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Responding to treatment
I recently had scans to see if my treatment opdivo/yervoy is working. Prior to treatment I had nodules in both lungs lesion in groin liver and two large lesions on T spine and L spine. My scan showed my lungs were all clear and my groin was clear of metastatic disease. Lesions remain in my liver however they are smaller…
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Update on my Dad -- this disease is garbage
Dad is not doing well. He is very weak and gets out of breath by getting up and being transferred to his wheel chair. This causes breathless episodes that scare him. Last week he had two episodes of breahlessness at the oncologists office, so they sent him home with oxygen, after pulling fluid off his lungs. These…
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Clear cell renal carcinoma metastasized to lung
I am new to this forum. I am 29 and was diagnosed with clear cell renal carcinoma at 27. I had a total right nephrectomy. Then found out a few months later it metastasized to lungs/lymph nodes. (Stage lV) I have done Sutent with mixed results opdivo with mixed results and recently went to the NIH in D.C for immunotherapy…
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testing cysts
Has anyone heard of a new method to diagnose cysts as benign or cancerous? I am not sure if its available yet but I believe you are injected with something and based on its interaction with the cyst it can diagnose if cyst is malignant or benign. Thank you
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Results
Chest: 1. No evidence of metastatic disease within the chest. Abdomen: 1. Postsurgical changes from partial left nephrectomy. Next on 2. No evidence of malignancy in the abdomen or pelvis. 3. Hepatic steatosis. 4. 1.4 cm cyst in the right kidney. Signed By: Brown MD, Benjamin Narrative EXAM: CT-ABDOMEN & PELVIS W CONT,…
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HAVE YOU JUST BEEN DIAGNOSED?
I'll try to keep my background short, just to get to my point. After seeking help for a kidney stone on my left kidney, I was diagnosed with a 2.9 cm kidney tumor on my right kidney in March 2013 by a Urologist with likely metastasis (due to location) and with that a diagnosis of 1-1.5 years. I was scheduled for radical…
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NEW here cysts and mass getting Davinci
hi I’m new and have read many of the heart wrenching stories on here. CT in early 2017 found 2 cysts and a mass, incidental findings. Several doctors later and more CTs, ultrasound and MRI, finally sent to a urologist surgeon. We did CT and repeated 6 months later. I have one small fatty cyst upper pole, another mid, and…
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Finally results are in
This year I am 5 years out from my neph and had my follow up with doctor today. I was extra stressed today as I had my CT scan a month ago so the waiting was agonizing. I had also a one hour wait to see the doc which didn't help either. Long story short it is NED - yay!!. However I don't get off that easy as he was…
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Question
Question is there any chance that a removed kidney tumor of 4 cm , type 1 , grade 2 with clear margins can create a metastasis after 6 months??
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What's next.....
I just completed 12 weeks of aggressive treatment opdivo/yervoy. I was having joint pain and my oncologist wanted to be sure it's not due to my cancer. I had a radical nephrectomy 3/8/18 twot weeks later I suffered a PE and one and a half months later I found out my cancer had spread it deteriorated my spine invaded my…
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Experience with blood clots / need for coumadin / monitor Vit. K after K. cancer surgery?
Are there folks here with these experiences? - a blood clots after kidney cancer surgery b blood thinner treatments after cancer surgery to prevent blood clots c taking injections of daily Lovenox as blood thinner? because perhaps the pills don't work with all K cancer? d my wrinkle is that up to now (age 66) have never…
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Should I be worried?
on January 30/18 had an ultrasound done on my abdomen. Results came back with right renel pelvic fullness and was due to a physiologic(not sure what that means) blood work is was fine and urinalysis was good. I had another follow ultrasound in June 2018 with blood work and urinalysis. All came back good. my ultrasound…
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SWELLING AND WEIGHT GAIN
Good Day Everyone, It has been only two weeks and three days since my Radical Kidney Nephrectomy and I have been walking continuously since coming out of recovery room at the Hospital (as soon as I got to My Hospital room I got up and walked one lap around the whole 4th floor and continued every 2 hours until I left) .…
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Ct scan today
very nervous about my first CT scan after my partial....getting ready to go the hospital now lots of thoughts about about what happened and what could happen.... i have some pain in the right side of my hip that comes and goes... besides that I finally recovered my energy and I feel better. The problem is that I feel…
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Late Night With NED
My official visit to review my results is not until Wednesday, but my chest x-ray and ultrasound scans popped up on my patient portal a few minutes ago. No evidence of metastatic disease and unremarkable. NEMDU is kind of hard to pronounce, so we will call NEMBU NED. NED is welcome in my world any time of the day or night.…
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4.5 years NED
Hello, folks, Boy, life has a way of being “life,” doesn’t it? But that’s one of the things that makes this group so special. Each and every survivor reading this can say the same thing. Life is precious. And sometimes, something happens to bring that into focus.
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Should I be worried
Hi I am new here and have an appt Monday for some "leasions"/cyst they found during a CT in the ER for abdominal pain. I was seen in the ER in July becuase I started having back and side/front abdominal pain. I thought it was kidney stone as I am prone to them, but pain started in the front when it is normally in the back.…
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New Treatment Option
Hello Everyone, While I usually hang out with the wonderful warrior ladies on the uterine cancer board because of Mrs. Red‘s prior serous cancer bout (she’s NED now thank the Lord), I also look at this board a lot too because my sister bravely fought renal cell cancer for 10 years until the end. I saw a new treatment for…
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Done with surgery ...
I just had my kidney tumor removed via a partial nephrectomy last week (8/1). Now the waiting for the pathology results.... Been in terrible pain since the surgery, specially in the back. That's making it very difficult to move around or get up from a lying position. Is that normal? And how soon does it get better then?…
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First Scans Monday
Have my first scans on Monday since my surgery 6 months ago. Starting to get that scanxiety that everyone speaks of. Going to keep myself busy over the weekend and not think about it. Just really hoping things look good. Haven't had a scan since they found my RCC. Wish me luck! :)
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Nephrectomy
I get a big pain 3 years after I had a full left nephrectomy
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Fox
i check every day for any updates on Foxy; his last posts made clear how difficult it wa to post and sometime read. Has anyone had contact with him that they can share? Foxy means the world to me Sarah
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new kidney network member
hello, all. have only read about 20 posts but am appreciating all of them. finding that joy & yuk-yuks help me release stress about cancer. we had such a mighty fine belly laff from iceman's GIVING UP KIDNEY PIE comment, that it's my username. any kidney jokes, comics, funny stories, things kids say about the kidney that…
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Sweet 16 today, 75 years young last week
some observations and a few thoughts: NED X 16 NBD X 16 Each of the 5 grandchildren has become 16 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 74 next monthl. The survivor rates for each Stage of RCC have increased over the last 16 years. Ice Tongs are no longer used for RCC Surgery.…
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Tumor flare or progression after votrient or TKI inhibitor
Hi all! I'm actually a stage IV sarcoma patient, but had a quick question as votrient is commonly used in RCC. Has anyone been taken off votrient or another TKI...or had a break...and progressed, then were put back on votrient and regressed? I figured I'd ask here as it seems folks on this board are more responsive and…