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Head and Neck Cancer

Archives for April 2020

For those considering Proton Therapy/Insurance denials
I've had a number of folks contact me via instant message regarding my experience with Proton Beam rads. Shortly after my treatment, I was asked to provide my story to The Alliance for Proton Beam Therapy Access Association. Sadly, only about 5% of folks wanting/needing radiation that helps protect vital organs in and…
Deescalation of RT Dose For HPV+ Head-Neck Cancer
I know that Sloan Kettering is currently investigating reducing RT Dose to 30 Gy for Select Human Papillomavirus Associated Oropharyngeal Carcinoma. Does anyone know which other cancer treatment centers are actively involved in research, trial, or treatment regarding DEESCALATION OF RT DOSE FOR HPV+ HEAD-NECK CANCER?
portacath mri scan and head and neck scan
I was wondering if I had my head and neck and clavicle bone scaned for cancer. Would my portacath be seen or at least the catheter to my neck artery? I have found a scar were it was inserted into my chest after 20 years you would think it would be completly gone funny is I still can take pictures of the scar cause its not…
esthesioneuroblastoma
Hi everyone, i just try to talk to some people who have/had a same type of cancer
Cut Out Cancer Spot on Esophagus or? Experience Anyone?
If I cannot have radiation they may cut out the cancer on the back of my esophagus, a 1 cm spot, and replace it with a flap of my skin from my arm. I don’t think this is quite as an effective of a “cure” as radiation and chemo. Anyone know about this? Anyone had experience with this? My doctor thinks they can do some…
Dermal Mets...anyone?
Looking for options with dermal mets from HPV+.
Can You Get a Second Radiation? Really Scared Now!
There is a chance my neck cancer is back. It is not at all clear. I was told by the doctor at Cleveland Clinic over 7 years ago that a second round of radiation is possible. I had a nonspecific site neck cancer so they radiated my entire neck, but concentrated on left side, mostly left side. The cancer now appears on back…
New member
Just started treatment for metastatic liver,lung SCC. Diagnosed last year with HPV tonsil cancer, had surgery in January 2019 and 35 rounds of radiation ,no chemo as they said it would not benefit me so I decided not too do it after 2 opions. They took out 70 lymph nodes and 11 of them where dirty, but did not leave the…
On the journey......
Hello......I’m back after a time, and just wanted to check in- thinking my husband will need everyone’s wisdom in the weeks to come. Things are progressing forward now. My husband had his TORS surgery 3-12. They were able to find the primary BOT. Small tumor...1.5 cm. He had bilateral neck dissection- both sides done…
Starting Keytruda this week
I have stageIV tonsil Cancer that has metastisized to my left lung. I was originnally diagnosed 2015 with tonsil cancer stage IV and recieved 7 weeks of radiation and 5 1/2 weeks of chemo. That took care of it in my tonsil then then 2yrs later it metastisized to my left lung and was removed with pinpoint radiation. A year…
Fistula/hole in back of mouth
Hello Everyone, I am new to the group, having been checking in routinely for the past couple of months. This is my first post/comment. I had surgery to remove an invasive tumor of the left buccal mucosa last October, which resulted in a partial maxillectomy and free flap reconstruction. The surgery was follwed up by 30 rad…
Clinical Trial
Back again, Had been taking Keytruda treatments since November 2018, all was well till February 2020, and started getting a sore throat again,had a CT scan done and found the tumor had started growing, sent back to MD Anderson, was told i need to have it taken care of had to make a decision on wheteher to get robotic…
PSA Safe Grocery Shopping During Covid-19
Below is a link to a video by a Michigan doctor Jeffrey VanWingen, he posted a 13-minute video on safe grocery shopping in the midst of the coronavirus pandemic. I hope it is helpful to all. OK folks, Stay extra safe-Don't take any unneeded risks. Especially those in treatment or recently came out of treatment. Your body…
Scan Today
Go for my PET scan today. After 9 and a half years with NED (no evidence of disease) n my ENT thinks there might be something there, but he is not overly concerned, easy for him to say. As I posted before I am very scared. I had HPV related neck cancer over 9 years ago. MY ENT at my yearly check found a massive infection,…

Head and Neck Cancer

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