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Head and Neck Cancer

Archives for October 2022

New here … tonsil and lymph node
Hi everyone , Seems this more common then I knew , I too am positive for HPV . Started in the tonsil and months of doctors giving me antibiotics after antibiotics… now I’m faced with this and to be honest I’m a bit freaked about getting the feeding tube .. which when the asked I said “yes”. I haven’t started any treatment…
Swallowing issues
Hello everyone. I was diagnosed with HPV throat cancer and have recently completed 34 radiation treatments and 7 chemo treatments. I’m almost 5 weeks out of treatment. Over the last couple of weeks I have started having some swallowing problems. Liquid tries to go up my nose when swallowing and having trouble swallowing…
Laryngectomy
I am about to undergo surgery for a full laryngectomy and am interested in connecting with others who have had this surgery and cancer of the larynx. Gracias!
G tube or no G tube?
Hello all - it has been a while since I posted. My husband is currently in treatment for squamous cell carcinoma of unknown primary (found in RT lymph node). He is 3.5 weeks in (17 of 30 rads complete) and 4 of 6 chemo treatments completed. He hasn’t really been able to eat much for a week now. I can barely get him to…
Help with nutrition to get rid of the G tube
I am finished with my radiation treatments and still have my G tube for nutrition. It has been 3 weeks since my last treatment and I am slowly getting taste back....just sweet on the tip of the tongue. I have experimented with a few things which didn't end up well. I have found out that I can eat scrambled eggs, with a…
Just Diagnosed - SQUAMOUS CELL CARCINOMA - Tonsil
I had covid back in January of 2022 right after I had facial paralysis then noticed a lump in my neck all within 3 months Jan-April. Went to E.R. for facial paralysis. They said it wasnt stroke. Ran CT Scan on me with dye, didnt see anything. Face returned to normal within few weeks. Doctor said the lump in my neck was…
And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
Larynginal cancer , after 35 radiation treatments ---- when's the pain stop
So 48 and lost my voice last November , fast Fwd April and I find out ! Months of my ears ringing like a dog whistle just stoped , n a week later the residual pain came , w vengeance , 35 radiation treatments n that all hit me , tired sickly melted throat , went from 175# to 138# ! First 3 weeks were the worst .. I'm 2…
Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
New Here, just finished treatment
I’m a 49 y/o male that was diagnosed with a large mass at base of tongue in April of 2022. It all started with severe pain in the right ear in September of 2021 .I was told by several different urgent care Dr’s that it was fluid in my ear, a severe ear infection and allergies. I ultimately made an appointment with a ENT Dr…
New to the group
Hello, My husband was diagnosed with Stage IV oral cancer. He had surgery in August and came home from hospital last week. I am his fulltime caregiver and I am struggling - tube feeds, medications, mental wellness are all a challenge. He is to start radiation and chemo next week to get what the surgery could not. I am…
bilateral neck dissection
I had the neck dissection about 5 weeks ago along with removal of tumor on soft palette and reconstruction. I have severe tightness in my neck and it feels like I am being choked. Is this part of the normal healing process and what can I do if anything since it is actually giving me anxiety episodes. I would appreciate any…
Post Tx Follow up schedule / PET vs CT / too many doc's & different opinions.
This is a bit complicated. I received my rad & chemo at Peace Health - St. Joe's in Bellingham Wa. I am followed by a surgeon at a 2nd place in Bellingham, Wa. (had my Tors / neck surgery in Seattle with a different surgeon). Finished treatments in early Dec 2021. PET in early April was NED & CT done yesterday was NED. My…
Would appreciate info from the experienced
I'm 73, had TORS for a new SCC right tonsil in May of 2022 along with radical neck dissection for carotid ligations. Did "OK" in the weeks following TORS then had 30 IMRT's in July/Aug. I have to mention too that I was diagnosed in 2007 w/SCC left tonsil and lymph nodes resulting in CISPLATIN weekly chemo concurrent with…
Been a while
Haven’t visited for a while but need some suggestions. I can’t seem to gain weight….due to my head and neck radiation my esophagus is about the size of a drinking straw. Im at about 155 and just can’t seem to increase my weight. I’ve had a total of 13 EGD procedures with basically no improvement I have difficulty…
A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…

Head and Neck Cancer

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