Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for September 2020

Just Passed the 3-Year Mark - ALL CLEAR
Just popping in to share that I just passed the 3-year mark since my treatment ended (35 rads and chemo) for my BOT stage 3 cancer. Keep your head up and one day it can all be behind you. The only lingering symptom I have is occasional dry mouth that is easily relieved with a lozenge. Looking forward to two more years of…
Easting After Free Flap Reconstructive Surgery
I had microvascular oral free flap reconstruction surgery in May 2020. Half my tongue was replaced with leg muscle and I haven't yet been able to eat solid food. I still have a feeding tube, but am adding in smoothies, soup, yogurt, etc. My question is - when will I be able to eat solid food? As of now, it falls down under…
ROLL CALL 2020 - CLOSED!, NO SUBMIT! NEW ROLL CALL 2021 SOON!
PLEASE READ ROLL CALL 2020 Second UPDATE: September 24, 2020 (Side note: for those of you interested in some “Matt junk” my Dad would have been 99 years old today if he was still alive. Also, there was a memorial service for my former boss today. The job was at an engineering firm where I was one of the staff engineers,…
Oral cancer from Nicorette Gum?
Does anyone know how to find information about tongue cancer from long term Nicorette gum use?
Ent or oral surgeon for tongue cancer diagnosis
I have had burning sensation top surface of tongue for several months. Acout one month ago had 5 large ulcers on sides of tongue. Went to ent and he gave me a mouth wash. About week later ulcers better. About 3weeks later felt ulcer type roughness top of tongue then one every large, swollen painful ulcer back on same side…
Throat Cancer Follow Up Tests
I am 9 months post-treatment for throat cancer. I had a follow-up CT scan of my throat area in May because my insurance company would not approve/cover a PET scan, which is what my doctors wanted me to get. Fortunately, the CT scan was negative but I still want to get the PET scan and both my doctors and I believe it is…
still not able to swallow
Finished treatment aug 13th getting better in a lot of ways my problem is i am still not able to swallow nothing not water not even dry swallow almost likei frogot how they have giving me swallowing execerisesbut having trouble because they want me to swallow it feels like there is so much junk stuck in my throat feels…
Submandibular gland surgery and PA removal
Just wanted to ask it anyone on here had their gland removed and how the procedure went for them. I know it's one night in hospital because of drain that is removed in the morning. How was eating and drinking afterward. Pain level andor swelling? Thanks in advance. Scheduled for early October.
Never trouble trouble...
..till trouble, troubles you. Thats what they say, right? So, the right side of my throat, under my chin, about an inch down, is really hurting when I swallow.. anything. I am exhausted ALL the time - I can sleep 24 hours a day, no problem, and still be exhausted. Other little things, like food catching, coughing for no…
2 months out and backslide?
Hi everyone, My husband is now 8 weeks post treatement (35 rads/7 chemo) for hpv base of tongue. Started to improve very gradually around week 6 post treatment but now are back with major pain and liquids only. Thought was thrush but treated for that and didn't touch pain increase. Now doing another thrush medication to…
two year anniversary
Just had my 2 year anniversay since finishing treatment for stage 1 ( old staging system was stage 4A ) tonsil cancer with 4 nodes involved, HPV positive. Had 35 rads and 3 treatments of high dose Cisplatin. 70 greys to right side where all the cancer was located and 54 greys to the left side as a precautionary measure.…
4.5 years NED scan
Hello all, Glad to announce a clean CT Scan today. 4 years 7 months since my last treatment. Had stage IV HPV tonsil cancer w/ multiple nodes involved. Rad and chemo, no surgery. I received the scan in light of some issues I am having with radiation damage in my neck, which made it a little more unnerving than a normal…
Radiation Induced Plexopathy
Hi All. I used to be a regular on this board. Diagnosed SCC unknown primary in April 2010. Had surgery only and was considered cured 5 years later. in 2017 I was diagnosed with SCC unknown primary a second time. Ended up finding a tumor on the right BOT. This time I had radiation and chemo and I am still cancer free over…
Scared
At the end of February, I came down with a sore throat that never went away. No fever. No Covid symptoms. Mid-March we shut down here and my doctor went to telemedicine only. I had exchanges with my doctor every 3-4 weeks. We tried various antibiotics, allergy medication, nasal spray and I have minor Crohn's so I…
Oropharyngeal tumor
Hello im new on here and im Having a biopsy sept 9 to have part of my tumor in my throat to be tested for cancer and it’s a oropharyngeal tumor left side of my throat growing inside of my throat and appeared 41 days after having a full tonsillectomy and adenoids removed cause I had stones on my tonsils that never went away…
Submandibular mass
Submandibular region node Had an incidental left submandibular lymph node 1.5 cm (nodule) found under left jaw - after ultrasound ENT doctor says it’s palpable though. I originally saw ENT for a boil abscess on right mandible rear section of lower jaw as it wasn’t clearing we believe this was where the novacaine was…
Neck, Trap and Sterno muscle issues 4.5 years after treatment...
Hello Friends, I am 4.5 years out of Stage 4 HPV Tonsil cancer. I did NOT have surgery but had chemo and radiation. I have recently had issues with pain in my eye, stiffness in my neck, nerve pain issues, and started down the road of discovery. I realized I have atrophied Trapezius and sternoclaidomastoid muscles. The trap…

Head and Neck Cancer

Discussion List