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Doesn't seem like much...
I know it might seem like much to anyone, but if you're stage 3 emphysema and a neck breather it is. I blew up a balloon today. Kinda felt like a little kid at Christmas. Thats all just had to share.. wmc
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Help our friends across the POND !!!!
Posting this link. Hoping some folks in the UK can help out
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New Problems
Went to PC today. Jim's oxygen level was below 81, should be 90 or above. He is starting to have breathing problems so doctor wanted him on oxygen asap so got an appointment tomorrow. He says it will help with energy levels too. Jim is not thrilled but anything to kepp the fishing going. Been way to cold lately but weekend…
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Tx update
Just checking in. Started my 2nd session today. Each session is 1 week taxol and ebitux then 2 weeks of only erbitux. No nausea. 4th week I still have my hair, it has started to hurt and thinned some this week. Imagine it will be gone within the week. Some acne rash but not too bad, a light make-up covers. Thanks, for the…
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NED
Praise God! I had a CT scan today and received the news that there is “no evidence of disease” which is the best answer they give. There will be additional specialists that look at the scans and they may find things. I will continue to get periodic examinations for the next five years to insure that I remain disease free.…
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Any Info will help
I am new to this and have read a lot of positive information. I have just been diagnosed with left tonsil and left lymph node stage III cancer. C.T. scan done and 2 biopsies of the tonsil . My EN&T DR. does not want to do surgery due to to much reconstruction. I have my PET scan this Friday 01-31-2014. After this it's a 2…
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Alive and adjusting UPDATE
Just a quick update to let you all know im alive and trying to adjust to this new lifestyle my left hand is still in a splint, so hard to type got home on tuesday sugery was the 16th dont know the path results yet tom is doc appt guess ill find out then Tpat path report said the margins were clear but close. They want me…
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Feeding Tube
My husband has stage 1 tonsil cancer, due to HPV. He only has to go through 6 weeks of radiation, no chemo thankfully. He is in week 4 and has not had solid food in 2 weeks, but is drinking Shakeology, ice cream and the ocassional chicken broth. The doctor told him he should only lose 2 lbs a week, which is ridiculous…
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Man it’s Cold in Lafayette
I don’t know about you but this Cajun boy is not use to this kind of cold weather. I been locked in for two days now, everything is ice and no one is moving. I don’t like cold; I need 80 / 85 degree weather in order to operate. Just glad to morrow forecast is showing it in the 60 hard to believe it is freezing one day and…
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game plan
Just talked with my doctor's partner and he gave me the game plan.The tumor is in front and the bottom of tounge.He said most likely will have to split my jaw to get at it and replace maybe half of tounge with muscle from thigh.They will also remove the lymph node on the left side.Since I will have radation and would be…
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In Memory of Fallen Pets...
As to many, our pets are more than just pets, more than anmals to us..., they are family. We love them as we do our kids, family and friends...., they are family. I'd like to honor our fallen pets with this post... Ebony, my best buddy, the greatest friend...., I still miss her. I was honored to have her love me equally…
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My Best Friend
One of the hardest things to do it to put something you love to sleep. My Pit Bull Harley was almost 14 years old and had a lot of old age problems. This week she got to where she could not walk and was in a lot of pain and sick. My son and I knew it was time but just did not have the heart, last night we all kissed her…
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MUCUS AND CANT SLEEP
THANKS ALL I AM HAVING A LOT MUCUS AND CONSTANTLY RINSE WITH BAKING/SALT SOLUTION . WHEN LAYING DOWN TO SLEEP THE MUCUS KEEPS COMING OUT OF MY MOUTH. SLEPT FOR 4 HOURS GOT UP AND TRIED TO SWALLOW THE MUCUS DOWN. BUT IT WAS DIFFICULT BECAUSE MY THROAT AND TONGUE WERE SO PAINFUL. I SCARED TO GO BACK TO SLEEP AGAIN SO I…
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another yr passes with love
Hello everyone, Well it's another yr. older for me today. I woke up with a card waiting for me on the table from my husband. As I was reading it something slipped out of it on the table. A beautiful ring. He is incredibly sneeky when he wants to be. (I am so blessed to have such an incredible man beside me) I have alot to…
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SORE TONGUE
HI ALL I HAVE NPC AT AGE 53. GOING THROUGH TREATMENT 3 CHEMOS AND 33 RTS. 1 CHEMO AND 8 RTS LEFT TO GO. I STILL CAN SWALLOW BUT MY TONGUE IS VERY SORE. IS THIS A TYPICAL SIDE EFFECT FROM RT AND CHEMO? ANYONE EXPERIENCE THIS DURING THEIR TREATMENT. THANKS
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Checking in, update, etc. etc.
Hi CSN Buds! Thought I'd check in with y'all. Hope everyone is having a Happy New Year! Think I told y'all I quit at Jo-Ann's on Dec. 20 so I could be available Mon-Friday for substituting. So far I subbed 4 days this month and have Mon, Wed. Thurs. and Friday booked for next week and one day for February already. Pretty…
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Swallowing sphincter muscles
www.cedars-Sinai/patient/programs-and.../swallowing disorders.aspx or www.cedars- Sinai then go to swallowing disorders
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Bronchiectasis
Hi, I'm new in here, and to be honest, I guess I'm just here to have a good old whine about how frustrated I get sometimes. 2007: removal of right tonsil, removal of gland under chin, neck disection, right side of neck. 2009: following the appearanc of 8 lumps on right side of neck; radical neck disection, right side; 33…
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just some questions on what I can expect
Hi guys now that I'm less then week away from surgey am wondering what I should expect.As in pain mangement after surgey.Have already been told 7-10 days in hospital and will have the peg tube put in.Do they teach you just how to use it and where to get the supplies I'll need.Will I beable to take liquid though the mouth…
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First Anniversary Date
It is so interesting how on this journey certain dates now take on more meaning. Of course my wife's birthday, my eldest son's and youngest daughter's birthday. Our wedding anniversary. But then a new batch of days: date of diagnosis, start of treatment, ringing the bell, first PET/CT after treatment. And then three months…
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Scope good today, no CT, PET and MRI?
Overdue to get checked at end of November but finally found an ENT HNC surgeon I trust, at least I think so. He did the scope thing, everything looks fine. One nice benefit of scopes rather than scans is you got zero wait time. Perfect for the instant gratification generation. I asked about scans and his take is PET is…
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Nasal congestion
I have a flu for over a week now. Getting better but still feel cold in the body that goes to the bones. Worse symptom is nose congestion in which unable to breath at all. Breathing through the mouth make it very dry. Try to blow out the nose but content is very thick and won't come out. Used Neil Neddy pot but not seem to…
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NED
Just to quickly report a [1 year and 4 months after radiation and 1 year after last (chemo) treatment] follow-up with my radiation oncologist. He scoped my nasopharynx (primary was NPC), throat, etc. and there was no macroscopic sign of C. In a nutshell I am doing great, although recovering after a common cold. I tend to…
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Got the results today
My Surgeon said I am clean and green so much so after 4 years, no more PET Scans and he doesn't want to see me for a year I may just go back in six months for no reason at all just because I am use to it. I will see what my Radiologist says in May, but if he says he doesn't want to see me for a year I may be thinking a…
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food and water staying in throat
sometimes when i eat, the food and drink stays in the back of my throat instead of going down the esphogus. it has lingered there as long as 10 minutes after swallowing. i can't talk when this happens or the food/drink will spew all over the place. After reading a post from JF, i'm wondering if it could be the sphincter…
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hyperbaric chamber therapy
Does anyone has any take or experience in regard to the hyperbaric oxygen treatment for post cancer treatment. PM
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Please say a prayer for my buddy pal
i turned my friend on to this network when i found out he had prostate cancer - he was reluctant to join-(DENIAL)he has been receiving hormone treatment for a while and just went for his review at sloan in NY. He did not receive the dagnosis he was wishing for. his prostate numbers are gresat but its tenticles are…
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Exam anxiety Satisfied
Friends, 2 months shy of the 2-year mark and I heard the words “No Signs of Cancer” this afternoon. Other than edema, my ENT neither saw, felt nor scoped anything suspicious. Next exam in 6 months. Keep on keeping on! Matt
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Video swallow
I went for a video swallow test today. the blue dye water stopped in my lower throat. they say probably my sphincter muscle isn,t opening to let the food down. I have now to wait till the tests are sent to my onc team. I was told it's too close to rads for any invasive treatment so don't know what will happen. I,m…
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Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…