-
Application submitted for new drug approval
This is quite interesting.... http://www.oncologynurseadvisor.com/nda-submitted-for-tivozanib-for-advanced-renal-cell-carcinoma/article/261212/
-
Mdx 1106/ sutent trial 6 week scan results
FINALLY, some positive news!!! My scans were yesterday and my lung mets have decreased in size. I am so excited, it wasn't a remarkable decrease but I will sure tale it. My 1 mass was 4.7 x 3.6 and is now 3.9 x 3.1 and the other major one was 2.1 x 3.6 and now is 2.1 x 3.3 and my leg tumor was unchanged. God has been good…
-
Kidney and a Esophageal Cancer connection........
I recently read somewhere that people with RCC and other kidney cancers are at a higher risk for esophageal cancer later on. Not sure if this is meant as a 'metastatic' connection or something entirely new. I spoke to a friend today who told me this happened to his dad, but the cells weren't RCC in his esophagus, they were…
-
Rcc cancer now spread to brain lung and liver
My father was diagnosed in nov 2010 with kidney cancer... He had a full kidney removed and 1/3 of his other kidney.... One year later we where told he was cancer free.... Only to find out 4 months later that it had spread to his brain, lungs, liver and kidney linning on the side where there is no more kidney!!!! He…
-
Disability, Medicare and Advantage Plans
Just for those who don't already know this: If you have Stage 4 cancer (most simply defined as metastasized) you are not only eligible for getting your Social Security (through "disability") but they will fast-track it for you, no hassles, little paperwork, no questions asked (except of your doctor) and you will start…
-
Xeloda, Gemzar, and Avastin
Good morning! I found this site a couple of days ago when I was looking for other people that were experiencing the same side effects as my husband. It was then I realized that maybe he is one of the few people taking Xeloda, Gemzar, and Avastin for RCC! A little background: Last fall my husband became sick with his usual…
-
Nervous - review scheduled
As some you recall, after my surgery I felt my Path report was pretty good all things considering, large tumor and all. I was given my classification via phone as T3a N0 Mx - clear cell - grade 3 - negative margins - 12 cm extraction size Well I finally got a hard copy of my pathology report via postal service, and it…
-
Side Effects Threads
Hey Kids, Max Power mentioned that it would be great if doctors would give us a better idea of what side effects we might expect from various medications, so we don't have to Google everything to find out what's going on. Well today I was interested in learning more about splinter hemorrhages and why they form with…
-
High calcium
Has anyone here ever had a high calcium level? About two weeks ago my oncologist's nurse called me to tell me they wanted to recheck my calcium level. It had been 11 (should be no higher than 10, I think). I went on Monday, 12 days later and they called me today to tell me it is still too high,,,now 11.8. They said I need…
-
Member of the club now? :)
Can I officially count myself as a member of the club now? I had my surgery on 9/12 and it was an astounding success. My relatively small (2 cm) tumor was found to be malignant and I am in the process of healing now. The doctor personally called me to tell me that he felt superbly confident that the cancer is completely…
-
Random musings...Kidney Cancer vs. El Camino de Santiago?
I hope this doesn't sound too freaked up, but I've seriously been thinking about this lately and if you're as freaked up as I am you might even understand my demented mind. To be honest, I expected to die when I was diagnosed with cancer, but now that I haven't, I'm at a loss as to what to do with myself. My biggest goal…
-
First day on IMA901/Sunitinib vaccine trial
Finally after a month fighting with insurance company to approve his brain MRI, so he can get into the trial he is in :-) Insurance didn't pay, but the trial people found a sponsor and he got his CT's and MRI done. He just started on Sutent and in a month after randomization hopefully he gets the IMA901 vaccine. Four…
-
New Year
(Belated) New Year wishes and well over the Fast.
-
ACOR - how to join lists, such as KIDNEY-ONC, RARE CANCERS, CHROMOPHOBE-RCC, CANCER-DEPRESSION, C
1) FIND YOUR LIST: If you know the name of the mailing list you want to join, go to its webpage: listserv.acor.org/archives/LISTNAME.html FOR EXAMPLE -- listserv.acor.org/archives/kidney-onc.html When you get to the archives page, click the box on the right that says "Subscribe / Unsub / Options." (If you are unsure of the…
-
Oncocytoma
Hi everyone - You probably remember me - I posted a couple of weeks ago asking how long we could expect my husband to be in the hospital after his robotic partial nephrectomy. (He was released after two days.) I wanted to post to let you know the pathology report showed that my husband's tumor was benign! His urologist had…
-
Study says Grapefruit Juice does not hurt Sutent Users
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3043256/
-
Partial nephrectomy 5/12 continued complications-atlanta ga
Hello everyone, My father had a partial nephrectomy in May to robotically remove a mass that turned out to be cancerous. The tumor was deep in the kidney and it took 6 hours to complete. He came home with a jp drain. He ended up having to go back to the doctor to get a catheter. He has had to measure the output of both the…
-
What is safest treatment for 80 year old?
Any 80 year olds on any of the treatment for RCC? Just wondering what is more tolerable. I know everyone reacts differently but am wondering if there are any experiences out there...
-
quasi newbie
While this is my first post, I'm far from a stranger to this site.I am the quintessential " lurker".I am Alice's husband John.I am a criminal lawyer and get paid to talk (not write)for a living.Alice is far and away the better writer in the family.From time to time Alice calls upon me to explain certain things to her, such…
-
Solid kidney mass.
On 9/03/12 I had a CT scan due to severe abdominal pain. It showed a kidney mass and fluid in my pelvis. On 9/14/12 I had an ultrasound that confirmed the mass is solid and a little over 2cm. I go to a urologist in 2 days. What will happen at my appointment? My doctor told me there's about a 90% chance that solid kidney…
-
THE JOURNEY HOME
DANNY HAS MADE HIS JOURNEY HOME WITH JESUS. IT IS TOTALLY NOT THE SAME WITHOUT HIM NEVER WILL BE BUT I KNOW HE IS NOT SUFFERING ANYMORE. I FEEL EMPTY ALONE AND LOST BUT TIME THEY SAY WILL HEAL THE HURT, WE SHALL SEE. EVEN THOUGH DANNY LOST THIS BATTLE I SINCERELY HOPE EVERY ONE KEEPS FIGHTING THE FIGHT WITH CANCER. KEEP…
-
Child with Clear Cell Sarcoma of the Kidney
My daughter was diagnosed with Stage 2 Clear Cell Sarcoma of the Kidney at 8 months old. She is now 10 months old, has undergone a radical nephrectomy, radiation and is now in chemotherapy for 6 months. Given that this is such a rare form of cancer with poor prognosis, I was wondering if there was anyone out there that has…
-
BMS936558* Votrient trial (formerly MDX 1106) John's 18 week scan
John had his third CT scan on 9/12/12 since being on the MDX1106 (BMS936558)/Votrient trial. We received the RECIST (Response Evaluation Criteria In Solid Tumors) from the Radiologist this morning showing total shrinkage to date to be 46% (31% shrinkage first scan; 11% add’l. second scan; and 4% add’l. third scan). While…
-
First 6-month follow-up
Good morning everyone. I don't post a lot, but I follow the forum pretty regularly. I had my first follow-up x-rays and blood tests last week. The results are still dribbling in (pun intended). Blood counts are back to normal. It was my low hemoglobin that stated this whole journey (not being able to donate blood summer of…
-
Back in hospital 4 days after Chemo started??
My father was just diagnosed with metastatic transitional cell carcinoma of kidney. He received his first dose of Carboplatin/Gemzar on Monday. Went to ER last night with 101 temp, shortness of breath. Admitted with possible pneumonia and high potassium, low calcium. Is this from Chemo???
-
Good news
I have posted on other topics too regarding IL-2. My husband , 32 years old, was diagnosed with RCC stage IV to brain and lungs in march 2012. He had laproscopic surgery for kidney in April, then 2 sessions of cyber knife brain radiation and then 1st cycle of IL-2 in July. Yesterday he had 10 week scan after 1st round of…
-
1st Oncology visit
Today I have my first oncologist appt, hopefully he will be able to tell me what kind of ride it will be. My wife just has to go and hear it all first hand but I am one of those who doesn't like a peanut gallery. Is it normal to want to digest the news before you share it?
-
protocols for follow up testing
I've recently been looking for another Dr to handle my follow up testing. The Dr that did the surgery has only ordered an ultrasound and chest xray, which seems like a light follow up. My Full-Neph was 07/17/12 Stage 1 5.0 cm - right kidney Grade 1 Clear Margins NX I have been speaking with Urology/ Oncology dept's in a…
-
This is Awesome! Marijuana Stops spread of Cancer!!!
http://www.huffingtonpost.com/2012/09/19/marijuana-and-cancer_n_1898208.html?icid=maing-grid10|htmlws-main-bb|dl1|sec3_lnk1&pLid=207936 This has to be the cure! They gov't won't let this happen I am sure!
-
The waiting is the hardest part
Finally went to see anaethetist on 13/09/2012, thought that the operation would be imminent, only to be told that I was on the wait list for NOVEMBER. I can live with the fact that I have RCC (I think) but the wait for the operation is the hardest part. Quite frankly I am terrified of the whole procedure. It is only the…