-
Scans coming up
I have my three year scan March 28 then April six I leave for England woo hoo will be there a month I’m not going to let this cancer win
-
Urothelial (kidney) cancer which has metastasized to the lungs
Following cisplatin chemo which successfully arrested the disease progression, the bi-weekly Avelumab (immunotherapy) infusions which I subsequently received for almost 12 months are planned for completion. Has anyone in similar situations received Avelumab for a longer period and if so, please share your details.
-
My cytology says: Suspicious for high grade urothelial carcinoma
What does my cytology results mean by : Suspicious for high grade urothelial carcinoma?? I had a TCC in right kidney pelvis. The kidney was removed in Nov 2022. I am on Plavix so my urol doctor does not want to do a bladder scope yet. I am sheduled for a CT next month. All info is helpful. Thanks
-
Coping with my dad’s decline
I’m not really sure why I’m posting this. I don’t know what I’m trying to get out of it, or what I want to hear. Or if there’s anything anyone can say to make me feel anything other than the immense grief that I already feel. My dad (53) has stage 4 Renal Cell Carcinoma. His diagnosis was sudden- he went into the doctor…
-
2.9 cm lesion Bosniak 3
HI i was just diagnosed with a Bosniak 3 lesion on my right kidney. Saw a urologist who recommended surgery or told me i could follow it.. I am confused.. I was wondering if anyone here has followed their lesion if so for how long and did you eventually to have surgery?
-
Any treatment for Chromophobe cancer?
I recently had kidney and tumor removed, with confirmation of Chromophobe cancer. The conventional medical opinion is to watch n wait to see if cancer re-appears. But is anyone's doctor treating their cancer? The literature is unclear if there is no accepted treatment because: 1) the sample size of Chromophobe patients is…
-
3.2cm Kidney Tumour
Hi, I'm a 29 year old male. For the past few months I have been getting pain in my stomach but especially my side and back. I was also struggling to urinate so went to doctors who done a urine test and gave me cocodomol/tramadol for the pain. My urine test came back normal he said so he referred me for an ultrasound for…
-
Post recovery surgery
Thank you for everyone’s thoughts and prayers and comments. I had my surgery in 2/10 and went home by 2/12. I had the most horrific shoulder gas pain and I thought I was going to die from it., thankfully I made it alive, now I’m dealing with the incision pain and all of the sudden I am feeling kidney pain!! More to continue
-
Partial Nephrectomy in 5 days - pre-surgery advice from those who've been there?
Hi everyone. I basically am getting nothing from the urology/oncology group...having to discover information and tips from online. My question: What helpful tips would you give to me on how to conduct myself with 5 days left? Things to gather together....things to avoid eating....things you wish you had done…
-
Chemophobe renal cell carcinoma
Hey everyone, my name is Kimberly I'm a 29-year-old kidney cancer survivor. I was diagnosed last year with a rare form of kidney cancer. It's been ten months now since my surgery and I have been in pain with nerve damage and where the procedure was done has been hurting terribly. Do anyone have any suggestions on what I…
-
71 year old discovered renal cell carcinoma incidentally
Hi, this is my first post, but I’ve been reading everyone’s experiences. My cancer was found by accident(thank God). I’m told my 5.3x 4.3 mass at the lateral aspect of the upper pole is at stage 1. I am scheduled for surgery at Moffitt Cancer Center in Tampa Florida on the 27th of the month. It will be a total removal of…
-
56 Year Male Incidental Finding 3CM mass on left Kidney
CT scan showed a renal mass of 3CM on left kidney. I had a biopsy done and they confirmed it was Papillary Renal Cell Carcinoma. I don't have blood in urine; kidney function tests are good; no signs of spreading to lymph nodes or other organs. I am generally healthy with strong heart vitals and blood pressure etc..Doctors…
-
Just saying HI!
I haven't been here for a while, but haven't forgotten you. I think I joined in 2010 or 11. In case you remember me, I was Dx'd with Stage 4 renal cell carcinoma in 2006, had surgery to remove R. Kidney, nodes underneath it (3 of 11 +), left lobe of my liver (with + tumor) , multiple biopsies of spots in the right lobe…
-
Uncle NED is that you?
Well yes it! On Dec 14 2022 I had my yearly CT scan and it was normal!!!!
-
Tumor growth before surgery
Hello, although this is my first post, I've been reading all the posts here for a few months and am very happy to have found this wonderful group of people. In September 2022, a spot was found on my right kidney during an mri series for my MS. I had a CT scan in October which showed that the spot was a 1.0 cm tumor. My…