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Kidney Cancer

Archives for February 2012

Whom to tell?
Hi everyone, I'm new here as well. 4 weeks ago a CT scan & MRI revealed a 1.9 cm mass on my upper left kidney. 2 weeks ago I had a Da Vinci laparoscopic partial nephrectomy. Biopsy revealed Stage 1 Grade 2 cancer. It all happened so fast that I am just now starting to process the cancer diagnosis (they thought it was…
nexavar side effects starting
I was really happy, until this morning. After not being able to tolerate Votrient, made liver enzinmes go up, I started on Nexavar. So encouraged, after over 2 weeks, no side effects. However, this morning I woke up itching, and with red swollen hands with small blisters. Has anyone had this happen, and do the side effects…
Newbie just diagnosed 2/27
Hello, crazy things happening this year. Just turned 36 two months ago and I'm getting married in two months from now (5/5/12)to a wonderful woman. After going to my doctor for what I thought was a sports related injury to my ribs, I found out after the ultrasound and MRI that I have a 20cm mass Renal cell carcinoma. Just…
sleeling pills/ cold meds/ forks over knives.
I have been a insomniac most of my 28 years, seriously I never slept as a baby and now I cant sleep unless I take benadlry or ambien. I has stopped taking it right before and after surgery, but since I am at week 6 thur from surgery, and will be going back to work on Saturday I know I have to take the ambien again. Has…
Stiffness 6 months after surgery
Hi all, It's my first time posting but I have been reading the posts regularly and it really helps to know others are out there dealing with the same things I have to dealing with. Here's the story, I'm 31y/o male and I had a partial laproscopic right nephrectomy on Sept 1,2011. I had a 5.5cm hilar renal cell carcinoma.…
Sutent question
I've been on Sutent for 2 1/2 weeks - side effects have nasty - but I've been determined to get through this. My question is, has anyone experienced their blood pressure drop dangerously on this? I've had high blood pressure since I was 19 years old and on meds since then. My doctors told me to check my BP twice daily so…
Mucinous tubular spindle RCC thats are brand
Finally got classified by Dr Reuter at MSK. Up until know we had no idea what we had. So there you have it. Unlikely we will find a soul with the same variant but I am hopeful!!
latest dilemma
So...I've kept this to myself believing it would go away by now, and hopefully it's nothing. On Wednesday morning while in the shower I found a pea sized lump in my armpit. It's hard, not really painful unless I push on it, and even then its pretty insignificant pain. I hope it's nothing but I can't stop wondering if it…
Need info or advice please reguarding a new type of cancer post Kidney Cancer
I am a 39 yo female who at the age of 28 was diagnoised with Renal Cancer. I have a very hard time "trusting" our imaging process. I was having pain, severe back pain, blood in urine and thought I was having a kidney stone. I had had many, many of these over the years and ALL the same symptoms. After an US, MRI and 2 CT…
waiting almost over
I'm back with good news the ultrasound didn't show any problems with the liver. Now I just need surgery date for kidney and I will be on the road to cancer free. I am grateful for all the support and encouragement I have gotten from this site My prayers are with you all.
Ionized water - Alternative Cancer Treatments?
For most of early stage kidney cancer patients, we are just told to follow 6mon or yearly scan after the surgery. I am wondering whether anyone has information on alternative cancer treatment. Many researches have shown that an acidic body has high risk of having cancer. Does anyone have experience with using ionized water?
Are there blood tests that anyone have to monitor anything else beside Creatinine levels?
The only bloodwork I've been having is Creatinine, and it's mainly just before any CTs or MRIs - and it's to make sure my kidneys are going to deal with the contrast. Is there any one out there having any tests that might indicate whether something else is going on? I was looking at a lab order and it had something about…
feeling sick after contrast/ct scan
I had my CT scan today and my stomach has been on fire, gurgling horribly (over 7 hours now ), and I am very nauseous. This is my fifth CT scan and I have never felt like this before. I keep trying to drink more water but everything tastes like metal. Has anyone else experienced feeling ill after contrast? I had both…
10 Days until my partial open nephrectomy- and I'm scared...
Hello- I am a 35 yr old single mom (actually an only parent, his dad is not a part of our lives). I have my open partial nephrectomy March 2nd at OSU James in Columbus, OH. Saying that I am scared is an understatment... As with most of you on here my renal mass was found by mistake on an MRI of my bulging discs in my lower…
Wish I Were The Last Newbie On This Board
Everyone: I have been following this Board for the past month after a 6-7cm mass was discovered on my right kidney during an ultrasound. I have since met with two Urologists for their opinions. The positive news thus far is that my MRI and CT scans indicate that while the mass is likely RCC, it appears encapsulated and…
more waiting
Hello well I am starting to be really on edge. I went in for my ct for the kidney and to check PSA from prostate surgery, and low and behold we now have to do test for the liver saw something in ct scan that concerned them, today I did an ultrasound . Now I wait for answers. My beautiful wife is at wits end but trying to…
stage 4 mestatic renal cell cancer
i was diagonose with stage 4 renal cell dec 2011 had kidney removed jan 2012 started chemo with sutent 1 week ago i have it in both lungs they are sayin numerous nimerous numerous cells have it in the lymp nodes live and small cell tissue they say i have around 1 year or so but has anyone beat this cancer at this stage of…
Yet another newbie
As is usually the case, a tumor on my left kidney was accidentally found after a spinal MRI. It's huge: suspected 8.5 cm. I battled breast cancer 3 yrs ago, but my oncologist believes the kidney cancer is a new primary. Surgery for removal of my left kidney is Feb 27th by laparoscopy. Those of you who have been through…
Another Newbie with a question
Hi all! I was diagnosed Jan 9th 2012 with RCC. 7.5cm Tumor on left kidney. Very similar story, went to Dr. for what I thought was food poisoning, and found out by accident on abdominal CT. I had a robotic radical Feb 6th. I am now two weeks post-op. I am doing pretty good considering everything with one exception. I have…
Has anyone had their spleen involved?
Hello all, I am two and a half weeks out from my left nephrectomy. My spleen had an infarct with a clot in it's artery, and the artery was removed, because it was feeding blood to the tumor. Has anyone else had any spleen involvement? My tumor was obviously growing out of the upper lobe, T3,N0, M0.
New member (unfortunately)
Hello, Unfortunately, I am a new member of this group. Last Thursday, I was diagnosed with RCC. It was an incidental find while looking for a reason for low blood iron. The final follow-up was a CT scan last Thursday morning. When I had a call from the Dr by noon to come in for a visit that afternoon, I knew things were…
Was an effected lymph node or nodes always found before mets was diagnosed?
I was wondering if an effected lymph node was discovered before a metastasis was diagnosed in anyone's experience with RCC? I do remember seeing one post where it was mentioned "the doctors at Dana Farber were puzzled" as there was no sign of impacted lymph nodes.
Recorded workshops by Cancer Care
Many folks here are well clued-up on kidney cancer but it's a big subject and not everyone knows it all so I hope the link below will contain info. of value to at least some members here. I found it valuable. It's a one hour workshop titled "The Challenges of Coping with Cancer and Other Health Problems" with a panel of 4…
info sharing
Got some info at our country. http://cancercaremalaysia.com/2011/09/18/kidney-cancer-a-success-story-fifteen-years-on-herbs-and-doing-great/
Drinking, as in booze
So its been 28 days since my surgery. I am doing well I would say. Wounds are all healed up, I can do most of my normal activities. Walking around the mall and on the treadmill. Noticed I cant eat large meals cuz when I get full I get uncomfortable, like it pushes on the kidney. Anyone notice that too? After walking all…
Can I donate my Grandfather's Sutent?
My Grandfather passed away in Oct. of this last year, and I have several months supply of unopened sutent. I hate to throw it out as I know how expensive it can be. I there any way I can donate this medicine, and how would I go about doing so?
Counterfeit Avastin
Big story today: http://abcnews.go.com/Health/CancerPreventionAndTreatment/cancer-patients-furious-counterfeit-avastin/story?id=15629540
scan
I have pushed up my scan and follow up appt to the 21st and 29th today and it just dawned on me that it is next week. All of my scans have always been with contrast-should this concern me? I don't have labs until my follow up with my oncologist on the 29th. I've never been told my labs have had any issues. I've had to move…
new member - votrient and nexavar use
Hi I would like to hear experiences from others who tried to take Votrient and could not take because of elevated liver tests. Now starting Nexavar. I have RCC. Thanks
nexavar
Hi Can anyone tell me about their experience with Nexavar. The UPS truck is bringing mine today. I have read about side effects, and wonder what occurs most often, and ways to help control them. Thanks

Kidney Cancer

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