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Chemo with no rads?
Has anyone here done surgery and chemo with no rads for stage 3 squamouss cell?
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Scan yesterday/checking in
My husband had another neck CT scan and chest CT scan yesterday morning. His last scan was in November 2016. So far, he is at 20 months past diagnosis of his stage 1 tongue cancer. And thankfully yesterday's scans were both clear. His doctor gave him an A+! Today is also our 16th wedding anniversary, so this is the best…
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Nasopharyngeal squamous cell carcinoma metastatic recurrent with mets on bone and liver
I have so many thoughts and feelings at this point. My husband was diagnosed in 2015 and completed the chemo and radiation with great results and was in remission for about a year and a half. In December he had a PET and they found mets on his hip. He did the chemo with marginal success and had a reaction to one of the…
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Cancer free
but PET scan for NED is not going to happen anytime soon. On Monday I visited my oncologist who after physical and observation said that she could not detect any evidence of the tumour in my throat or in my lymph nodes. This is of course great news but I felt a little dejected that the PET scan has been put off until later…
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Never Lose Hope!
I had head and neck cancer in 2012 (Stage IV SCC, HPV+ left tonsil and nodes along with soft palate) for which I had chemo-radiation. Then in 2015, I was diagnosed with lung cancer (SCC HPV+ again), for which I had full chemo-radiation a second time. In 2016, it started to bloom again in both lungs. I was offered a…
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Making Of The Dreaded Mask
My friend Carolyn transported me to the Cancer Center and went to all the appointments I had prior to the procedure. Lots of paperwork and information given by many staff members. I was pleased to learn that I may qualify for financial assistance. Completed the forms and will know something in a week or so. The cost for…
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Held hostage by the sun
I feel like the sun has me held hostage.The grass needs mowed and weeds need pulled,my dogs thankfully are being takeing care of by a friend.What im wondering about is that I got some sun screen of 100 and a hat like a safarie hat.I went outside for a couple hours Sunday and did a few things,I did not think that I got…
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Well looks like my son's cancer is back
He was doing remarkably well. Back at work only 1 month after all his treatments. He called me a few weeks ago to say he noticed a lump on his testicle. June 13th he went back to the cancer centre and they did the tests to see if he was in remission etc. Two specialists came to see him. He has been complaining of a swollen…
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It's getting harder
Well, my husband is still doing really well, but the side effects are starting to take hold. He is in week six of treatment. He is getting his sixth chemo as I write this. He has completed 26 of 36 rads. Overall he is doing great. Up until a few days ago he was eating a fairly normal diet. Then seemingly overnight he…
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Chemo effects duration
I can't find it again, but last night wandering around the internet I found a British site that referenced a study that stated that chemo commonly continued to present obvious effects at 9 months after end-of-treatment. Just thought it relevant... I'm still doing the Iranian BioXtra gel treatment regimen (at least twice…
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stll looking for answers
Hi everyone, I posted here last year about some issues that i have in my throat (trouble eating, breathing and speaking ) i already saw three ENT doctors and nobody can find out what's going on with me. The last doctor ordered a CT scan but it was clear. I swear there is something stuck in my throat that is really annoying…
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Squamous Cell Carcinoma
Hi, My name is Ken, Have recently been diagnosed with SCC. I had a biopsy done 3 weeks ago. The area is on the left temple, and is about 4 " long and 3" wide. I have been scheduled for MOH'S surgery on June 20th. It Has been growing, to get this large for at least 5 years. My Fault, because I listened to My Primary Doctor,…
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Tingling and numbness months after Cisplatin?
Has anyone developed tingling and numbness in their feet and hands months after their last Cisplatin treatment? Hubby did not experience any neuropathy during chemo but has started to have these symptoms in the last week or so.
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It is what it is...
Hello H & N friends, Long time no post ! :) Well, here we are about 1 1/2 post treatments and all is well. Terry is busy cleaning out his classroom, getting back into walking again, resting, sort of eating, and just enjoying everyday. It is wonderful to see him looking like himself. We re gettting ready to go out of town…
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Third time around the block....BUT --- Update...
I start Keytruda treatments next Monday....Got my baseline scan last Thrusday...the nodule in my lung has shrunk by half....hmmm...guessing that the antibiotic they gave me after they biopsied the node in the middle of my chest has something to do with that. Anyway, I'm excited and nervous....nerves only because I want…
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This is the point
It feels like yesterday that I knote "And so it begins" - I may not have shown it, but I was terrified. Terrified of the unknown, terrified of the big "C" just plain terrified of not being in charge anymore. Today I went to Massey, and saw my Radiation Oncologist, and my ENT. First was Dr Song from Radiation Onc. He scoped…
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Half Way There
Good morning fellow warriors. I woke-up today starting the second half of my treatment plan. I am on radiation treatment 16 of 30 and Cisplatin infusion 4 of 6. Before I get into my current side-effects, allow me to give you a little back ground sense I don't post on here often. My name is Chris. I am a 36 y/o Master…
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Embarrasing question
Sorry but this is very embarrasing for me and I cant seem to get any answers googleing.Has anybody developed Gynecomastia Due to Radiation and chemo? I have a pretty good case of it. Not really sure if its from my damaged thyroid or from the chemo. Since I will probably be facing chemo again what drugs should I avoid? The…
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OK... here comes the question no one wants to ask...
Now that my husband is starting to feel better after his 8 monthbattle with SCC... sex is back in the picture. However, I don't know why, but I am very hesitant and nervous. I feel like since I took over the "caregiver" role, that my "drive" has literally "driven away"... Are there any other caregivers in this situation? I…
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Over the hump today
Today was chemo #4 of 7 and radiation #18 of 35. Over the halfway point, but not without issues. On one hand I am happy as I now have less to do. On the other hand it's getting harder, rougher and tougher. Knowing the closer I get to the finish line the worse things will get. I am still dealing with low blood pressure. I…
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PEG tube pain
Had PEG tube put in on June 1st and am healing slowly. Still have some blood on gauze when I clean and change it. I am sore at the location however, the real pain I am having is to the left of the stoma... about five inches away. It is like a muscle spasm that only lasts a few seconds at a time. I called my Gastro doctor…
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Esthesioneuroblastoma
Has anyone been to a good ENT or neurosurgeon in Southern California that treated you?
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Handling effects of radiation and chemo 1 month after ending
My husband was treated for head and neck cancer in Mar. and Apr. He is 6 weeks out of 35 radiation treatments and 5 chemo sessions. He had a gtube put in before any treatment started, which was good because we started using in during the 4th week of treatment and have been using it since. He is becoming very frustrated…
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Dry Mouth Woes
Something that plagued me since treatment finished on 21 April has been dry mouth. During the day it isn't so bad because a quick sip of water and you get a few minutes reprieve, and other sip and so on. At night, however it is a different story. Not so bad if you breathe through your nose while sleeping, but I'm a mouth…
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Roll CALL 2017 - UPDATED JUNE 3, 2017 CLOSED
ROLL CALL 2017 4th Updated June 3, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…
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Nasopharyngeal Cancer Symptoms
Hello , I don't know if I can ask this question... What is the common symptoms of NPC ? I have dry throat, sputum , some cough and some nasal obstruction for more than 1 year but I'm not sure I have NPC or not , because my country's hospital is suck ( yes , my mom has uterine cancer stage IIIB and they said her uterine is…
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New here, help please? Recurrence of SCC, tongue, T4
Hi..... I have read several of your posts, I truly appreciate the kindness and camraderie that all of you possess. This is my third time with cancer, two different types. 1991 - Lymphoma-Hodgkin's, 2015 - SCC of the tongue, 2017 recurrence of SCC of the tongue. It's been determined that the 80 radiation treatments, I…
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Lack of appetite 9 months post treatment
Last summer my husband had 35 proton radiation treatments and 7 Cisplatin for HPV+ oropharyngeal cancer. This forum was extremely helpful for me during that time. The very good news is that he is NED. The not so great news is that he lost 30 pounds and really couldn't afford to lose most of it. He never had a PEG. He…
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Halfway There!
Hello Everyone, Just an update ... tomorrow will be rad #18 for my husband. That is officially halfway to the bell! :) . He had his 4th chemo yesterday. Three more of those to go. He is doing remarkably well so far. He amazed his rad team today because he gained almost a pound since last week's appointment. I know there is…