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Kidney Cancer

Archives for February 2017

First tests since surgery
Hi eveyone! I am going in tomorrow for renal ultrasound, chest X ray and blood work. These are the first tests since the removal of my kidney in the fall. Having a bit of scanxiety so I would appreciate any prayers, good vibes sent my way. I appreciate all of you.
Post-Op and No Energy!
I've just discovered these message boards while trying to do some research on what I should expect in regards to my energy levels. I am 4 weeks Post-Op Left Nephrectomy. The 3.7 cm mass in my left kidney was discovered quite by accident because I was having Gallbladder issues. A CT of the abdomen revealed the mass. Thank…
A Week from Today
Well, my husband had his final bloodwork and tests today before the surgery next Monday. He is definitely not looking forward to that day arriving. I know each surgery is different but about how long did yours take? I read that it takes between 4 and 5 hours but we were told today that it is scheduled for only half that…
Can You Overthink Things?
I recently spoke with someone that had kidney cancer surgery a few years ago. He was peeing blood and went to the ER. The next day the urologist told him that this was bad. This is the same urologist that my husband has that is local, but not the one doing the surgery. Anyway, his was large and had attached to his liver.…
What to do...
Hubbie was diagnosed 1 year ago with stage 4 kidney cancer. Cabo made my husband violently ill, he also ended up with colitis from it. Had bad side effects from Votrient and Opdivio did nothing, the mets in his lungs progressed so now taking Affinitor. His MRI on Tuesday now shows 4 new met tumors in his brain, they want…
Waiting?
Hi, I had a ultra sound done and they found a 5cm mass on my right kidney, I don't have the official report yet but my Dr. (He's a DO) Told me that it's too small to biopsy but if I wanted he could send me to a cancer specialist but they would tell me the same thing? At this point I'm really confused, I have no idea if it…
What to expect at 1st Cat Scan
Hi, I'm going for my 1st Cat Scan with contrast. I've had scans before for things other than my kidneys but never with contrast. I've got my vanilla flavored contrast beverage chilling in the fridge for tomorrow's scan. Any advice as how to get it all down? I'm worried I won't be able to finish it all. Anyone have any…
Hey Cabo You WIN
I stopped taking the CABO on Tuesday the side effects have made my daily life so miserable that I don't want to get out of bed. The pain in my esophagus has been the worst and it just keeps getting worse by the day. I spoke to my doctor and I told him I can't do this anymore even though it is working I am no longer happy,…
Are there oranizations that help with tasks?
I am a rcc survivor with ckd, crps, ddd, fibro, etc. I have a hard time doing chores, errands, etc. Are there any new ACS or Kidney Cancer Association programs to help? If not, are there any organizations that give free massages to cute cancer survivors? I am so behind with everything! Kidney_Cancer_Kid
Going to be a grandpa!
I wanted to share good news with my friends here. I just found out I'm going to have my first grandchild in September. Woohoo! Honestly, when I had my first tumor (and then the second two years after), I thought I wouldn't live to see a grandchild. When they told me, I must admit I cried. I think I'm going to be around to…
The Problem with Family (Feeling Betrayed)
I was recently diagnosed with Renal Cancer, and I decided to keep things private. I only told my mom, my husband and my boss (I needed days off for testing and appointments) and my aunt Nancy (my mom needed someone to talk to) I swore them all to privacy. They agreed to maintain my privacy. I also help take care of my…
Radiation for Stage 4 renal tumors on spinal column
Someone on the renal cancer board suggested a new topic be posted because of interest in metatasis in Stage 4 to the spine. Husband had left kidney removed 8 1/2 years ago at Johns Hopkins, after which he had CT scans yearly all ok. In 2015 a radiologist "overlooked " the fact that a metastasis formed near the spinal…
Y90 Radioembolization update
I had my procedure done January 12 to hopefully kill the five tumors in my liver that were no longer responding to Sutent. I just did scans on 2/15 and all five tumors were blacked out, dead. Supposedly my tumors are gone in my liver after one month. Radioactive isotope work up to 90 days so go back for more scans in…
Consequences of long term drug therapy
I've been fortunate enough to have enjoyed success with treatment of my stage 4 cancer. I am so thankful for that. Of course, who knows what the next scan will bring. I know that, too. Drug therapy is a big part of that success. For 3.5 of the last 4 years I've been on either Everolimus, Sutent or Votrient. Currently, I've…
The Seventh Sneeze
I felt a sneeze coming last night so I grabbed my trusty folded towel, pressed it to my abdomen, and let it happen. It was only a little one, with no follow up. Because sneezing is such a notable event I realised I had sneezed very few times since the surgery. My estimate was seven times. I've also had very few unplanned…
Measurement on CT Scans
Do any of you know if there is only one measurement on the printed report of the CT scan if that is the largest measurement? Or where does that number come from? I am asking because my husband had his presurgery physical today and the doctor said his back pain is from having a little arthritis. He also had a chiropractor…
Checking in
i still peek in once in a while to see how you are all doing. I can never thank you all enough for the support you gave to me and blkjak during his fight. I am happy to see some of you that I remember and hope you continue to kick ****! To all of you who are new, this group is awesome and the support is second to none.
Just found out I have Kidney Cancer
I'm 31 years old and I just found out last Friday I have Kidney Cancer. I was in the hospital for over two weeks with bronchitis and the Flu and they thought I had blood clots in my lungs and when doing the CT scan they seen something on my kidneys. I just had my urologist appointment and my mass is 33 cm big as a golf…
Path report
My surgery was in October 2016 and i never bothered to read my own Path report. i just trusted my docs and did what they told me. As some of you know i had a run in a couple weeks ago with who i consider a terrible ONC. That led me here and you all all prompted me to get more knowledgeable and invested in my own healthcare…
Have my first urologist appointment Monday have a3.8 cm nodule not a cyst.
Kidney Function and Weight
Four months ago I went on a food and exercise plan to lose weight. I've lost nearly 31 pounds. One of the things I did not expect was that my kidney function has improved. I didn't think that was possible. My creatinine went from 1.6-1-9 range, to 1.44. In 4 1/2 years with one kidney I never saw a number under 1.6 no…
One year
One year ago today I was having my robot assisted partial nephrectomy for a 2.9 cm clear cell, grade 2 RCC. I am so thankful to have found it on myself thanks to my profession, thankful for each day, and thankful to all of you for the support!! I still worry every single day, but I'm also enjoying each and every minute.
Next...............
Last scan showed that the Votrient I have been taking for almost 5 years has stopped working. Doctor suggested a clinical trial of IPILIMAUB and NIVOLUMAB at Dana Farber. Going to the doctor next Thursday to start the process of entering the clinical trial. How do clinical trials work? I know that I will be reciving a…
Still here, will check in later
just a quick post to say that I am still here, reading but not posting for a long time. Husband still doing well. Sarah
discharge tomorrow
My drain comes out in about 12 hours (unless it fills the bag overnight) and then I'll be booted out. Thank you all for your support. I'll post again when I get home and don't need to use this tiny phone screen. Steve.
Histopathology report
Summary: Type: Clear Cell RCC Grade: Fuhrman nucleolar grade 2 Margin: Clear Stage: pT1b Nx Mx Good news... now I am crying and waiting to tell someone. I bet nobody comes in now. Or maybe nobody will feel it like I do. But of course you all know.
2 Trips to the Emergency Room Last Night
My husband went to the bathroom and had a lot of blood last night. This is the first time since the initial day of finding the tumor. We thought that maybe a trip to the ER would be wise since he also felt a bit lightheaded. They called the urologist and he said it wasn't too surprising and since his bloodwork was…
Starting out
Hi, I'm a 48 female and I just had a recent complete abdominal ultrasound showing a 16x20x18 mm complex cyst in upper pole of my right kidney with subtle internal echogenicity. I know it's considered small at this time. Dr has ordered a CT scan with contrast. Went for US after complaining of right sided flank pain that my…
How to change oncologist
Long story but I was diagnosed with RCC in my left kidney in 2013, after the removal of a 7 pound tumor, my left kidney and my spleen to which it was also attached and a very long and painful recovery I was said to be "cured" HAHA. There was no follow up chemo or radiation and I was never asigned an oncologist I went to my…
CABO Users
To all of the CABO users are any of you having esophagus issues. I am having serious issues with swallowing any think substance for instance last night we had chicken and rice for dinner, and I had a bite of chicken (regular size) but it got stuck in my throat. I had to drink water to get it down and the pain was…

Kidney Cancer

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