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Head and Neck Cancer

Archives for February 2016

Post Throat Surgery (Partial Laryngectomy) Recovery
Hi All, I am a visitor from the kidney cancer forum. I posted another thread here about my brother's options for surgery to remove a tumor from his throat. He had his surgery last week, a partial laryngectomy, and he is doing relatively well. I have read the superthread. He lives with a roommate in a rural part of Vermont.…
Radiation to sinuses only for ENB
I was diagnosed with Olfactory Neuroblastoma 1/12/16 after surgery to remove what was thought to be a polyp obstructing my right nostril. I had a second surgery 2/4/16 to remove remaining tumor, and to get clear margins. It was Grade II, so while my neck was clear on PET scan I am starting 31 IMRT radiation treatments…
My mother passed away
My mother passed away on January 5th, 2016. I was with her while she passed. My sister had gotten to spend time with her two days prior and dad had gotten to say goodbye the night before. She was truly a fighter and was determined to beat the cancer even up to two days prior to her passing. She was told at Thanksgiving she…
Insurance Issues
I was just wondering if any of you have had co-pay or deductible problems with your treatments. I've got pretty good insurance but I'm pretty sure I can't afford and up front payment for this surgery. My deductible is $2200 and there is no way I can afford that. I can just about afford to pay the premiums montly as I'm on…
Rest in peace Kaitter
Hi everyone I am sorry to inform you all that our friend Kaitter Passed away last night, her real name was Debby and she was a wonderful person to know. Please keep her husband and family in all your prayers, God bless you all Tim
MRI results in. A question.- UPDATE
My husband had his MRI last week On 2/23. It was his first follow up scan since his rads, chemo, and surgery for stage 1 tongue cancer. The MRI was taken at about 5.5 weeks out from finishing the rads. We were supposed to meet with the rad onc this coming week on 3/3 to go over the results, but things have been really…
Your input is greatly appreciated
Recent diagnosis and surgery---your input and help appreciated. It is now 2/22/16 and 14 days post robotic surgery. After approx eight months of mentioning a hard lump in my upper neck, I was finally advised by my Dr to have a CScan.I had no pain and was in good health for a man of 63yrs old. I was diagnosed with Squamous…
In need of advice
HI everyone: My mom lives in Iran, we have pretty good doctors there, but SCC is a strange cancer since it is not talked about that much. She was diagnosed last summer with T2 SCC she had surgery and Radiation (33 sessions) but in December she had to have another surgery and the doctor said he got 90% of the tumor but a…
No taste
My husband has a rare form of neck cancer as it is Neuroendecrine large cell carcinoma. He is half way through chemo and has 10 radiation treatments out of 35. He had to suspend radiation this week as his white cell count was too low and he needed a shot which he can't take with radiation. He is also scheduled for a CT…
Painful lymph nodes
Did you all find that your lymph nodes hurt when you were first diagnosed? My really swollen one has been hurting (along jawbone), but the last couple of days I have had pain alone my collarbone on the same side.
joined
I am a eight year surviour of HNC. Just found this site, I am researching common long term side effects of erbutux, cystplatin and IMRT radiation.
scc nasal cavity cancer
Hi, I'm new to this site and I've actually had a lot of difficulty finding other people with this disease. Last year, in early spring, my husband developed a bizarre lump on the side of his nose after months of irritation in his nose. He put off going to the doctor until I successfully nagged him into it. At first, it was…
new peg tube
Hello everyone: After procrastinating for 7 months after my radiation/chemo, I finally had a peg tube inserted 2 weeks ago and am receiving Isosourse...5 cans per day gravity feeding. This was a decision I should have made much sooner, as starvation nearly got me and I needed to be hospitalized. I weighed only 90 pounds.…
Throat cancer help
Hi, I am 29 years old and was hoping to get some help. I had laryngeal cancer when I was 26. It was also in my esophagus. I received 31 rounds of radiation. My neck got pretty raw and towards the end I would wake up vomitting blood. Here I am now 2 1/2 years post treatment and my throat continues to bleed every day. I've…
Surgery
So, tomorrow I go for the scans and the result of the biopsy. I presume that whatever the outcome, surgery will have to be done to remove the tumor for my tongue. Can anyone tell me about that? The tumor is on the side of the tongue and it's about the size of a quarter. Thanks
18 months
i finished 40 rounds of rad wig 28, 14. March of last year, my body fell apart. I'm now 42, even through treatment I kept up my fitness competitions but since many neuro problems starting in legs, then nov 15, sudden vision loss. over Labor Day I was hospitalized with congestive heart failure and was told I had lung…
ISOSource 1.5
I have 3 cases of IsoSource 1.5 left it expires November 2016, and a group willing to pay the shipping to you. If you can use it please contact me here or on Facebook (Dave Pressler). **This stuff has to be used through a PEG Tube it cannot be drank** !!!!!!!!!!!!!!!!!!!!!!!!!!!MODERATOR PLEASE DELETE IS NOT ALLOWED JUST…
1 month out from treatment; scan tomorrow.
Saturday marked 1 month from the last rad day for my husband. He is doing so well, and things are really getting back to normal here. He has his first scan tomorrow, MRI, and we are praying so hard that the results are good. We don't get the results until March 3rd when we meet with the rad onc. My husband feels great,…
Hi I'm Richard - Just dx'd squamous cell carcinoma Feb 9th
I am 53 and I was diagnosed with squamous cell carcinoma on February 9, 2016. I don't know much more than that as of yet, but I meet with the cancer surgeon on February 29. One lymph node on the left side of my neck is 2.5 cm X 4.5 cm, an the CT scan showed a mild asymmetrical thickening on left base of tongue - possibly a…
Hospital again
Finally home again but spent nearly another week in hospital. Went via ambulance and it was the first time they "ran hot" so I was worried. Turned out to be pneumonia and free air in abdomen. They think my vomiting caused a small tear allowing the free air. Small and repaired on own. Am better now. Saw surgeon yesterday…
Clean Margins and No Cancer in Lymph Nodes
Hi Everyone, I was diagnosed with SCC in November. I had a left neck dissection and a tongue resection to remove the tumor and now have clean margins. The tumor board is advising I do radiation. I have to wait weeks before I even find out what type of radiation they want to do. It is very frustrating, I don't understand…
Scar tissue above vocal cords
Hello, I was wondering if anyone else has whats called a interarytenoid scar. Mine is scar tissue above the vocal cords. It looks like a "hood" but its not impairing my one functioning cords movement. My other cord is paralyzed from previous thyroidectomy in 2003. Its so weird that my treatment caused scar tissue. My sore…
5 months out
It's hard to believe it's been 5 months since my hubby stopped treatment. Not much to report from last month, but he did have another swallowing study at my insistence. It just seemed to me like he is coughing and clearing his throat while eating more than he used to, and then said his chest was congested - so off to the…
Daughter undergoing tests UPDATE
Thank you all for your thoughts and prayers. We are in a semi-holding pattern. After my daughter explained that she is a flutist and didn't want to risk any facial nerve damage, the doctor at the imaging center postponed the fine needle aspiration/biospy and said she should go to an ENT. So far she has seen her general…
Second opinion's matter with Doctors and even Meds...
Going to combine two different things. Goint to the best place for treatment does really matter. Where I live the doctors and Hospital is conciddered having a very good Oncology department, just top notch. First that could not be any farther from the truth. Now I do like our hospital and have been there for many things,…
Daughter undergoing tests
Most of you know me and my story as caregiver to my husband who is 6 months post treatment for Stage IV nasopharyngeal tumor. My 25 year old daughter, who lives in Anchorage is now undergoing tests for a large mass on one side of her neck under the ear. So far they have done an ultrasound to try and determine if it is…
Unbearable neck cramps
I'm nearly at 4 years in remission but lately I've been having muscle cramps in my neck that will stop any activity that I'm doing. I've had them pretty much all along this ugly ride after radiation but these new ones REALLY suck. I thought the tongue spasms were bad but I could still work while that was going on. It just…
Biopsy Done
Well, he actually did the biopsy today. He believes that it most likely is cancer but doesn't think it has advanced. I'm going for the cat scans next week and I'll see him right after that for the results of the biopsy and the scans. He talked about removing the tumor and a lymph node as a precaution and that should do it.…
A Red Letter Day
Ok raise your glass of Boost, Ensure, or whatever you please...my husband is officially off all pain meds!! After being labeled a "complication magnet" by his oncologist and having some of the most severe mucositis she has ever seen, my husband was on heavy duty pain meds for extended periods. In the beginning he had…
Dental problems long term
Good Morning, Newbie here to this site. Lol! Haven't said that for awhile since I'm 58. Anyway, I was diagnosed with base of tongue cancer in 2011. Went through 44 treatments of radiation to the head and neck. Now going on 5 years since, my teeth and gum problems are still a very important part of my day. The pain is at…

Head and Neck Cancer

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