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Head and Neck Cancer

Archives for August 2023

Sharing Summer Pictures With Everyone
Summer is winding down quickly and we will be heading into fall soon. I took some pictures over the summer and would like to share some of God's Great Blessings and creations with others. I apologize if there is some repetition. I am sure many of you have wonderful pictures yourself so feel free to add on to this posting…
De-intensification Clinical Trial
Hello everyone! Thank you all for posting your journey lessons, insights, experiences, etc. I feel like I've read them all since I joined you as a cancer patient. I begin treatment after surgery in a couple of days as part of a clinical study. Your posts have been so meaningful to us that I hope that by doing the same I…
Drivingdaisy (Lisa) A Dear Member And Friend Of Our H&N Group Has Passed
It is with great sorrow that I bring this news to the Head & Neck group. Not being able to contact her for a while a couple of the members were trying to find out about her and make contact. After getting some new possible contact information I made a phone call and left a message and soon received a text containing news I…
Recurrence / double radiation
So it’s been a LONG time since I posted, but as a search for the NAVdx on Google brought me back and I thought I would update my story. BTW I am a huge proponent of the NAVdx and trust it more than a PET or CT scan for HPV cancer. I was originally diagnosed in October 2020 with tonsil cancer with one lymph node involved,…
start treatment
Getting ready to start radiation and chemo . Got fitted for the mask yesterday. My how things have changed since 2014. Back then they did not cover your face but left eyes ,nose and mouth out. I am worried I will have a panic attack. My neice says that is what Zanex is for. I will talk to the Dr.about it. I thought I read…
Update: Husband’s NavDx Test Result Pre-Treatment
Hi Again, I posted a few weeks ago we went down to NW-Chicago for a second opinion on my husband’s Stage I base of tongue (left side 1.2 cm on PET 7/19) and 2 involved left lymph nodes so all on left. HPV+ 16 from biopsy. The only reason we made the 2 hr one way drive down was to find out more about their Proton radiation…
Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
Dysphasia after TORS and Neck Dissection
It’s been a month after TORS and neck dissection and I have a sore jaw, mucus, feels like there is a string in my throat constantly, food gets stuck in throat, etc. Anyone else have these symptoms? Does it get better or is this my new norm? I haven’t started radiation yet and can’t eat a hot dog. My jaw gets too sore and…
Backsliding
Backsliding. I'm 60 days post treatment. I was doing good a couple weeks ago, or so I thought. Getting a little body weight exercises and yoga done, walking the dogs... This past week, and especially today, the exhaustion, and the loss of balance, it feels like it did after a week of treatment. I know some of the…
Devastated and confused
I'm a 62 yr old female and was recently diagnosed with tongue cancer. I will be having a total glossectomy Sept 5, followed by radiation. My drs have said it's likely I will have a trach and feeding tube the rest of my life. I'm devastated because at this point in our lives my husband and I thought we would be selecting an…
Tumor size differs between MRI, CT and PET
My p16 scc tonsil tumor shows in different sizes in different scans. CT showed its 3.7cm. PET showed its 3cm and the recent MRI shows it’s 2.7cm. Anyone experienced this? Which one of these is more accurate?
TEP
Hi, my name is Roger. I have had 2 battles with throat cancer, The first in 2014 and I had 35 radiation and 2 chemo treatments. The cancer returned last year and I had a total laryngectomy on Nov.22,2022.Things have went very well but I get frustrated communicating. I use an electrolarynx and a small white board primarily.…
Our Journey to NW in Chicago on Tuesday
Here's what we found out Tuesday at Northwestern in Chicago. Saw all 3 tumor board drs: Surgical, Hem/Onc and Rad Onc last. Very impressed by all 3. No surgery in hubbie's future per both our local hospital in Milwaukee and there. Told us even though it's small (1.4 cm) base of tongue with 2 lymph nodes on same side, the…
Mskcc 30gy then 40gy
Anyone gone through the lower dose radiation at MSKCC? 30gy first over both sides of neck + 40gy to tumors. So the tumors still get 70gy, but the side effects on other side is greatly reduced as they say. Anyone gone through this along with chemo? If so, what’s the success rate?
Radiation and Chemotherapy Mucositis
Dr. Anurag Singh is a Professor of Oncology and Director of Radiation Research, the Department of Radiation Medicine at Roswell Park Comprehensive Cancer Center. His areas of expertise are breast cancer, head and neck cancer, lung cancer, ... Anurag Singh, MD, has one important message. When you see one of his patients…
City of Hope Scientists Develop Targeted Chemotherapy
For those that like to know what is being developed in the future for cancer treatment. The City of Hope-developed investigational small molecule selectively disrupts DNA replication and repair in cancer cells, leaving healthy cells unaffected, a new study reports. Take Care, May God Bless & Watch Over You Russ
Standard therapy vs de-escalated therapy vs Clinical trial
Friends, I have been recently diagnosed with SCC tonsil (right) with p16 positive. There are multiple enlarged lymph nodes on the same side with largest being 3.7cm seems to be a conglomerate of 2 nodes. Recent CT also showed enlargement in left tonsil and few lymph nodes on left as well. They lit up in Pet too, but my…
TORS and Neck Dissection without any Radiation and/or Chemo
T2N1M0 - still waiting on pathology but my surgeon told me one of the reasons he was recommending TORS and neck dissection versus chemo and radiation was there may be a chance if just completing this with the surgery. I have been scouring this discussion board and haven’t seen anyone that has done this tratent alone.…
Burn Relief?
Hello, my father has completed 19 of 33 rad treatments. He started getting some burns earlier this week that have progressively gotten worse. The doctor prescribed a burn cream but, unfortunately, that made things worse likely due to a sulfa allergy. He was prescribed another cream to try and will be doing some Domeboro…
Fasting and Cancer.. check it out
I have gotten a few questions about a link I posted that covered research showing fasting 24 hrs prior to and after chemo with platinum-based chemos (i.e. Cisplatin, etc.) has some positive effects. Here is another link to an interesting take on fasting and cancer... turns out, this is a two-part series on YouTube that I…

Head and Neck Cancer

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