Kidney Cancer
Discussion List
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Xp11.2/TFE3 Gene Fusion Renal Cell Carcinoma Help!
Hello all, I posted before under 17 year old daughter. We finally got the pathology back on her tumor (removed with her right kidney on Oct. 15) and this is what they have diagnosed her with. She is preliminarily staged at T2 NxMx. So, I think until we get to an oncologist, we won't know further if it has spread or not.…
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renal diet
Waiting for surger to remove kidney . A nurse friend askled if I had been put on a renal diet but as a nurse she could't explain. Said my doctor had to. I can't wait for this information. Need to know now. Please advise.;
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Long time survivor
My husband was first diagnosed with kidney cancer in 1994 at age 31. He had one kidney removed along with the adrenal gland. A few years later he had another part of his adrenal gland removed. Then he got Lymphoma which was totally unrelated. Survived that. He has had recent bouts of nodules found in the lungs and the…
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given stage 3b TODAY what does that mean??Please help
My husband had a nephrectomy on Monday. He had 2 tumors, one was 3 cm and the other was 6, We were told probable stage 2. The surgeon (very good doctor) said he thought he got it all, but we'll wait till the path report, which we got today.The tumors were encapsulated but tonight we found that there was some tumor INSIDE…
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17 year old girl with unclassified renal cancer stage II need help!
Hi, my 17 year old daughter just had open radical surgery to remove a 13 cm tumor & right kidney, well what was left of the kidney last thursday. She came home this past monday. We were told yesterday by the pathologist at Ceder Sanai in Los Angeles that she has an unclassified renal cell carcinoma that is very rare, they…
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Renal Cell Patient on Torisel
I have a friend who is a renal cell patient and she is currently taking torisel and was looking for someone to talk with who is dealing with the same diagnosis. Any suggestions? Thanks Littletenie
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Nervous and Scared
I was diagnosed with kidney cancer in April 2009 and I had a partial nephrectomy on my left kidney. I am going to get a follow up CT scan next week and I am nervous. I'm not sure what to expect. Lately I have had a pain in my lower left back and I'm afraid it has something to do with my kidney. I am only 30 years old and I…
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EXTREAMLY CONFUSED!!
Hi my name is Angela and my mother has been diagnosed with Kidney Cancer. She went in for a urine test for a new medication and they found blood. Well she had a sonogram and then another urine test. A week later she had a CT and today (a week from the CT) she has had a MRI. She talked to the surgeon on Wed of last week and…
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Symptoms
Hi everyone! I am a 6 year survivor of RCC. I had a radical nephrectomy in July 2003. At the time of diagnosis, my only symptom was blood in my urine by testing, not visible. My first CT scan showed nothing. The following year, a mass showed on ultrasound. My concern is this. I recently saw my nephrologist to check my…
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Kidney cancer but having pain on the other side also?
I am recently diagnosed and wanted to know if anyone had pain on their unaffected side. My scans turned out OK for the "good" side. Needless to say I am worried. I am not getting much response from my doctor. I still am waiting for my specialist appointment and am wondering if I should investigate this pain further. Thanks…
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Ibuprophen and bad kidneys
I just wanted to ask any of you about your thoughts on using ibuprophen after being diagnosed with kidney cancer. I am having pain and thats what my General doctor has advised me to take. I am hearing that this is a bad idea? If I shouldn't take this what should I take? I am still waiting to talk to a specialist. Thanks…
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New kidney cancer, I need some advice!
Hello everyone! I am a 52 year old male who has just been diagnosed with a 4cm solid Rt. kidney tumor. I believe now that I have been mis-diagnosed for 5 years, having symptoms of back pain. Of course I am quite worried. I live in northern Illinois and was wondering if anyone has a recommendation for a specialist in my…