-
A good report
PET/CT results #10. Opdivo and radiation seem to be working. Thank you Jesus. IMPRESSION: 1. There has been interval improvement of radiated bone metastases in the spine. The remaining small bone metastases and soft tissue metastasis adjacent to the heart are stable. No new metastases are seen. Details are as follows: 2.…
-
New MRI/CAT Scan Results
A few weeks ago during my first visit with my new Oncologist, he told me that they spotted a lesion on my liver and he ordered an MRI of abdomen and lungs and a CAT scan of lungs. MRI had dye and was completed this past Sunday. I have been worried as sick about this and just what else they'll find. He reported to me today…
-
Stranding
Does anyone know what this means on a CT report. I am only being seen by a urologist and haven't seen an oncologist. My urolgist said he got it all and there was no need for further treatment. I've been having recurring uti symptoms and pain in my left side so it worries me some that they might be missing something. My…
-
Pathology Report
I just got back from my first follow-up appointment since surgery. Several people have asked about my pathology report. They gave it to me today as follows. Right renal mass, enucleation: -Renal cell carcinoma, clear cell type, 1.5cm,Fuhrman grade 2 -Tumor is organ-confined. -Margins negative for tumor -Overlying adipose…
-
Mild Back Pain and Sensations Following Partial Nephrectomy
I was diagnosed with a 3cm tumor which turned out to be clear cell renal cell carcinoma back in September on my 26th birthday. Crappy birthday let me tell you, but I had a partial nephrectomy about a month later which was robotically assisted. I was going strong six weeks later and recovery was pretty simple. I'm back to…
-
Recovery from surgery
I had my left kidney and 11th rib removed 5 weeks ago due to a cancerous tumor encasing most of my kidney. I am still experiening pain and feel as though there is a huge clamp on my left side. Not all of the stitches have dissolved yet and I am having trouble sleeping on anything other than my back. How long before I can…
-
Anyone with papillary type 2
Hi is there anyone with papillary type 2 with stage 1 and NED for more than 5 years Thanks
-
Deciphering CT scan report
I see the doc tomorrow but my radiology patient portal gives me access to my reports and it became available today. The lungs are stable, yay. It noted stabke on 3 nodules. Before there were 4 and a granuloma. The previous scan wasn't with contrast. The abdominal is confusing. KIDNEYS AND URINARY TRACT: STATUS POST…
-
Manufred... Success with trial
The drugs, ipilimumab and nivolumab, are already used with remarkable success in the treatment of deadly melanoma skin cancer. Nivolumab is also used to treat advanced lung tumours. The new trial found that the combination achieved significant kidney tumour shrinkage in 42 per cent of the 425 patients in a trial and…
-
Gratitude
One and a half years today since partial nephrectomy on my solitary kidney. Took my wife for a meal at a very nice place. How would I have borne all this without my Sweetie? Thank God for all those who have walked alongside us through it all. I hope you have those people in your lives. Take care everyone.
-
Carbo question
Hi My husband just got upped from 40 mg to 60 mg of carbo. He has been on it 11 days. The side effects were tolerable at 40 mg but he cannot tolerate 60 g. My question is does it get better in time? Does he just need to stick in out? if not we're ready to go back in and tell the doctor that is quality of life is not…
-
5 weeks post op from partial nephrectomy
And having some issues one is I feel dizzy on occasion and I have abdominal pains now and then they are going to do another scan next week of my pelvis and abdomen to make sure nothing's going on. Also had to have a stricture taken care of an in-office procedure now I have to self cath two times a day to keep it clear for…
-
Small Chromophobe Renal Cell Carcinoma
Hello, This is my first time posting to this group. I recently had surgery at MD Anderson after a biopsy revealed that I had Chromophobe Renal Cell Carcinoma. I have read as much as I can about this type of cancer but still have questions. I am wondering if others have had genetic testing for Birt-Hogg-Dube Syndrome. Are…
-
Worrisome
Since my surgery in Dec I have had several aches and pains which I assume are normal however I have pain in my right thigh and ribs/ back on the right side as well. I'm trying not to be paranoid since I feel I am at that "everything is a thing phase" even though pre surgery bone scans and CT scans were all clear. It just…
-
Chronic Diahrrea
I am 62 years old, I had a Wilm's tumor removed when I was 2. I had a reaccurance of cancer when I was 12 and had 2 ribs removed. I also had my appentix removed at age 12. I had 2 miscarrages and had a 2 month premature baby at age 26. I started having diahrrea when I was around 40. Over the last 5 years it has become…
-
Tomorrow is almost here!
Well, I finally have my surgery tomorrow morning. Open partial on my right kidney. Praying they get it all and that is the end of it inside me. I really appreciate all of the information and support from this group. You guys are all awesome. I'll check back in once I'm able to get online and type. Big step into a new…
-
Day 1
Just met with the urologist today and he confirmed that he's the mass is probably cancer. Looks like surgery early next week. Glad I found this group I'm sure I'll find a lot of information and real life experiences. So I'm glad to meet all of you but wish it were under better circumstances.
-
Diet and Recurrence
Search youtube for Dawn Lemanne and you'll find her talk on carbohydrate restriction and cancer. We have discussed this in other threads, but none of us are experts. Anyone who is interested should watch this talk by a real expert. Diabetes is a simple disease and easy to treat but cancer has no easy answers. Anything that…
-
Here we go - surgery scheduled
Monday, February 19th - radical laproscopic neph. Excited and scared ****less at the same time. What should I expect when I wake up from the surgery?
-
Checking In...
Hi dear peeps, I haven't been on in a long while and I am sorry about that. I am just checking in and wanted to say keep on trucking to all of you lovely warriors and survivors. I just got back from a two week trip to India, it was wonderful. I will do my best to be a more regular presence on here. God bless you all! Deanie
-
Update on my son-in-law
I've been lurking for quite some time and haven't posted for ages, however I have to share some continuing good news. For those of you who have recently joined the 'club' that nobody wants to join...John has stage 4, grade 4, 60% sarcomatoid cancer. He was dx'ed about 18 months ago. He had a 13cm tumor and a total left…
-
First Meeting with Medical Oncologist
Had my first meeting with an oncologist today to review my pathology report. He certainly had some insights that I hadn't heard from the Urologist, nor did I absorb while looking at Path report. First, he said my left kidney had 3 tumors: 4cm, 2cm and a cyst with cancerous cells. He said that one kidney was pretty well…
-
Surgery tomorrow
Right Robotic Partial. Ready for it to be over. Any words of wisdom?
-
Lung mets for $2000, Alex...
Heard from my doc yesterday, and we finally know what my lung nodules are: metastasized RCC. Needless to say, emotions are running the gamut this morning, but I still have work that I have to get done today, which is not going to be easy. I see the oncologist tomorrow, and we'll review the treatment options, which she says…
-
Lab and scan is done
Now I wait for the results tomorrow. They said my gfr was 89. They said that was pretty good. I just agreed as I’m still new to all of this. Praying for my buddy NED to visit me tomorrow.
-
Emotional
I’ve been through two partial nephrectomys since September and my scans have come back clean. I’m 7 weeks post op from My last surgery but I’m feeling so emotional. I can’t seem to talk about my experience without breaking down and shedding a few tears. Is this normal? Have any of you felt this way? I think maybe I should…
-
RCC Recurrence Prevention? Is there one?
Hi! Dear All, This is the most important question and most of us looking for it. After spending hours and reading on the internet and others resources. At this moment, the only positive diet is low carbs + plant based diet and which is almost similar ketogenic diet might able to prevent or delay recurrence. But somehow it…
-
High BP and Perimenopause? After partial nephrectomy due to RCC
I’m 42 year old female status post partial nephrectomy Oct 2017. (Boy was that tougher than I thought it would be. Painful recovery! ) I live very close to Mayo Jacksonville so they manage my care. Ive always had good BP, but following surgery now have difficulty controlling It. Everything I’ve read makes This seem to be…
-
Stricture
One month after surgery and now it looks like I have a urethral stricture ,going into the doctor's tomorrow to see what he can do ugh I don't know how much more I can take Hoping he can repair in office be even if so I'm sure we'll have to have a catheter for a few days ugh Anyone else develop a stricture after the…
-
One Person's Cabo Vacation
Hi. First time poster here, and in all likelihood I won't be back regularly. But I did want to share my experience. Back in June of last year I was diagnosed with stage 4 renal cancer with numerous bone mets. After the initial panic, I started to use this board as a research tool. Then treatment started. I had one very…