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Head and Neck Cancer

Archives for July 2016

Biopsy positive but PET negative
Tribes Posts: 1 Joined: Jul 2016 Jul 06, 2016 - 6:22 pm Biopsy for BOT 15mm mass positive for Squamous cell Hi folks, brand new to this group. 12 days ago was scoped and the mass was found. Surgery to remote it and biopsy done. Was told that I had stage 1, ordered a whole body PET scan with additional head and neck and…
No radiation or chemo
I am starting this to ask if anyone else here only had a glossectomy and partial neck dissection, with no radiation or chemo. Most everyone seems to have one, the other, or both. I'm just curious. I guess i feel lucky to have avoided all of that and am wondering if this is very unusual. (I had stage 2, but it had not…
Week Two - Through
Hi everyone, Shirley here reporting for the end of week two. First of all I think I might be a super wimp. It has only been 2 weeks and i am suffering from mouth sores,super dry mouth, my throat feels like it's closing and i can barely breathe. My mucus is like rubber (gross) . I just asked today for the magic mouthwash.…
How Healthy Eating Can Help You Beat Cancer
When I read in this NY Post article that a third(!) of all cancer death are due to malnutrition, my first thought was "no way." Then I googled and, sure enough, it's true. Pretty shocking actually. Anyway, this is a good read. So please, everyone...I know it hurts but stay hydrated and do your best to eat the good stuff.…
4 Years!
Today marks my 4th anniversary of ringing the bell after the end of rads. Time has passed quickly but I do recall how those first few weeks seemed to pass so slowly that I thought the earth had stopped turning. The side effects were hell and healing happened so slowly as to be unrecognizable unless you compared it in…
And now the tears
I've had my moments of fear about what each week would bring, but as I near my 8 treatments crammed into 6 days, I am in tears because it's all so overwhelming and getting beyond my emotions now. The burning doesn't help, the incredibly heavy and painful tongue, the lack of appetite and feeling like I have to get a certain…
Emotional toll
I'm one week out from a 100mg dose of Cisplatin and still struggling with fatigue. Yesterday, after a foggy morning, I actually had a really great afternoon with more energy than i've had in a while. But, another bad night of sleep (struggling with gas pains) left me feeling quite down this morning. I have a nine year old…
PEG timing
At what point did you get your PEG? My husband only has 9 treatments left. He stated yesterday that maybe he should get a PEG because it is so hard to eat. He did great with just EnsuRe today. How long after radiation is over before you can eat again?
Post surgery tongue reconstruction
Has anyone here experienced tongue reconstructive surgery after their initial tumor dissection? My surgery and post rad treatments, has left my tongue tied down on the left side, making speech quite difficult. I plan on asking my surgeon for options in a couple of weeks. I cannot imagine living the rest of my life in this…
End of week 2
Finished my chemo and rads - 4/5 chemo and 23 rads to go. Have had a few recent problems and thought I'd share and see what others had to say/offer..... Have been taking Glutamine mixed with 6 oz. of water 3x daily and last at night before going to bed, letting it linger in my throat after swishing it around. On Thurs.…
Gabapetin
My Doctor wants me to take gabapetin starting next weekend. I am just curious if anyone has taken this, does it help, and any thoughts about it. Thanks! Joanne
Sore throat !!!
hey everyone, hope you guys are doing well and fighting well. I am having a horrible sore throat every signle morning though on september ill be 2 years post radio treatment!! any advice???
Desperately need advice, think I might have cancer
Hello everyone, I am posting here because no one in my family will listen to my concerns. First about me; I'm a 23 year old female, don't smoke/or drink. The troubles in my mouth started earlier this April when I came down with a sore throat but only on the right side. I also had one swollen bleeding tonsil and horrible…
Chapstick
Has anyone found a good Chapstick? most of the ones I've tried dry out my lips. One that is ok is Dr. dans but looking to try another one. If anyone has found one that has worked
Hyperbaric
Hello I had tongue cancer 16 years ago. Had surgery , radiation , and chemo. Loving all the side effects that come with radiation to the mouth and constantly dealing with losing teeth. I had 4 teeth removed and had the oxygen treatments 4 years ago. I then had another tooth pulled and had another 10 oxygen treatments. Now…
One and done.
Yesterday I finished up five rads and had my first cisplatin infusion on Tuesday. Those first few days were rough. Manager to hold off the nausea, but all I wanted to do was sleep. Today is my first day without having to take anti-nausea meds, and while i still seem to be in chemo brain fog, my energy is getting…
Epiglottis Cancer and Start of 6 weeks Radiation.
Hi Everyone, My name is Violet and im new to this site, im actually here for my Dad, I have been reading this site for a while now to find answers and help! The community here is truly amazing and i wish everyone the best! My Dad was diagnosed with Epiglottis cancer stage T2N0Mo SCC back in January 2016 and had operation…
23 down ... 10 to go!
Hey guys! Sharing my current status. This morning was # 23 with 10 rads remaining. Could not recieve # 5 of 6 on Cisplatin infusion yesterday because my platelets were too low. All other labs were ok, just platelets were low. The knew another dose of Cisplatin would cause them to dip even lower and did not want to risk the…
Tongue issue
Hi everyone, I'm almost done with week 2 and i have a thick white stripe on the left side of my tongue. I am not having rads to the tongue, just the left side of my head where the parotid bed is and some lymph nodes. I have some metal fillings and i do wear mouth guards but i wondered if i should be concerned about this or…
Burns
my neck is beginning to feel hot and burn a lot. I've been using the aloe gel and calendula cream. Hoping the raw area does not get worse. My skin is much darker. it's very obvious. Does this ever lighten up?

Head and Neck Cancer

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