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Kidney Cancer

Archives for September 2018

Question for male patients
when i found out i had kidney cancer my urologist said i had enlarged prostrate which he said was common for men my age(65). He said that with the enlarged prostate and the fact i would only have one kidney left after my surgery, i would need to take flomax and finasteride for rest of my life to be sure i didn't have…
NED!
Had my first CT done after surgery in March yesterday and my PCP sent me an email to let me know it's NED! woohoo! I will be struggling with getting the right follow up. The oncologist I saw refused to do the 6 month CT and said if I wanted that to return to the Urologist. I called the Urology office who ordered it right…
Red patches on bladder and elevated creatinine
After having blood in urine and ruling out urinary tract infection, had a cystoscope showing multiple red patches on bladder wall. Also lab showed creatinine of 3.5. Scheduled for cystoscope with general anesthesia Monday for biopsies. After a clear CT scan in May this is quite unsettling. Doctor says may or may not be…
3cm mass found on left kidney
doctor says it's cancer ....don't know what to think
Micro bubbles sonogram
Hello everyone. I finally saw the urologist today and while I went int expecting him to schedule surgery, he wants me to have an microbubble sonogram. Had anyone had this done and did the results change anything? Doctor said that my ultrasound showed mass had separations with thin walls but the CT scan said thick walls. He…
Question
So after my good results from my stomach biopsy. I asked my oncologist when would my next follow up visit up be. She said Labs only no scans and that will not be until January. My last scan in May was the questionable one but proven clear ( endometriosis ) not metastis by CT guided biopsy. Is that typical. I know I read…
Help please
Hi, Im a 46 year old lady from Sweden that basically has given up on life. Been looking at your site for a while and although i dont understand everything i understand a lot. Now pardon my language and let me say i know i should be very grateful for my eaarly cancerverdicts and i am so very thankful but now it looks like a…
Chat groups for kidney cancer
If you are a Facebook user, these groups for the various types of kidney cancer may be of interest. https://www.facebook.com/groups/clearcellkidneycancer/ https://www.facebook.com/groups/UnclassifiedRCC/ https://www.facebook.com/groups/papillarykidneycancer/ https://www.facebook.com/groups/translocationRCC/…
It's Flu Shot Season
Just a reminder to all. If your Oncologist thinks it's safe for you to get yours, do so ASAP, as it takes 2 weeks for it to be effective. The "old wives tale" about getting a flue shot and coming down with the flue is just that, a tale. The person had already been exposed; or contracted another variant of what was out…
Just a quick Thank You!
I haven't been posting here much, but do stop and peek and read through. I just wanted to thank everyone on this board again. You all helped me keep it together last fall when I was diagnosed, provided support when I had surgery in January, and were there for me to share my 6 month NED results. Thanks so much and keep…
Anlotinib: a novel multi-targeting TKI treatment
It is exciting to see more new treatments being available. Anlotinib: a novel multi-targeting tyrosine kinase inhibitor in clinical development. https://www.urotoday.com/recent-abstracts/urologic-oncology/renal-cancer/106996-anlotinib-a-novel-multi-targeting-tyrosine-kinase-inhibitor-in-clinical-development.html
Biopsy results
Reviewing my situation I was one stage 1 grade 1 in Oct of 2017. Then a follow scan at 6 months radiologist thought an area in my stomach may be a metastasis. The biopsy was Friday. It went pretty well no pain or anything. Staff was very nice. The doctor took 3 samples. He told me to listen for the click sound. I stressed…
I'm back
Hi Everyone, sorry I've been missing for so long - a number of reasons, none of which excuse my absence when so many of you are so faithful in your daily postings and encouragement. I have been catching up reading posts periodically and so sorry to hear of Abunai's death and the struggles of many - also rejoice with those…
Two years since surgery
And still NED. I am thankful. Now I'll log have an annual CT scan for the next two years. I appreciatespore everyone here. Thanks for fighting together. Love to you all.
I have a small mass - what should/can I do other than wait?
I'm looking for some advice on what my next step should be? Symptoms About 6 weeks ago I had a terrible pain in my RUQ. The was was pretty persistent and over the next week it seemed to vary in pain level, but was mostly there. It was to the point where car vibrations were really painful. I started taking Ibuprofen and it…
Couch Surfing?
My kids use this term when they crash at friends Dorms or apartments not the professional business. Last week we were offered free use of house for long weekend on Cape Cod with 2 other couple's. It's a 6 hour drive with sleeping for 4 beds 1 air mattress. None of us had ever been there. Before my Neph it probably was…
General Physical Results
Just got done with the Dr for my yearly physical. This time last year I was notified that microspoic blood was found in my urine, which lead me on a path I didn’t want to go down, but makes me thankful for each day!! This year all my lab work came back good. Losing weight has brought all my results down. GFR went from 100…
Question post nephrectomy
I had my right kidney removed April 17, 2018 (stage 1 RCC) and have been recently having a lot of cramping and pain in the area where my kidney was. I had my 3 month check at the beginning of August and my labwork and abdominal ultrasound came back normal. Has anyone had this happen? Thanks!
Surgery.
had my hernia robotically repaired yesterday. I hurt like hell, but the bump is gone! Soon, I’ll be back to being active. the surgery was actually more complicated then he thought and took twice as long. He spotted another spot that was about to pop and fixed that too. 2 for 1 sale, I guess. I hope everyone is doing well.
Robotic Partial Question
Hello everyone. Newly diagnosed and scheduling a robotic partial nephrectomy at Mayo Clinic in early October. My issue is that I live 9 hours from Mayo. My daughter lives about 45 minutes from there. I can either fly there then fly back or fly one way and she could drive me back 4 days after surgery. That would save me…
FLY !
Fox Loves You!!! Karma David and family. So sorry. I do not remember much of this year. I have failed every treatment when they all used to work. My memory and comprehension have been affected by brain mets. Very forgetful. I don't have a clue to the date.... I am also down about 100 pounds. Extremely weak througout my…
First-ever GLOBAL kidney cancer patient & caregiver survey from IKCC
I thought I posted it, but guess not... Please support the effort from IKCC. Thank you. ------------------------------------------------------- The IKCC (International Kidney Cancer Coalition) has just launched the first-ever GLOBAL kidney cancer patient & caregiver survey. This is a massive project that is supported by 26…
Svt Supraventricular tachycardia
My husband got his third immunotherapy treatment on Monday and his heart is back to racing. Anybody having this issue. He has betablockers but then it starts racing a few hours later. Anyvo9 have suggestions.
Recovery Taking a Long Flight
Hi everyone. I was recently diagnosed with RCC. Had an open partial nephrectomy on Aug 15th. Have an upcoming flight to Japan from NYC stopover in China on OCT 12. First leg is 16 hours, then a quick layover, then 4 hours. Is this too much? I'm relatively young (according to the drs) 38 and healthy, active. But still on a…
What to expect / Questions to ask
Good afternoon! I've spent a bit of time reading some of the topics and felt I might benfit by asking a few questions. I'm a 37 and was found (incidentally) to have a mass on my left kidney on 9/3. Follow up ultrasound showed it appeared to be solid and the docotor scheduled a CT w/ contrast. I recieved those results…
6 years free and its come back
Not sure how many are still on here since I was on last, but I had a 21 cm tumor on my Right Kidney. Luckily it was encapsulated and didn't spread. Well, wouldn't you know, it's come back on my left adrenal gland and in my lungs! I have an appointment with an oncologist on the 19th of September at Dana Farber and a second…
Status Quo - I'll take it
My abdominal sono, renal sono and chest x-ray were all NED last week! Bloodwork was great too. We're rotating ultrasound and x-rays with CT or MRIs to limit radiation. Doc is pleased and so am I! Next up - MRI in December. Until then, I'll keep on keeping on. Know that I'm thankful for all of you as we navigate this RCC…
Update on Newly Diagnosed
Hello, Back on 8/13 I was diagnosed with a 2 cm mass suspicious of RCC: Incidental find. Chest and abdomen CT were both clean other than the proverbial isolated 3mm pulmonary nodule that was labeled to be inflammation worthy of observation but not associated with the kidney cancer. After consults with multiple surgeons and…
Grapefruit juice?
Anybody have a bad reaction to grapefruit juice after starting immunotherapy?
Greetings
Hi friends. 59 year old male. Last year (2017), had a couple of weird fainting spells. August of 2017 pee'd a 50 cent piece sized blood clot. Immediately went to GP and he set up appointment with urologist. Scope of bladder was clean - set up for CT. CT showed 10 cm tumor on right kidney. Operated on Halloween 2017,…

Kidney Cancer

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