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Terminology and Acronyms
Being new here, I'm still trying to learn the terminology used. Such as NED? From context, I've obviously been able to deduce that it's a clear report, but what does the acronym stand for? Any other terms I will need? Thanks, Debbie
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Borrowing trouble - need to be talked down!
Okay, I posted earlier about my cyst on my right kidney that is causing all kinds of issues. My husband just brought up an issue that I hadn't connected, but am now completely terrifying myself with. I have a long history of severe migraines, to the extent of hemiplegia and TIAs (minor strokes). About two months ago, I…
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Kidney Cyst and Upcoming Appointment - New Member
Hello everyone, and thank you in advance for reading my post - I'm sure it's going to be long. I work as a medical assistant for a Family Practice doctor, so when I came up with a whopper of a UTI they treated me with immediately with some strong antibiotics. I was running a fever as well as having red and white blood…
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Continued Pain and Infections 1 year Partial Nephrectomy
Hello, I am really hoping that someone can please offer any assistance. I had a partial nephrectomy (laproscopic) almost a year ago for clear renal cell in my left kidney. I had a 3cm tumor. I have had pain ever since the surgery. It is a constant dull ache in my side and back. I have also had 3 kidney infections where the…
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CANCER FREE
I'm free of cancer, God healed my body Suspicious nodule in lung was valley fever..... I'll take that over cancer. His is so merciful and wonderful, prayers can do wonders. He's how I got through this all... to God be the glory
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Recently Diagnosed
Hi everyone, I'm brand new to this board. I'm 33yrs old and a Mom to a 3yr old and 2month old currently recovering from a complete radical nephrectomy of my right kidney. I was diagnosed with Stage I T1b. I was told I'm completely cancer free now that the 5.5cm tumor has been removed. I simply need to follow up every 6…
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Now What?
Yesterday my wife and I made the 400 mile round trip to UCLA for the biopsy on my hip. It wasn't fun but not bad at all. The doctor that did the biopsy said that until the tests are done on the tissue taken we will not know for sure what we have. That being said he did say that from what he saw on the CT and from previous…
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Crowdfunding platform to develop a patent-free kidney cancer drug
http://timesofsandiego.com/tech/2014/09/20/san-diego-researcher-crowdfunding-patent-free-cancer-drug/ Interesting concept. Obviously still in development but another example of the development of prospective treatments for kidney cancer. It should be noted I'm posting out of interest and not solicitation purposes. "Dr.…
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Tests - Waiting....
Like everyone here, I hate the few days between my CT's and seeing the Onc Dr., seems like forever. A new twist this morning when I went to the imaging center for my 6 month CT - Pelvis, Abdoman, Chest. The radiologist there. who has never read my scans, told me he wanted to do full-contrast 100ml, instead of 1/2 dose -…
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Long Time No See!
Hey there, I have not posted for a while, in fact looking at all the new members it is probably longer than I realized. I am so sad to see so many new names on here! A few months back we sufferred a family trauma, it hit me rather hard and along with fighting cancer I just ran out of gas. Unfortunately I spiralled down…
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Kidney Pain
I have a question related to recent pain that I've started to feel in what I believe is my right kidney. I had a partial nephrectomy on my left kidney on May 8th (4 1/2 months ago) and had been recovering very well. Suddenly about 1 1/2 weeks ago I started having severe back pain on the opposite side of my surgery. I was…
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One month's supply of Sutent donation.
I have a month's supply of Sutent that I would like to donate.
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Extreme skin sensitivity across abdomen
I had an open partial right nephrectomy on September 4. My recovery has gone pretty smoothly and I will have my post-op visit with the surgeon next week. This past weekend we had to make a 7 hour drive to attend a family funeral and then a day later 7 hours to get back home. Initially I was mildly concerned the drive might…
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Monitoring question
I am curious to compare with you all how you are all being monitored after your nephrectomy. My kidney was removed last December. It was stage 3, grade 2. I have had one scan done and have another coming up October 10th. In the first scan they noticed a lesion on the liver and because of that, are going to do a CT scan…
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Please Wish me Luck
Scanxiety for sure. Tomorrow is my six month checkup with blood work, chest x-ray, and kidney scan. Friday was the nuclear kidney function scan but don't have results yet. I'm also meeting with my surgeon tomorrow afternoon but I don't understand how he'll have all the test results by then. Getting really nervous.
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Near faint 18 days post op?
Hello everyone, I am now 18 days after my laparoscopic radical nephrectomy and recovery is going quite well. Pain is less and less present and I am now on Tylenol only painkiller diet. My only complaint is every time I stand up from sitting or lying, I experience a near-faint or black-out. I have to hold on to something or…
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Recent CT scan shows 5.2 cm mass on right kidney
Hello everyone. I have an appointment with the Urologist next Tuesday to begin the work up process, diagnosis process on a 5.2 cm mass. Some background: Had a disc fusion about 5 weeks ago, recovered and went back to work part time. Boss was sick when I went back so when I developed body aches, chills, and a fever of 101…
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Nausea 3 weeks post surgery
Hi all, I have been reading posts for about a week but have not seen anyone say anything about nausea. I had a radical nephrectomy to remove kidney, lymph nodes, adrenal gland and 9 cm tumor. 6 days in Hospital was easy thanks to epidural; no pain until they removed it day 4 and then 1 night of bad pain. Used pain meds at…
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Appointment Update
Hi all. So, I met with the Urologic Cancer doc yesterday and he said the same thing as everyone else that once the tumor is removed, I should be cancer free. The tumor looks very contained to just the kidney. That was good news. We will be scheduling surgery sometime in October. The surgery type is still going to be an…
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Home from hospital
Hi all. Well I'm finally home from hospital today 6 days in the hospital not what we accepted, well had the duplex done on my legs no blood clots thank god. Had the CT Scan of Kidney no nerve damage or blockage so dr.s not sure why I still can't lift my leg. But I will do PT at home see if it helps if not then will do MRI.…
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Starting on votrient treatment
Hi there. Tomorrow I will be starting my votrient treatment After more than a year of NED. my oncologist told me since I am at high risk of metastasis due to my tumor size of 11cm. right now, i have tumors in the lungs, nephrectomy bed and abdomen peritoneal. My dose will be 800mg daily. For those who are on votrient also,…
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New to this forum
I was diagnosed with prostate cancer July 2009, had a robotic radical prostatectomy Oct 2009 and spent several years on that forum. I will ill try to make a long story short. I got a campylobacter infection in mid-August that ended up leaving me severely dehydrated and in acute renal failure. 4 days in ICU and I went home.…
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1 year scans...scared
i had my one year CT scans (chest. pelvis and abdomen) on Thursday and see the doctor tomorrow morning for my results...it's going to be a long night...
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Possible new treatment....
FYI. http://www.businessinsider.com/scientists-cancer-spread-health-research-2014-9
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Trial Updates
Well, I have now been in the trial for 7 months and as many of you know I never made it through the 4 initial treatments due to severe side effects. I was able to get into the maintenance program but unfortunately I had more side effects. To date my Thyroid is shot and I now have hypothyroidism and need to take…
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Back to Surgeon!
Hi Everyone, Found out last week that there is a small spot on my left kidney (1.5 to 2 cm), so back to the surgeon I must go. I was kinda hoping I was all done with surgeries, and I am really hoping that this one will be ok, as I do not have anymore spare kidneys, this is my one and only. I do have some good news, I will…
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New to group
Hi everyone, hope you are all well! I joined this group because I was just found out I have a 3.5 solid mass on my left kidney. I have been having what we thought was galbladder issues for over an year now. I am a 34 yr old stay at home mom with 3 young kids so I put off and put off till my husband made me go to dr. Thank…
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Low Sodium ideas
Ever since my kidney removal on 8/11/14, my doctor has told me that I need to be on a low sodium diet. I am a salt girl and always have been. Does anyone have any ideas of how to stop these salt cravings. I am about ready to lick the salt shaker. Thank you
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Does the nonchronological order of the posts bother anyone besides me?
I wonder if I am alone in finding it annoying that the most recent post is not always at the end of the thread. Is there something I am not aware of? Is there a setting for the format? If others feel the same way I do, does this site take suggestions for improvement? Have a great day. Annie
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What to look for
In Feb 2013, I had my right kidney and a large tumor removed. For the first year thereafter, I participated in a clinical trial which required follow up exams with my oncologist every 6 weeks and a CT scan every 4 months. With the conclusion of the test trial, I am on a cycle of 3-month visits to the oncologist and CT…