rituximab - we kids (38,33,32,31) have no idea what to expect from the treatment ? how much care will he need ? someone with him 24-7 ?? my mother died 5…
Cardiac damage from Doxorubicin
Hello, again! It's been almost 4 months since finishing ABVD for IIa. An echocardiogram was done before treatment and another after, and the recent one is showing an "ejection rate" of 40%. (My previous one showed 55%) The nurse says it's due to the Doxorubicin (Adriamycin) and that it may need to be monitored. I had…
When to Scan??
My mother had NHL large B cell and received 6 cycles of CHOP/Rituxan. She is now considered to be in remission. She hasn't had a CT scan since last October as her MD says there isn't a need for it and that a scan may only discover a relapse a few weeks before she would feel symptoms anyway as it is very aggressive. What…
Port comming out after 8 years! YIKES!
I have had my port in for 8 years, I was diagnosed at the age of 26 in 1996 Hodgkins Nodular Sclorosing IIA. The fix: 6 cycles MOPP/ABV 6 weeks Rad and no issues since.... I guess it never bothered me enough to ask to take it out and my Dr. would put it off every vist for 3 years so I forgot about it..... It is like a…
Response to treatment
From your experiences, pls tell me how long did it take for a visible response to standard Chemo treatment..When can I see a noticeable change in size of tumor? 1/2 after [how many] cycles? 1/4 after [how many] cycles? Disappeared after how many?
bone marrow biopsy
i'm having bone marrow biopsy fri. in my hip,and would like to know other peoples experiece w/this and what to expect before during & after...thanks
13 yr. old son newly diagnosed
We found out on July 1, 2005 that our son has stage 1A Hodgkins Lymphoma. I have been reading a lot of the messages here and am grateful I have found this site. I have noticed that the majority of chemo treatments have been ABVD. Jared's treatment is 2 courses of DBVE and then approximately 17 radiation treatments. Has…
neupogen
Hello. I am new to this board. I have a question about Neupogen. I have been having terrible side effects from this medication (i.e. bone pain/headaches). So bad in fact that when my nurse called today to tell me to start another 3 day dose I started to cry. Has anyone ever tried Neulasta? How do the side effects compare…

Lymphoma (Hodgkin and Non-Hodgkin)

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