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Brother
Just learned that my brother back in the UK has incurable stomach cancer, has also spread to his liver. Doctors told him they would give him chemo and make him as comfortable as they can. Cancer truly is a family curse, that's all four of us siblings to get this disease, my dad also died of cancer. Not H&N I know but…
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Just want to say thanks, Skiffin!!
Thank you John. I don't know what you said or how you did it, but moving around this site has not been this easy since I have been coming around. I was about to stop checking in because it was so bad. Let's hope it stays this way. You are the bomb, and your efforts are truly appreciated! I don't think anyone says "you are…
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Popping in to say hello
Just wanted to pop in to say hello to some friends. Clear
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Tomorrow
The day has finally arrived, after a delay by the hospital , I'm going to be "de-ported"...yeah!!!! Arthroscopic knee surgery last Friday now the port..my new abi-normal life still moving forward. Linda
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SuperThread Updates...
It's not gone..., LOL, just misplaced... You all don't think I wouldn't have a copy do you... I just have to fix a few of the links on the one I have and do a little updating, but I have it. I spoke with Greta, and she's aware that it's MIA... Once I get the few things fixed I'll post it again and she can pin it. But while…
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Getting a bit concerned about my dysplasia site....
Hi all, In February I posted here for the first time because I had a lesion on the right side of my oral tongue which needed biopsying. The pathology turned out to moderate dysplasia and the diagnosis was pre-cancerous Leukoplakia with no evidence of carcinoma in situ. On April 30th I had much of the right side of my…
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post-treatment update
I haven't posted since about half-way through my treatment of stage 3 laryngeal cancer. My 35 days of radiation and concurrent chemo ended June 7. After a couple of weeks of post-treatment hell I'm on the way to feeling well. I'm back to work full time and other than a little pain and a raspy voice I'm doing pretty well.…
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Site Access
Fingers crossed..... I've been sending all of your screen comments, error messages, time outs, connection failures and everything else trying to get the message across that the site is very limited. That it's dying a slow painful death.... As of last night I know a lot of additional changes have been made... Fingers…
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SUPERTHREAD Read only ~ Contributed by SweetBlood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send me a private message (PM) if you have something you think should be included here.…
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Not cancer
Hi all, Just came back from Dr. Office and it is not cancer. I told him what happened with his secretary and he got really upset. He then proceeded to show me my medical file and it was written "Call Ms Nadeau on July 6th (when my results came in) and tell her she has no cancer and that I want to see her in 4 weeks for a…
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Talia Castellano, 13 year old face of CoverGirl
gained her angel wings today. Prayers to her family. This warrior fought cancer for over 5 years! My heart is so sad to hear this... http://www.today.com/news/cancer-stricken-covergirl-talia-castellano-dies-13-6C10651620
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HELP..doctors change their opinion about second time radiation??
Both doctors change their opinion about second time radiation?? So both of my husband’s doctors are suggesting to see some one at university for any clinical trials if there is any. My husband story: Diagnosed with stage 4 hpv originate head and neck cancer 36 radiation treatments done/ high does for Chemo done and after 3…
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This is such a roller coaster ride...
We went on a wonderful vacation last week to the beach. Just me, my hubby and two kids. It was a great family time and a break that we all needed so badly! I healed SO much in the week we were there. I started eating real food, cut my tube feedings down to just one a day and eating real meals, all my spitting…
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Finally an end to dad's trtment in sight!
Hey everyone, I haven't been on too much lately, one because I've had problems logging on and two because I've been with dad a lot and helping mom n dad. I've been going over and sanitizing a lot cuz mom was sick so we didn't want dad exposed to that! He seems to be a little more positive now that he is getting…
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PET Scan Tommorrow
I head for the Hospital at the University of Pennsylvania tomorrow morning at 6:00 AM for a PET scan. They are now eight months apart so the anxiety isn’t nearly as bad as the first one or two but because I am heading to the beach for a week Saturday, I will call them before my appointment with the surgeon scheduled the…
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Few Days in Ohio...
Just thought I'd throw this out there.... I'm flying in to Columbus this Thursday evening, driving up to Mansfield, flying out Sunday morning... I know there are a few on the board that are around that area... If by chances you have a few minutes, and wouldn't mind killing them for a Starbucks or just a meet, I'm in...…
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99.9 % official
Wow !! I am speachless and shaking like a leaf. i called my ENT's office this morning to see if I can have my resluts. The secretary told me that she would look at my file to see if they are in and if the results are ok she would call me back. She just did and all she said was " Chantal, I am confirming that we will still…
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2nd round of radiation and Chemo IN same year
2nd round of radiation and Chemo After my husband’s Neck Dissection surgery the pathology report showed more cancer cell and his oncologist of radiation suggested doing more radiation and chemo. I am trying to find if anyone has this kind of second round of radiation and chemo treatment? Thanks for your help and…
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Heading into the wilderness
For two nights and three days....Greg and I won the trip at an auction for our injured horse shoer a couple months ago. Nice little cabin, no phones, no wireless, no internet....but horses and river rides....fishing and spectacular scenery all via the raft or atop one of the horses. They do have electricity, tho...thank…
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Husband gets PET results tomorrow 12 weeks post treatment. ANXIOUS!
Husband was diagnosed 2/2013 with right tonsil cancer, T1N2a, HPV positive. Underwent concurrent chemo and rads. 2 rounds of Cisplatin and 35 rads. 6 weeks post tx had a CT scan of neck and chest. Lymph node was decreased in size, but still present. Had PET last Thursday (12 weeks post tx) and gets results tomorrow. I know…
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has anyones cancer spread to mesentery nodes?
Hello everyone. I do not post a lot however I do read everyday. My mom has a histroy of tonsil/tongue cancer since 2010, she had total of 3 surgeries including 2 neck dissections, 1 on each side. On the last PET scan which was in January she was all clear on the head and neck part (last surgey on 3/1/2012) so it's now been…
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How long does sore throat last?
For anyone who underwent radiation treatment for tonsil or base of tongue cancer, how long did your throat remain sore after treatment?
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Checking In
Wanted to check in with everyone. Hope everyone is doing well and trying to enjoy their summer Rob is now 5 weeks out of treatment and doing real good. Still tires but not as easily, hardly napping anymore. Mouth has healed real well. Maintaning his weight and maybe gaining a few. Back on solid foods and can taste some,…
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First Gig Post Tx
Hi Folks, I'll be posting this and hitting the shower to get ready for my first gig post treatment. It's a wedding I booked last year for a lovely couple I met while performing on the Skyline Drive at Skyland resort. I hired a violinist to perform with me. Fortunately, this gig doesn't require vocals and is instrumental…
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My taste buds are trying SO hard
To come back to me!! I'm 3 weeks out of treatment (can't believe it's been that long already!) and I wouldn't say I could totally TASTE things but its getting close. It's more like the taste is trying to come through a bad taste in my mouth. Weird description but that's what it's like for me. Eggs, French toast, green…
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phlegm and eating
I am only 3 days out of tx, which went well, tumor is gone lymph nodes are back to normal. My problem is the phlegm and ropey saliva is making getting proper nutrition hard. After eating or drinking something I usually spend the next 10-15 mins. coughing up phlegm like crazy. I have tried all the typical suggestions, salt…
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Ensure-Better Price??
I was wondering, with such high prices for cases of ensure, does anyone know where my dad can find it cheaper or maybe some kind of program that gives people who have cancer discounts for ensure? With all of the medical bills piling up that would be one less thing for him to worry about.
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peg question
Can you control how slow your peg takes in liquid. Tonite mom used the dial on it to open, then put syringe of ensure in the tube and let it drop in without plunger part. Seemed a lil fast. Is this typical? Dad felt a lil sick afterward but I'm guessing it's bc nothings been in his stomach for weeks. Any tips to make…
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NeutraSal to help stimulate saliva?
Has anyone used this product? My doctor started me on this for the stated purpose of helping to stimulate my own natural saliva. I have been using it twice daily since my treatment ended, but so far I do not notice any improvement. If you have used it, have you benefited from it? How many times per day, and for how long,…
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2 in a row!
Clean PET/CT scans that is! It's a new record for me. Not bad for stage 4 NPC with mets to bone. Now if only the Giants would start winning some games. Wishing you all the joy and freedom that I'm feeling today, AB