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Head and Neck Cancer

Archives for February 2019

Smoking post treatment
He treated for P16-positive HNSCC/ mets to local lymph nodes. He had tonsil removed did cisplatin and 6 weeks of radiation treatments. He was "cured" they said in early 2015 . He has neglected to get follow up scopes done and has begun smoking on and off. I cannot belive he is behaving like this.
Need advice quickly. Recurrence to chest area... looking for similar
Life partner went in for 9 mos post treatment scan, found mass in chest, did PET...lit up, surgical biopsy confirmed same as original...Stage Iii SCC HPV+ tonsil cancer. He was 2/3 days away from death when found, had teach, feeding tube and went through hell, but came out with all tubes and trach removed, went back to…
Has this happened to anyone?
Hey all - so, my 83 yr old mom has throat cancer and she opted to not treat it. She's been doing okay, but symptoms are increasing some. She's been on hospice care for almost 4 months and i do have a nurse coming out tomorrow to check on this situation, but in the meantime, i thought i'd ask if anyone had experienced this…
Holding my breath
Here we go again! I am 18 months post treatment, 35 rads and 2 chemo for tonsil SCC HPV+16. Doing OK in the grand scheme of things. My husband is now facing the demon. He detected a lump in his throat in Dec. CT scan, inconclusive..same with MRI. Will have his tonsils removed next month. That biopsy will hopefully, tell a…
Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
Anyone dealing with Fibrosis?
I'm challenged with issues with the muscles and nerves in my neck. I was DX in March of 2012, (stage IV-a) treated with induction chemo, concurrent radiation and chemo and finally surgery, I've been NED for 5 years now and have some pretty substantial issues with my neck. Tight muscles, lack of flexibility and the feeling…
ROLL CALL 2019 - CLOSEDInitial Submittal February 19, 2019CLOSED
ROLL CALL 2019 First Posting February 19, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
Dizzy much? Light headed? read on..
Apparently I have a little discussed, only recently found side effect of radiation. Its called Baroreceptor Dysfunction. You (we) have 2 Baroreptors, with 1 being on our carotids. These can be damaged (same as a thyroid) during radiation. So questions are, how does your blood pressure run? Do you get faint on standing, or…
Step Back To Spring Forward
Hey guys, well, it's time for another procedure adventure. It would appear that I am developing a bit of a suite tooth, so to speak. This time I was fix'in to get a dilation because my ability to swallow easily had diminished significantly over the past several months and was rapidly becoming more difficult; and by…
jaw problem
hello, haven't been in this site in a long time. hubby had surgery in 2014 for throat / oral cancer. he has had his ups and downs but overall doing good. had to have some follow up surgeries to make him a nasal drainage system. best way to describe it as the surgery left him with no nasal opening and no where for natural…
Visit to MD Anderson
I'll be at MD Anderson in Houston 3/3/19-3/5/19 for what they are calling my five year checkup. If anyone is or will be out there during my visit and you would like to get together, please send me a PM and we can work out the details. I'll post my results as soon as I get them. Best of luck. Bugsy
Possibly Liquid getting into lung
Im five years from startof treatment and been signed off. Since November 2018 I've had a cough and chest infections. Recently I had double pneumonia. They think I'm leaking my liquid drinks into my lungs. Has anyone had this start up after 5 years. I had back of tongue cancer. After a massive op....9 hours ..through side…
Slow progress
Greetings to all of you Cancer survivors for which I am one. I will try to shorten a very long story which is mostly positive with some setbacks. Radiation and Chemo finished July 2017 after neck surgery for stage 4 carcinoma which can be treated successfully if it hasn't metastasized. Mine hadn't and I have so far been…
Metastasis to Lungs
Had a CT scan early Jan and it showed possible metastasis from oral cavity to Lungs. Death sentence or not?
6 Month NED
Hello. sorry I forgot to post this earlier. Had my 6 month post Proton beam rads treatment for right side tonsil and rifght lymph node SCC. My ENT said all looked great. She went on to say after scoping my throat..." i would challenge any doctor to find any evidence that you received 6 weeks of radiation for HNC". I still…
Therabite
Thought I would start a new post since trismus came up as side effect from radiation and treatment. We ended up buying something called a Therabite to exercise the jaw and gradually get it to open wider. It cost a pretty penny and insurance did not cover it, but it has improved my husband’s ability to open his jaw wider…
Matt's humdinger of ROLL CALL informational post!
Dear H&N Members, I (CivilMatt) is very much alive and wish to continue with the ROLL CALL, as I have been doing for a number of years. Just so you all understand what I am doing when it comes to the ROLL CALL, I will explain henceforth, for H&N Member clarity: First off, I try to stay true to the “basic rules” as laid out…
Radiation side effect vocal cord paralysis
Well, I guess the other shoe has dropped. We are 3 years post treatment - chemoradiation for Stage 4 nasopharyngeal tumor. The cancer is gone but 3 years post treatment there is nerve damage from the radiation resulting in vocal cord paralysis. At first it was just one side but now the other side is becoming affected. It’s…
Temporary setbacks or forever symptoms?
I guess this never gets easier, does it? And I think I fooled myself a bit as well, thinking that normalcy was right around the bend. After breezing (that's a relative term, of course) through the treatments last spring, three months post I was starting to feel pretty good, then knock, knock, knock... oh, hello…
My Story of Cancer Therapy
My Story of Cancer Therapy & Recovery Summer of 2015 - I was my father's caregiver for a few months. During that time I did not get enough sleep. What I know now is that I became more vulnerable to cancer because I wasn't taking care of myself. Fall of 2015 – In October I notice a lump on the side of my neck that doesn’t…
Tooth implant
I had a back molar pulled prior to radiation treatment which I really miss as it was a main chewing tooth and now that it's gone I chew differently and have a tendency to bite the back of my tongue which is really painful. I saw a dental surgeon who's willing to do the implant and has said my jaw bone is good eonough to…
11 Yrs. after Head Neck Cancer doing great
After reading many of the posts on this board I thought I would throw some white light on the issue of head neck cancer. I am a survivor. It has been 11 years and I am stronger than ever. I never had surgery or went through chemo as I thin they are poor options for this type of cancer. Instead I did hyperthermia and low…
MEC surgery on the 15th!
I was diagnosed with MEC on my retromolar pad on December 13th after having a "cyst" removed taht turned out to be MEC. I am praying they can get clear margins on the 15th and I can put this behind me. Has anyone else had experiece with cancer in this location?
Still here!
I don't post often, but I am still here to lend an ear or a shoulder to lean on!
WOW....I’m speechless
All the lost information.....this never happened before....and I’ve been here 7 years. p
Please post on Matt's thread :)
Please sound off, so we all know who's here. I'm Sue, Oropharangeal in 2017 - not Superwoman as I origonally thought.

Head and Neck Cancer

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