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Investigatory modalities
To Jeff, in particular:- your thoughts on the following would be appreciated - interpretation, significance, follow-up etc. and, in particular what types of scan, or other investigation you think might be sensible. Clinical History: Right nephrectomy for high grade sarcomatoid T4 renal cell carcinoma. Level 4 follow-up.…
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Clinical trial BMS936558 (MPDL3280A)(MDX1106)--you know, the anti-PDL1 drug!
I am very excited to tell everyone I am going to Nashville to see about a clinical trial with the wonder drug...BMS936558 (also know as Fox's MDX1106). Got the call yesterday to come to sign some release forms in Nashville at 8:45 on Friday morning. They got all my records and I will be talking to a doctor about all the…
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The war rages on, but a battle is won (Good news)
Hello, friends. Today I had my first CT scan since starting on Sutent (2 cycles). (Background - 42yo male, Stage 4/Grade 4 mRCC to lungs, thoracic spine, rt kidney. Radical neph on left kidney/adrenal 5/25/12). Here's the update, and quotes are lifted directly from the scan report. "Significant improvement" of the lung…
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Anyone with transitional cell cancer of kidney?? Help!
My father was just diagnosed last week with transitional cell carcinoma of the renal pelvis that has metastasized to the liver. He starts chemotherapy today. Would like to hear from anyone who has experienced this. Thank you.
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2 weeks post op
Had Doc appt Friday for 2 week follow up after surgery. Noticed every time I ate something my stomach would pouch out, uncomfortable at times, and could only eat about 4 ounces at a time. I told Doc he must have done some bariatric surgery too LOL. But , now I have to have a CT Scan of abdomen sometime this next week. He…
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Am I translating these pathology statements correctly?
Reading my pathology report (and pretty much googling every word to try and understand what they reported.) there are two items I am not sure if i understand (and yes the doctors will be asked). 1)"Tumor shows extension into fat of renal hilum and multiple areas of invasion into vessels some of which contain smooth muscle…
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Sorta new to this roller coaster and new to CSN
Hello everyone. I have been lurking this board on and off over the last three months or so and decided to sign up. Not sure what to post so I figure I an start with my story though not unlike the others I have read. Well this all began for me back in December when I started with the flank pain. I am not one who enjoys…
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First Post
Hello all. Although this is my first post, I have been aware of CSN and all that we do for each other. Last year, I became a caregiver for my twin sister as she was battling with colon cancer (she was an avid member of CSN). I was able to bring her to my house to take care of her as her cancer went exponential. She passed…
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radiation
Had my first radiation on my rib this afternoon. 4 more next week then 3 on my spine. NTI. nothing to it. Now my question is ,"Has anyone else had radiation?" I don't know if this has come up. Now I want to know the results others have experienced.
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Husband with Stage IV RCC
Hello, My husband was diagnosed with Stage IV RCC (clear cell) the first week of August 2012. After experiencing what we were told was a "minor" stroke his symptoms worsened and a CT showed lesions in his brain and spots on his lungs. Subsequent scans showed he has a large mass on his right kidney, mets in the brain,…
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Only sonogram identification of tumor
Hey guys, the doc found a lump in a routine physical and ordered a sonogram where he has identified a tumor on my right kidney. The only fear I have is the unknown, I am probably reacting prematurely but like probably all of you waiting on the news as MRI's are done is all consuming. According to the initial conference I…
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IL_2.....5 doses down....
Hey everyone. I started treatment Monday night. I've had 5 doses, so I'm one third of the way there. So far, I'm feeling good. The first night was rough after I got the interferon shot. I got a high fever and chills. By morning I was fine though. I've eaten 3 meals a day, no nausea yet. really hoping this lasts. We'll…
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Current plans with radiation
....Damn, I just lost a half hour of typing. I was so eloquent too. Excellent Star Trek references. Can't do it twice. Met with my Dr. today to finalize my plans for radiation to my rib and T6 spine.... I have had fantastic results from MDX-1106. It has devoured more tumors than anyone should ever get. Only a couple left…
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Question for Med Scanman
Hi Scanman my question concearns the advantages of PET scans over MRIs or CT scans without contrast since most of the members here have comprimised kidney function and because of this we are not givem contrast.Now i could be way off here but think i rememeber when i had my PET scan i was injected with what i think was…
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Six month scanxiety
I go for my six month post op scan this Thursday. I'm having a MRI because my doctor doesn't like CT scans and I didn't want a ultrasound. Didn't want an ultrasound because they missed the kidney cancer last time. So I'm happy for the MRI. Well I've been doing fine and now I'm starting to get scanxiety. I guess because my…
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I am happy to report, 2 1/2 months post surgery, my energy is back
I had been feeling more energetic each day, but had been getting really tired by Friday, and spent the weekend resting up. This past friday, I was feeling pretty good, after a busy (but holiday shortened) week. And this weekend, we actually did things: Company picnic all day Sat, and took my 10 yo to a baseball game…
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Questions about metastatic urothelial cancer (transitional) of kidney - Help
My father was just diagnosed Thursday with urothelial metastatic cancer of kidney. We meet with oncologist on Friday to discuss treatment. I am reaching out to anyone who has been diagnosed with this. We are still in shock. He is 74 and has had chronic kidney stones/infections since his early 20's. He has had hematuria off…
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Survivor Guilt.
Does anyone ever have survivor guilt? I am 28 and had a right partial nepherotomy in January, grade one and two cancer. It has been a long road to normal life, but I have been trying to take life and live every day. Had been doing great and just feel like my new position at work has set me into a crying mess every night. I…
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#Istandupfor cancer fighters everywhere
Today we celebrate all of the cancer fighters in the world. Bravo!! Stand Up 2 Cancer!
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new flank pain 12 yrs out
Hello all, I had my left kidney remove via laproscopic surgery in 2000 at age 30, stage 1-2 RCC. Over the years since the surgery, from time to time, but not often, I have had some dull pain in the flank area where the kidney was removed. The past 6 or 8 weeks the pain is more frequent especially after a phisically active…
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26 years old with Rcc
I am the caregiver of my brother who is only 26 years old ,he has been diagnosed with Rcc July 2012 ,his Right kidney has been removed August 2012 the path came as: Diagnosis: Right kidney, radical laparoscopic nephrectomy + para-caval tissue biopsy: Conventional Clear Cell Carcinoma Tumor size : 5.2 cm Furman unclear…
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Another Newbie
Hi everyone - I wanted to post to say I've read many of your posts over the last few weeks and they have really helped to understand this diagnosis and give us piece of mind that this is hopefully just a "bump" in the road. I am not the patient - I am the caregiver. My husband, age 56, was diagnosed with a 1.5cm mass on…
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Pathology and Follow-up Appointment with Surgeon
I went to my post-op appointment today. Doctor was confident that the cancer is gone. He referred me to a nephrologist and said that I will have blood work and urinalysis every three months for the next two years. Said he will throw in a few chest x-rays and a ct scan during the two years as well. Good report. I asked him…
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Path report back
I got Pathology report back today. It was renal cell stage 1 grade 2. Which is wonderful. Scan in 6 months. I am very happy tonight to report this to you. I would say more but still with nausea. That will get better too. Thanks
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Two cancers
Hi! I'm new here. Been searching online for anyone who has/ is going thru multiple cancers. Almost 2 years ago I had a melanoma removed. I got over that easily. I figured it was a one-off, you know? Other than a big old scar that reminds me, I didn't spend much time worrying about it. Then last spring they found kidney…
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Surgery is over and now recuperating
Hi, I am finally back on here to let you know how im doing. Had surgery Aug. 28 and came home friday Aug 31. Surgery for Lap partial neph is over and i am doing good I think. Been having a battle with nausea for several days, just drinking fluids and trying to stay hydrated. Have not got path report back yet should be…
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Thyroid Ultrasound
I will be going in the next few weeks to see if the nodules in my thyroid have enlarged enough to biopsy and I am very nervous. I was diagnosed with stage 1 grade 2 chromophobe this year and had a partial nephrectomy. I see on here where people keep saying that it is rare for this cancer to return, but I also see where…
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Just an Update...
Sorry I've been away for a few weeks. I'll try to stay in touch better. First, my stats: Male, 42, father of 2 girls, 7 and 11, and husband to 1 wife. Diagnosed 4/12 mRCC with mets in lungs, rt kidney and along the spine. Radical nephrectomy 5/25/12 included left kidney, adrenal gland, several lymph nodes and a slice of my…
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Pazopanib
Can anyone tell me their experience with Pazopanib? I'm part of a adjuvant trial group and I'd like to know if this has helped anyone. Ben
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2 Surgeries==> then IL-2 ==> now Votrient/Pazopanib
Hello All, The Onc told me the Interleukin did not work (although I am inclined to disagree), so we are moving on to Votrient. The last MRI before the IL-2 was done in February 2012, and the two rounds of IL-2 were done in June, and July. The MRI/PET scan performed after the IL-2 treatment showed slight increase, but I…