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Thoughts?
So I have had a couple of people say to me.. you know cancer runs in three's... I have never heard this but I have to tell you now that I have had kidney cancer and now skin cancer... I am kinda concerned. I do have my first scans in two weeks but would those scans pick up anything else that might be lurking?? Cin
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Does it always come back?
The stats say 1 thing but all I ever read is that it came back , no matter the size, grade or stage!! It makes a person wonder if the stats are just to give hope and not based on real life..I'm 14 weeks out from Left open partial and doing pretty good but already sick of waiting for my bad news! Is it that people that are…
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cycstoscopy
So they did my csytoscopy on the 8th. Everything with my bladder looks good but there is still blood in my urine. They thought I had a UTI and I don't know about ya'll but when I have UTI I KNOW I have one before I ever go to the doctor. I never felt like I had one. After the antibiotics I went back and there is still…
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Denied cat scan
I had scans every 6 months for two years, so I had the one that diagnosed it then one I think a month after my neph and then I had them every six months, so I had 6 total up to that point. then we went to every year. I had that first yearly scan last year. I was supposed to have my yearly scan next week but Aetna refused…
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Translocation renal cell?
I am 30 years old. Got diagnosed with kidney cancer during my pregnancy. I am two weeks post op From partial nephrectomy. We were thinking clear cell the whole time. Pathology sent The tumor to MD Anderson because the pathologist locally couldn’t determine between papillary cell or translocation. Based off what I’ve seen…
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UTI issues after surgery
I am having issues with UTI infections. My latest urinalysis said i have Serratia marcescens. I am on one antibiitoc pill per day for a month to try and clear it up, but from what I read it doesn't reaact well to antibiotics. The symptoms are awful and I've had this for over a month now. Anyone else experience this?
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3 weeks post op. When does the pain end??
I'm 32 years old and I had a open partial nephrectomy on my right kidney. I'm a stay at home mom to my 2 yr old and also have a 5yr old. I'm still having pain above my incision site which is from mid abdomen to my flank side. Having rib, abdomen, and back pain. I'm trying not to take oxycodone but tylenol hasn't been…
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Surgery ==Monday
Well, my sugery will be monday and I have had some ups and downs. Today I felt, physically, great..even I played soccer for 2 hour . The problem starts when I have time to think....What's going to happen next monday ?? My tumor is 5.1 cms and I have ZERO symptons. It was discovery by accident . All my analisys came back…
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updated * New spinal Mets stage IV Clear cell & Cabo
Hi All, My Mom was diagnosed with stage IV Clear cell on Dec 5th. She had bone mets to spine left rib & hips.Jan 30th she finished her radiation ,15 treatments. For the past couple of weeks she’s had stiff neck and shoulder pain & now pain on her right side /rib cage. These were not areas that were treated. Could this…
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Weird
Ok so I had my left kidney removed 9 weeks ago but for the last two weeks or so I have had a pain in my ribs/Back on right side. Went to the Dr she said I had a rib out. However the pain is lower now and located on my side at the bottom of my ribcage. When you run your hand firmly across it the feeling is very bumpy under…
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3 weeks post op
Just wanted to update my situation in hopes that it may help Future robotic partial patients after surgery. So, I'm 3 weeks and 4 days post op and I'm nearly back to normal strength. I do get tired very easy I've noticed. I've driven by myself several times and did a two hour solo round trip yesterday. I feel pretty good…
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newly diagnosed mRCC
Hi there I am new to your forum and have been reading all your positive posts and kind words. My 2nd cat scan results came back today (1 year since radical nephrectomy) I have 9 nodules between both lungs and also have a pleural mestatasis. Not the best news I could have got, but looking forward to an appointment with an…
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The weekend
So I have decided to put on my dancing shoes tonight and have gathered a bunch of my friends and my oldest daughter and son in law to go with me and my husband for a night on the town! Now if you could see the town I live in you would laugh because it is so small..however it should be a good time. Time to let go of some of…
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Nerve Pain
I had my surgical wedge biopsy a month ago today, and I still have some risidual nerve pain. Saw surgeon last week and he said it looks normal to him and that this is just part of the process - says some people it goes away faster than others. (It was a lung biopsy, so they went in through my right side, just below the…
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Frankinscense ??
Has anyone used frankinscense oil for a supplement to help fight recurrence, or as treatment. I have read it has some benefits. Any thoughts?
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A quote to share to all you lovely people x
The devil whispered in my ear “ You are not strong enough to withstand the storm” Today I whispered in the devils ear “ I am the storm ”
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Tumeric
I have been hearing a lot about adding tumeric to my diet. Is this safe with one kidney? Also I am considering acupuncture for my anxiety.. anyone have any experience on this?
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Oh gosh
So Appt at dermotology today resulted in a biopsy to the nose that hurt like a bad word! Sent off for pathology but Dr is pretty confident its Basal Cell. Oh man..... also I actually printed off my pathology report on my kidney tumor and here is what it says pT2B grade 3 Tumor 13.3 cm Confined to kidney No capsular…
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Other cysts after diagnosis
I have a cyst on my left ovary, that has been there since last year. It was noted on the scans, but we were more worried about the kidney tumor and put the cyst to the backburner. It wasn't causing me pain or issues, and my GYN told me its normal for women to have cysts. Now all the sudden I am having issues. I had 2…
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How to switch off your brain
Hi everyone I had my LPN in September 2017 The operation went well and my pathology was very good as it was a 4.4 cm chromophobe renal carnicoma stage 1b with complete excision and a 5 mm positive margin However the past two months I have suffered continually with headaches, dizziness, swelling in the hands and fingers…
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What to expect?
Hi all, With just over a month to go before my surgery, I am wondering what to expect. I do know there will be a bowel prep. I have a pre-op physical this Thursday with my GP. What questions should I ask her? Also, I will have to have pre-op chest x-ray, EKG, and labs drawn prior to surgery. Wondering when would the best…
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Large kidney cyst.
Hello everybody, im new here. 32 years old. Im sorry in advanc if my english is bad. So here is my story. About two years ago i had pain on my left banc side under the ribs. Flank pain. I was lifting weights so i thought is related to exercise. I went to my gp and soon i made my first abdominal ultrasound. This showed…
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World cancer day
Today is 4th February, the world cancer day We all have experienced the effects of cancer as survivors or caregivers. On this special day, I thank you all because of supporting each other. I also Thank caregivers, health care providers, CSN team & researchers working to develop new treatments. We are alive and that's what…
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Done and Home!
Well, had my surgery on 1/26. Finally got home yesterday after a week. Open partial of right kidney. As for the tumor, they got it. Path report showed 2cm, Stage 1, Grade 1, RCC with clear margins. The 2 hour surgery turned into 3 1/2 though as my ureter was cut, so they had to repair with a stent. I'll get that removed…
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Pathology report
Surgeon called this afternoon. Gave brief highlight of report. Will get full report at 2 week check next week. T1a, N0, M0. Clear Cell Renal Cell Carcinoma. Margins clear. Very tightly encapsulated. He's happy. Been a very rough recovery however. Thankfully NO issues with gas pain and minor issues getting bowels working.…
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Renal cyst
So after an ultrasound I was found to have a 6.8cm mildly complex Left lower pole septated cyst.....being sent for a cat scan...Was wondering if anyone knows the likely outcome because of the size...Thanks
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One Step Back
Well...that didn't work out as I had planned lol! I thought I was ready to go back to work at 7 wks out from surgery. I lasted until last Saturday then had to call it quits. Sure, I still get sore in the area around my largest incision, but it was the mental thing I wasn't prepared for. My job is beyond stressful and I…
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Kidney Lession
Hi, I am very concerned with a CT with this impression: ” small low attenuatiion left kidney lession towards the lower pole with mild enhancement measuring 3cm”. Dr. was not so happy and I need to wait a week for an MRI.
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Happy Birthday you have cancer
yea, if you can tell by the title I was diagnosed on January 2nd which was my 43rd birthday. Long story short I had a hysterectomy on Dec. 20th. They did a CT scan on Jan. 2nd and informed me of a mass on my left Kidney. I have now seen 2 urologists (didnt care for the first guy at all) and now waiting on a follow up…
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Any long-time Stage 3 survivors?