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Head and Neck Cancer

Archives for February 2018

lymphoma & hpv+carcinoma at same time?
The bad news is that unfortunately, my ENT was correct. I do indeed have tonsil cancer. The good news is that it is the hpv type, so more treatable. However, oddly, they also found lymphoma-type cells in the lymph node which they are all confused about. Having both at the same time is not usual apparently. Honestly, I'm…
Sinus Cancer
I have been dealing with Esthesioneuroblastoma aka Olfactory Neuroblastoma for the past couple years. I have had three surgeries to remove tumors. I am considering radiation therapy will be in the left maxillary area of my face. I would be interested in hearing from others who have undergone just sinus radiation--not…
Maintaining Weight
I hope everyone is doing well. I’m 3 months post treatment and am having trouble maintaining weight. Ive had a peg tube since treatment started and hope to get it out in a few weeks. I‘m weening myself from the peg tube and haven’t taken TwoCal HN in over a month. I’m currently at 180lbs and eating at least 2500 calories…
oropharyngeal with neck met - any treatment options once non curative no longer option?
Hi all, Is anyone on here in same situation of no active treatment? I am a caregiver to my dear mother who is the most important person in my life. No curative treatment has been offered here in Ireland. We are 1yr post diagnosis which at that stage was stage 3TN SCC oropharyngeal with met to the neck node right side.…
Post tongue biopsy x 6 days new ulcer over incision!
Hello members, this is my first post, so please bear with me! I have not been diagnosed with a form of cancer at this point, thank you. However, I was sent to an oral surgeon by my dentist about a year ago because I was having these sores on my tongue that weren't going away first I just had one and I went in for a consult…
Pain after radiation to jaw
Hi everyone! I had a mandeblectomy in November for SCC off the mandible and am just into week 3 after rads. My jaw hurt slightly before but now I have a new pain next to the tooth next to the surgery area. It is a low throb then at times becomes a sharp pain for several minutes then goes back to a throb. Also have slight…
Pet Scan
I had a PET scan yesterday and never heard from the doctor. Tomorrow is Biopsy day. IF something else showed up would not they have called? I just look at my report and it says pending until 2/25. Just wonder what the norm is for this. My CT scan doctor called me withing an hour of when it was done, to let me know the bad…
Dental work pre radiation
Recently diagnosed with HPV base of tongue cancer (Stage 1, I think). Rad Onc at Moffitt Cancer Center told me to see DDS before beginning treatment. Oral health poor, knew I needed extractions prior to cancer. I would like to have dental work prior to beginning radiation (33-35),no chemo, now Rad Onc says just to schedule…
Best doctor/hospital for laryngeal cancer (recurrence)?
Hey everyone, I posted last week that we saw growths on my vocal cords that were new since December. Biopsy confirmed that the cancer is back. Came back in less than 6 months after I finished radiation. Wish I would've done chemo, too. CT scan showed that it hasn't spread anywhere outside of my vocal cords. My doctor is…
Enlarge lymph nodes
I completed radio and chemotheraphy in Jan 2014 due to NPC (T1N2M0). My oncology doctor asked me to do MRI scan for head and neck in last Oct because of mild numbness at my left facial. The scan was clear. However, I found one small enlarge lymph nodes (~ 5 mm dia) above adam's apple/midline of hyoid bond 2 weeks ago. The…
Extreme negativity
So were beginning week 5 of sn 8 week treatment if 3 Cisplation and 40 rads. My bf had such a large tumor before detection on 12/15 that it blocked airway fir breathing and swalliwing so he had emergency trach and feeding tube. He had just started new job so not eligible for STD or FMLA, so im soke breadwinner. I have set…
Skin rash 4 years out
Hi. I'm about 4 years out and have been having a recurring rash for 3.5 years.. I finally figured out what it is from help from friends. Eosiniphilic folicullits..any one else?
Submandibular swelling after surgery
Hi all - first post here, I'm a 50-year-old dad who was diagnosed with base of tongue cancer last year, had laser surgery and a neck dissection, luckily it had only spread to one lymph node (and then just barely). I just finished my third week of follow-up radiaiton therapy; three weeks to go. I wondered if anyone else who…
Seeking Info on Sinus Area Radiation only--not including neck radiation
Has anyone undergone IMRT radiation therapy specifically in the sinus areas where your radiation therapy did not include the neck? I am considering IMRT therapy for my Esthesioneuroblastoma situation in left maxillary sinus area. I am hoping to hear how your experience went with short and long term side effects. Did you…
Happy to join the clear PET scan parade!
My husband was diagnosed with SSC BOT HPV+ stage 4 last summer. He started treatment (35 radiation & 6 Cetuximab) on October 4 & finished on November 21. On Wednesday his PET scan came back clear!!! Now we’re focusing on getting over the lymphedema that appeared on Monday. Thanks to everyone for your wise advice and kind…
PET scan was good execpt for one thing
Was so hoping I could celebrate with Curlyn, Byebyecancer, OKCnative, and the few others that finished up their treatments about the same time as myself but I had one thing that turned out alarming on the scan. There was a "bright" spot ( SUV of 3.3) showing up on my colon that concerned the radiation doctor and now I have…
Who has had reccurence on vocal cords?
Hey everyone, I've been doing some reading online (credible medical sources!) but I know it's better to hear from you all. In June I had a biopsy of growths on my vocal cords and at the time the doctor also used the laser to remove some of the growths on the one side. Once it came back that it was cancerous (early stage),…
PET SCAN is C L E A R!!! Cancer went BYE BYE!
Hi! Just wanted to update y'all and let you know that my husband's cancer went BYE-BYE! Clean PET Scan this past Monday (13 weeks post treatment)!!! For those that don't know, he was diagnosed in September 2017 with HPV+ Base of Tongue SCC. Stage IV T2N2M0. His only symptom of a problem was a swollen lymph node in his neck…
Text Results and Pain - Not sure best direction
Hello - I hope someone has some idea. Currently, I have carcinoid with lymph node and liver mets diagnosed in 2009 -- very very slow progression on the last FDopa in 2016. The last two years on and off my lower jaw hurts terrible and usually comes with night sweats, underarm pain, naseau, but it goes away. I had a regular…
Tonsil cancer.
This is what we have been told "Cancer is contained to his right tonsil (yay!) but he will need surgery (probably week after next), then 3ish weeks to heal, then 7 weeks of radiation and chemo. His type of cancer has an 85-90% cure rate though!" "Basically what they said matters most is that he didn’t get it from smoking,…
Wife trying to understand husband on Cisplatin and Rad
Hello. My husband started his treatment of Cisplatin and Radiation about a week ago. His chemo is a 4 hour long infusion, every 3 weeks. He had his first round of chemo on the 5th. They told us about the nausea but they didn't really emphasize on the importance of taking them around the clock. He couldn't get a hold of the…
Family member newly Dx-ed
With throat cancer. Still very early in the gathering of information stage, and he and his wife aren't ready to share a whole lot at this point, which I understand. Tomorrow is meeting with RO, and MO, next week surgeon. Don't know for sure exactly what kind of cancer. His symptom was a large lump (Dr who first examed him…
taking a long time
6 months post radiation for neck tumor. Still no saliva,no taste and dry mouth. Getting 2 cal protein feedings in my peg tube 4 per day. Trying to eat some solids but food causes nausea. Chemo has caused a painful gait when trying to walk. Any encouragement from others with same situation? I am patient but there is a…
Read the PET results online
Mostly sounds good as far as the neck cancer if I am reading it right but have a few other concerns until I see the doctor next week. "There is dependent airspace disease in the lungs consistent with dependent atelectasis." This sounds like it may or may not be a problem according to Dr Google. "On the PET data set there…
Fever after radiation
We just finished our 3rd week of rad and 1st chemo was first dy 3 weeks ago, ready for 2nd on MOnday. The past couple of days he has spiked a high temp of 101.7, 100.9 and 100.7. They brought him in as outpatient, ran a ton of blood work and a chest scan to see if anything in there...the white count was just a little low…
2nd tongue cans & reconstruction
Feb 10, 2018 - 9:51 am Good morning My 81 year old mother had tongue cancer in 2001 with surgery and radiation. The radiation that saved her then caused a new cancer in her left side of her tongue. She used to be a smoker. I myself just finished treatment (radiation and chemo )in April 2017 for anal cancer. My mother is…
Recently Diagnosed
Hi everyone!!! yesterday I was diagnosed with squamous carcinoma... back of the tongue. I had no symptoms except a swollen gland on the side of my neck. this was about 2cm. I only had this for about two weeks.. They said the primary tumor site is most likely at that right tongue base at about 2.5 cm. They said it appears…
neck cancer Acupuncture
I have read about using acupuncture treatment to help restore the saliva glandsafter radiation .Does anyone know a great accupuncturist in Los Angeles preferably in the Santa Monica area who can treat this condition. Thank you!
Just found Throat Cancer(supraglottis)with spread to the neck.
Hi! I am a 59 year old male! I noticed a small mass on the right side of my neck on December 27th 2017 and this mass grew to golf ball size or bigger by january 10th. I saw my regular doctor on Feb 5th 2018 and from there the monster in me was discoverd. The ultra sound showed the mass to be cancer and my doctor and the…
Worried For My Dad
Hello everyone! To start, I’d like to say to those who have beat cancer, congratulations, and for those fighting, keep fighting and I hope for the best for you. I’m writing because I’m extremely worried about my Dad. My Dad has had cancer twice (Osteo Sarcoma in the late 90’s and Stage IV Squamous Cell Carcinoma two years…

Head and Neck Cancer

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