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Depression?
So you go to bed with the best intentions for a new day tomorrow, then tomorrow comes and you lay in bed trying to decide if you really feel like getting up or rolling over and after rolling over you get out of bed at 1:00 and face that day full of promise only to realize that you feel like the same slug you did yesterday.…
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Post radiation surprises
6 months post radiation after surgery to remove a very large neck tumor and some chemo. Still no taste and saliva as well as dry mouth. On peg tube 9 months and trying to supplement liquid feedings with whatever solids I can tolerate (not many) Hearing loss and constipation are also present. Easy to think about giving up…
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HPV+ Cancer Survival Rate
I’ve heard that HPV+ H&N cancer has a 92% cure rate. What are the statistics for 5 year survival and beyond?
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Unused Tube food
I have 4 unopened cases of ISO source containers for tube feeding, anyone know what to do with them? Company will not take them back. Looking for a place to donate.
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Tips to make life easier during treatment
My husband has just finished the standard chemo/radiation 35 session treatment. During the last almost three months we have hit upon some things that have made things easier: 1 gets lots of disposable cups to use to spit in during "mucus attacks" and always have some around when traveling. 2. Paper napkins are sturdier and…
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Pain for pressure near ear
Hello - Can anyone suggest a pain med, heat, cold, or anything that might help to relieve fairly extreme pressure near the ear and radiates up and down to cause a headache. And can anyone think of a medication that might be effective for earaches. A neurologist I saw is suggesting to try cymbalta which some find helpful…
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Weight gainer
I am 2 months out from 35 rads/6 cisplatin, lost 35 lbs. Had been drinking smoothies, after treatment, of milk, ice cream,and berries, but was gaining little back. Friend suggested Bulk 1340 from GNC, usiong this and working out, I have gained back 7.5 pounds this past month. Goes down easy, little is fat, and has made a…
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Nasal pharyngeal carcinoma in adolescent males
I am the parent of a 16 year old boy who has just been diagnosed with this type of cancer. Apparently it’s rare in this country for adults, but it’s extremely rare for kids. My son begins his first round of chemo next week with a 6 day hospital stay. This a child who has never been hospitalized until last week. So needless…
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Lymphadema
Anyone get a compression garment? I have one, I put it on at night, and in the morning, I look to see where it ended up on the floor... Another one was ordered, insurance say its an experimental thing and wont cover it - funny its listed next to penile implants..
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I'm a really, really bad pet owner :(
I'm not kidding - I thought I'd share so no one else does the same. Whenever I do roast chicken, I always boil the bones after and make chicken vegetable soup, yummy! so a few times a year - I'd make soup, and my dog would get a ladle of it on her food, for which I was greatly loved! When I was diagnosed, and thru…
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Vocal cords not vibrating, 5+ months post-treatment
I had my 29th radiation treatment on August 18th so it's been 5 months since the end of treatment. I had a hoarse voice before I started and I still haven't gotten my full voice back. My ENT and radiation oncologist both said my voice would be better after radiation; I was expecting for my voice to be at about 80%. I would…
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were you tired before diagnosis?
Hello, All: I was just told that I have some kind of cancer but we don't know what kind yet. I have a swollen lymph node in my neck so had bloodwork, a CT scan, and an ultrasound. The bloodwork came back normal (so no infections) but the CT scan showed a mass in my tonsil as well as the lymph node being dark inside, which…