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Stage IV squamous Cell Carcinoma
Hello everyone. My father has stage 4 scc on his cheek and jaw bone. The doctoc at the VA gave him 18 months to live. I convinced him to get another opinion and today the can er center doctor told him. 2 months. It’s very fast progrisis cancer but how are they giving him life expectancies when it hasent spread, he had…
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Starting treatment 7/30/18
Wish me luck, I am starting radiation 7/30/18 and have my first infusion of high dose Cisplatin on 7/31. Trying to enjoy my last day before treatment begins. I have been eating like crazy the last several weeks and have gained 18 pounds. That puts me at 245 pounds. Should weigh around 185 so hopefully I can make it thru…
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BC Cancer Agency
Is anyone else out there being treated at the BCCA?
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Feeding Tube Help
My husband was diagnosed a year plus ago with SCC P16+. After undergoing a full tonsilectomy & 38 biopsies down his throat and neck, they never found the sight of origin. He went thru 35 radiation and 5 chemo Treatments, finishing in Oct last year. the tumor didn’t shrink as much as they had hoped, so underwent radical…
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SWALLOWING ALMOST IMPOSSIBLE AFTER IMMUNOTHERAPY
MY FATHER TOOK HIS HIS SECOND IMMUNOTHERAPY AND HARDLY SWALLOWS. BASE OF TONGUE CANCER. ANY SUGGESTIOND PLEASE. HE HAD 2 SURGERY, CHEMO AND RADIOLOGY. DOES THID MEAN DISEASE ADVANCES OR IMMUNO EFFECT ? LITTLE EARLY TO DO CT SCAN WAS TOLD TO SEE PROGRESS. THANK YOU.
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adenoid cystic carcinoma
Dies anyone have adenoud cystic carcinoma? I was diagnosed with 4A. Going to Moffitt in Tampa. Dr Trotti and Dr Kish.
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Left side of throat/jaw swollen and painful
Hi thanks for taking time to read this. I'm a 25 year old male that has had no major health concerns up until the past year. I've experienced trouble swallowing and speaking for about a year with other strange sypmtoms including muscle swelling and twitiching in the left side of my face and neck/throat. I've also…
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Nervous
So at my last onc visit..did a scope and was NED...yesterday I found 2 lumps ,growths, under my tongue..were not there last month...i dont want to be that patient who freaks out but i am...they have grown in 1 month.. looks like SCC cancer pic ...but on dr google...just afraid of callin dr
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Just Celebrated One Year
One year ago today, my 55 year old husband finished 35 radiation treatments and 3 doses of chemotherapy, Cisplatin, for stage 4a tonsilar cancer. He is now working full-time and is generally in good health. He had a rough time with treatment. He stopped eating completely even with the PEG tube. He ended up on TPN,…
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Feeling itchy
I am two weeks post treatment of hpv + right tonsil cancer with metts to lymph nodes. I am feeling sore throat and itchiness exactly at the right side of tonsil where my cancer was diagnosed. It comes and goes, not permenant. Plz tell me why it happens? Should i worry about it? Plz comment did you have any feeling like…
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TWO YEARS TO THE DAY SINCE MY OPERATION
Can't believe that it has already been 2 years since my operation (July 18, 2016). Still going strong. Now I have to get over the 5mm nodule that has developed in my upper right lung. CT scan with contrast scheduled for September 15, 2018. Hoping for NED. Take care everyone. Steve
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How many patients trust what "experts" tell them
I am curious how many/what percentage of people follow what doctors; radiologists; chemotherapists tell them is best for their cancer; without researching it themself? Do you think if there was something else available, other than chemotherapy or radiation that had equal effacacy; they would tell you? Have you ever googled…
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throat obstruction
Hi, I have been finished with radiation for 6 weeks, and was one of the lucky ones who had relatively easy treatment side effects. After finishing my liquid meals it feels like there is something in my throat. It also feels this way when I try small bites of food as I go about trying to taste foods again. Even with…
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Tongue burning after radiation.
Tongue burning like hell one week post treatment 33 radiations. Both sides of tongue bottom side triggers every 2 to 3 hours. Any suggestion. Plz help.
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Just like that...gone
Im sure my bf wouldnt say it quite like that since he was the one with the tumor..but almost 7 months to the day, he is cancer free. The emergency tracheostomy and feeding tube...gone. The large tumor in his throat...gone. There is still a small issue with swallowing but he's up to chicken, steamed veggies and…
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Interested in cutting edge research for Oropharynyx Cancer
Helo everyone! I am currently researching Oropharynx Cancer and am interested to share and interact based on medical and unbiased literature.. In my treatment, I do not blindly follow the suggestions made by "doctors": without thoroughly educating myself; embrace the information and reach my conclusions, further edited by…
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ROLL CALL 2018 - Updated July 14, 2018
ROLL CALL 2018 1st Update July 14, 2018 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…
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New member/treatment options/Proton
Sat, 07/14/2018 - 4:25pm — skidog Hello all. While I'm a new member to this forum, I've been an avid rsearcher/ learner and reader of many of the good folks who post their experience and stories here. I'm very grateful for you all. You have helped me tremendously from pre diagnosis all the way through my current status ( 1…
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One week post treatment
Hi all. I have just finished 7 weeks of chemoradiation. I am hpv + tonsil cancer with nodes involved. One week has paased. One week after i notice that nodes have shrunk in size signoficantly but they are still there and i can feel them on touching. I am worried if my rreatment is successful or not. Plz comment. What was…
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Newbie
Recently diagnosed with Tonsil cancer right side with 3 tiny lymph nodes same side. Nodes are not visible at all. The cancer is HPV positive. This year they did a complete overall of the staging of HPV cancers. In Head and Neck cancers that are HPV negative the staging has not really changed. They have now seperated out…
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facial sweats
It's been two months since radiation ended. I have facial sweats while eating for the past few months. Is there medication to reduce sweating? Does it go away over time?
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My answer to urgent help question
All H&N members: Thank you all for your response to my question about painful swallowing and throat excersizes. It really is the hardest thing we have to do. I think rad and chemo treatment easier to handle. I use to love eating but now have anxiety if I will choke just taking sips of soup. I'm alone mostly cause b/f works…
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Posting Question-Line Spacing
Can't figure it out how do you eliminate the spacing between sentences. Sometimes when posting a fairly long answer or question if it was compacted without the space between lines, it would take less space and be more readable. I have tried a number of things including typing in an office program where the lines are…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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Answers Can't Come Soon Enough
I had a tumor removed from the base of my tongue and partial neck disection in August of 2016. Followed by 30 radiation treatments. I am nearing my 2 year anniversary. I began experiencing tenderness in my throat and tongue about a month ago. My tongue feels bloated abd I have some difficulties swallowing. During a routine…
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One year NED
Hello Everyone, I have not logged on for quite a while. I just wanted to update that my husband is one year post treatment and he had his one year follow up and everything looks great! He did not have a scan as the insurance only covers one at six months out and that is it. He had an unknown primary, so the doctor is going…
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9 weeks post eating some solids
I am tryng various foods. I notice i have to chew pieces to very small size. Chicken hangs up in my throat. The other day had pork chop and no problem swallowing. I still have mucus fits so thats not helping. I tried russian pancakes the other day and it got hung up in my throat. I starting gagging and had to stop. Does…
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Neck Dissection Recovery is Erratic
Hi, My name is David and I was diagnosed with squamous cell cancer in lymph node in base of my left side of neck. The drs determined it had originated from my skin ( I’ve had many skin cancers).I had a modified neck dissection 5 months ago. 30 lymph nodes were removed. In general the pain along the incision has improved as…
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Radiation Damage to tongue surfacing 2.5 years later
Hello, I posted a few weeks ago when I had a biopsy on my tongue. It was negative, but I met with my Dr. yesterday and actually read the results. First, I am extremely thankful the result was that it was a benign ulceration. I essentially have a large fissure on my tongue. I recall it being there since my treatment, but…
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Adjuvant Chemo for Nasopharyngeal Cancer
Hi. New to this site. I am 4 weeks out of concurrent radiation and chemo. I’ll be starting adjuvant chemo (Cisplatin combined with 5fu) and I’m wondering how it compares to the cisplatin I got during radiation. I’m doing ok starting eating soft foods but having a hard time keeping food down. I’ve got the feeding tube but…