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new member / SORCE
Hi. I'd a 4.5cm tumour, incidentally discovered, removed thru robotic lap radical nephrectomy six weeks ago. Recovering very well. Path rpt: clear cell rcc; margins clear; cancer limited to kidney (pT1b); Furhman grade 3. I'm eligible to participate in a trial known as SORCE but am indecisive. I would be most grateful to…
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HAPPY VALENTINES DAY !<3 <3 <3
Hope u all had a great day. Godbless Nicole. <3
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Why me
Hi if we knew the answer to this some body would be a millionaire, When I asked the surgion how old my tumors was he said it could of been a long time growing, he then said it could be as little as 4 years growth, I had been taking 1/2 an asprin every morning for the last 5 years, and I had also been taking 1000mg of…
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advice
Hi All, What role does stress play in our health? How do you think a job change and relocation would affect us? My reason is that since my diagnosis I have been thinking about moving back to California to be near my first grandchild who was born in August. I moved to Nevada about 7 years ago while my daughter was away in…
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forum question
This is from a computer dummy to people smarter than me. Can someone explain the section to the left below the cancer.org in blue? Currently says, " incision question,being bad, etc. Below it are the names of GaryM, Texas wedge and cww71964. Thanks, Fox.
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What about tumor necrosis
Ok here I go again,sometimes I think I am a little obsessed with researching my cancer but then again I always seem to come up with something new that while I think can be helpful in my pursuit of many years of NED.My question has to do with a condition found in 30 percent of all RCC tumors refered to as Tumor…
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incision question
Hi All, In will be 4 weeks post op on Tuesday. I had a lap procedure so I have 3 small incisions, inch or so, and one large one. They have all healed ok but in the last day or so, one of the small ones has gotten a little tender. It feels hard underneath and around the incision and the skin looks a little bruised. Is this…
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A question for ladies only (trust me on this, guys)
Has anyone had trouble with urinary incontinence after surgery? I realize I am getting older (43 is still young though, right!?) and had three babies, so some of this just goes with the territory. BUT, since I had my surgery in July, it really seems to be worse. Maybe the couple of days on the catheter caused a change??…
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Pazopanib trial for recurrence prevention
I am new to this site. I have just enrolled in the phase 3 pazopanib trial for recurrence prevention. I had a radical nephrectomy in Dec 2011 (stage 3). I would be interested in sharing experiences with any other trial participants.
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radical nephrectomy of the left kidney 11-18-2011
My wife had a radical nephrectomy of the left kidney and a blood clot removed from her vena cava 3 1/2 months ago. The clot was just about up to her liver (hepatic vein). It is stage t3b clear cell rcc with no lymph node and ivc wall invasion. We were very lucky we found it in time (accidently..she developed a cough and…
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MDX-1106 part 2
cWelcome to part 2. It should be faster to share info here. The last thread got too long. Texas Wedge asked me to review the criteria for getting into the MDX trial. First of all it is for metastatic clear cell carcinoma only. It requires a biopsy for confirmation. I have become aware that only 80 subjects are expected to…
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being bad
My first week back to work went very well despite the fact I came down with a cold last Sunday before starting back on Monday. My wife and kids have all been sick on and off the 3 weeks I was off and I avoided getting it until before I start back to work, just my luck. Good news is that my immune system worked overtime and…
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Has anyone seen my waistline?
Nope, me either. LOL I'm nearly 7 months post-op. Will this beautiful, huge bulge on my side ever go away? I'm thinking no. Oh well, I'll consider it my battle scar if it doesn't. From a vanity point of view, I look a little lopsided now. I didn't plan on doing any Sports Illustrated swimsuit covers anytime soon, though,…
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3 year trials,
Hi its Boomersdad here (Errol)I went for my checkup Yesterday 4 weeks after Kidney and 7cm cancer removel, I thought it was a check up but reading between the lines it was more like another doctor trying to get me on a 3 year trial course of SORAFENIB But I have gone on line today to check out a lot more info on the…
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Big decision
Hello Everyone, I hope someone can advise me please. I have had a 2.5cm tumor under surveillance for the past 18 months.I had my last CT scan last week which shows that it has not grown. As I see my specialist on Monday, should I tell him to remove my kidney or just keep up with the watching and waiting. It worries me that…
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Avastin Treatment
My father was recently diagnosed with Stage 4 Renal Cancer. In a short time it spread to several parts of his body. His cancer is extremely aggressive. He has only had two types of treatment that the doctor will do for him. The first one was Torisel but he had bad reactions to it. Now, the doctors are going to use avastin.…
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New (scared) member
I am 29 yrs old female and in December I was diagnosed with kidney cancer. On 1/13/2012 I had a partial Nephrectomy of my left Kidney. Along with part of my Kidney, 1 rib was removed. My recovery has been okay, I get feverish feeling, and sick to my stomach, and of course I am hurting but I am heeling well. When I went to…
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Pseudoaneurysm inside kidney?
Since my partial nephrectomy the kidney has been leaking urine. See 'my emotional time of year to begin with' post for details. Now When i walk I get blood in my foley. So though not likely they have to check for a Pseudoaneurysm inside kidney. Least likely cause but would make sense, explaining why I bleed into urine upon…
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Abdominal Bloating and Gas
David is now 5 weeks Post Op from a radical Nephrectomy, removed a 10 .5 cm clear cell rcc tumor and adrenal gland. He is still having major issues with gas and bloating. Our Urologist told him that it will be a while before his digestive tract gets back into rythm. He's been taking Ultra Gas X, He is still taking Vicodin…
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new member/open radical nephrectomy/chromophobe
Hi and happy to join this group,I am Chinese from Malaysia,40 got lovely wife and 6 year child,my story is at 19/12/2011 company call me to hospital doing a full medical checkup and incidently find out got tumour at left side kidney,I didt have any symton, go back to my history is at 30 year old my is 110kg and I starts…
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Changes to diet after surgery
The doc got all the cancer out and at the follow up said live life like it never happened. He said I was doing great and since I was so young had only about a 6% chance of it coming back. I asked if advil was okay, wine, all of it and said yes. Said I didnt need to make any changes. Does everyone get this response? What…
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THE GRAPEFRUIT EFFECT
Since I joined the forum, a few weeks ago, I've asked numerous questions. Some have met with helpful/informative/amusing answers but quite a few have been left hanging in the air. Of the latter, there is one on a topic I believe to be so important that I feel I should flag it again. In my first ever posting here, on 29th…
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Partial Nephrectomy with complications
On January 5 I went into the operating room for a partial nephrectomy to remove a 3cm tumor from my right kidney. During the surgery I hemoraged and ended up having an open surgery with removal of my entire kidney. I was in the hospital for 7 days. Needed 6 pints of blood and 32 staples to close. I went through a lot but I…
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Post surgery weirdness
Hey all, I'm at the 5 week post surgery point... Feeling pretty good, but my left insides kinda feel like a brick (heavy/weird) every now and then throughout the day. I assume this is just the healing process??? (The doc removed a 3.5 cm mass from my left kidney). I feel pretty good otherwise. The doc has cleared me to…
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Big time error in my post
OOps - I dropped a decade!! In my recent newcomers post I referred to my being cancer free since 2006. No one should know better than I that the "miracle" occurred back in 1996. I am happy to say that this was the only lie I told that day and I shall endeavor to pay a bit better attention when chronicling events…
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First follow-up - checklist of questions
Big day for me tomorrow. I've been trying to prepare my Wife for the possibility of a sobering pathology report and the ramifications therefrom. At the same time she has been trying to alert me to the probable exiguousness of information that our esteemed National Health Service is likely to vouchsafe to us. She has a…
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1st follow up appt, best news ever!
Today I had my first follow up post surgery. The grade of the RCC was one and two. Clear margins, all of the tumor was removed from the kidney. The kidney is functioning better then it was before surgery! Before the cretin? not sure if that is the right term he used, was .60, day after surgery .69, now it is .55. We caught…
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Hello Everyone, New Member Here...
Hi, my name is Gerald White, and I would like to introduce myself. I want to reach out to you, all my fellow patients by the way of "My Story" that I just put up under the name of gwhite. Since achieving my "miracle" remission back in 2006, it has been my honor and privilege to devote my life to a pro bono program of…
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Guided imagery
Jerry White has asked me to draw attention to the fact that he has now joined us. He has put up a page here simply as gwhite. To say he is a soldier in this cause would be unjust - a 5-star general would seem a better description. I've lately discovered that, in the grand tradition of creative scientists, he is a man of…
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which one predominent
I am getting closer to follow up but more questions develop. I am know wondering if the kidney cancer is related to the cancer of the prostate or Vice Versa? Can they both be seperate or are they linked? I will try to get my head straight before I see the doc in two weeks. Just for info I was dx in Oct with the…