-
Dad in surgery NOW, getting PEG
Just wondering if everyone could keep dad and my family in your prayers. Dad went in this morning to get PEG. Wish I was there, but had to be at work :( . I took off yesterday though so I could drive him to radiation and glad I did bc he's not feeling great. I can tell he's miserable so I hope this PEG really helps. Anyone…
-
Drinking wine post treatment?
Hi everyone. I'm 16 days out from treatment and doing very well. Some taste has even started to come back. I wanted to know if anyone is able to drink wine or enjoy it post treatment? I am a gourmet cook and used to really enjoy wine with dinner. I'm afraid now I will never be able to again. I don't mean do you have…
-
Pain Pain and More Pain
9 weeks post treatment (chemo and radiation), you would think things would be better. 2nd bout with thrush. Into the 9th day of the 14 days of treatment for it. Swallowing is painful, whether it is water, or food--painful. Could the thrush be the culprit? Mouth looks clear and has been clear since day 3 of the thrush…
-
Problem posting on CSN lately? Try this
I was having trouble posting here and got a tip from John that might help others. Do NOT click the smiley button. I know you all just want to make everyone feel good by seeing those little yellow round faces but DO NOT do that. LOL Honestly, as soon as I just posted plain text, my posting issues were a thing of the past.…
-
Today's News (not about me)
I struggled for a while with the subject for this post since I didn't want anyone to think it was about me. My dad called today to say that my mom collapsed and is in the hospital. They thought it was a stroke at first but it's actually a brain tumor. They can't do a biopsy for a couple days until the swelling goes down--…
-
Sugar & Spice
& everything nice....thst's what little girls are made of! We found out today that we are having another little girl! We have chosen the name Cora Jayne. Cora means life. Jayne means God is gracious. I feel like her name is fitting following my battle with cancer last year. We are so excited about welcoming her into our…
-
Ned yay
I have been out of commission with a horrible virus- fever - sweats and sleeping all day llong . But my 2 nd pet scan was NED. Thanks for the prayers. The doc has me on strong antibiotics and cough medicine. I can't swallow most foods so I am back to soups and ensure , then on top of it all I have been having a horrible…
-
test post - ignore
having incredible time with the site, being blocked from responding to my own posts but ok with others. Oh well
-
ENT on thursday
Hey everyone ! Have another three month check up with the H/N guy. No scans that I'm aware of until Nov. But hee-hee we all know this can change up on us in a blink of an eye. So I'm assumming scoped....the good old once over with the lump checking....and I swear if he gives me that (what I call the long face) again I may…
-
Single Digits
Hi everyone. My brother finished his last double digit radiation tx today! Yay, he is into single digits. So far he has lost about 35 lbs, has one mouth ulcer, lost the hair in the back of his neck, needs to use his tube and had to spend one day in the hospital because of constipation (not fun), but other than that, I…
-
Time to stir the pot - Why all the fanboys for canned sugar?
I see post after post where advice is given to drink that Ensure and Jevity and all other variations of carbo sugar crap, sprinkled with a few vitamins and minerals. Is it people choose this path or are just not aware of the far better benefits of a protein based drink? This is not rocket science by any stretch of the…
-
Preexisting condition?
Hi All, My husband is contemplating a new job offer. He is 7 months out of treatment and so far, cancer free. He has really good life insurance that we got through his current employer before his tonsil cancer diagnosis. If we switch companies, he will have to get new life insurance I assume. So...here's my…
-
Dad has bubbling blisters
When I saw dad yesterday he had quite a few bubbling blisters that were yellowish (almost a greenish) in color around the side of his neck where its being radiated. It alarmed me, he's using some type of skin repair cream the doc gave him even though it's not prescription. Anyone have any suggestions of things that may…
-
Hi, this is my first post.
I was diagnosed on May 9, 2013 with Squamous Carcinoma of the left tonsil pillar. I started treatment on June 19th and I have had 12 of the prescribed 35 radiation treatments so far. No chemo as the pathologist said mine was in the very early stages. So far I can eat but it’s a job. I eat soft stuff like cream of wheat…
-
Help
Hi all, I have been lurking/learning for the past 5 weeks. The stories and information here have been a huge help. My wife is in week 5 of 7 of her treatments SSC IVA BOT (chemo once a week and reds mon. thru fri. weekly). Here is where I need help, she will only make a token effort at taking in nutrition (her ENT rec. a…
-
Pain after biopsy
As you all know, I had a biopsy on July 2nd. The ENT to pieces of my lfet and right lingual tonsils. I still feel some throat and ear pain on the right side. How long should it hurt after the biopsy ? This scares me, because I keep thinking that he awoke the beast and now it's running wild in my throat and ear. Thanks for…
-
tobegolden
rick, i'm hoping u get on to read and just haven't posted. just wanted to say we miss u being on here. i hope u r feeling ok. u r always n my thots and prayers. take care my friend. dj
-
PEG tube question
I'm not having any trouble with my PEG except for the tape rash. It's really the most comfortable when I have it taped upward...near my bra. Hanging free or tucked into my waistband is very uncomfortable, so I've been taping. I bought the kind that isn't supposed to irritate your skin. Well, I have nasty tape rash and…
-
GreenD ~ Another Fallen Warrior..
I have been trying to get a hold of GreenD (Denny Green) on here, and through emails for awhile... I had messaged him a few times on FaceBook... But you know how it is, you get busy, time passes and you forget. This afternoon I decided to dig a little deeper, looking down his pages, and noticed on his wifes page that Denny…
-
throat dilation
i will b getting my throat dilated next week. for the first time it will b done in the office w/o any medicine. i've always been asleep when this was done. has anyone had it done in the office? does it hurt? how long after does ur throat hurt? i've had so much pain from different things in this past year that anything that…
-
PEG for LIFE
I was just wondering if there were any others here who will have to keep a PEG tube in for life. I am right at 15 months now with my first PEG tube and it’s due to be changed next month. It has been a lifesaver to me but it has its times of just getting in the way and I want to just pull it out but then think, how will I…
-
First Anniversary
It is hard to think that it has been one full year since I rang the bell at the end of rads! I recall how bad I felt, how much pain, the nasty skin burns, the loss of saliva, no sense of taste, fatigue and the overall crappy feeling and now it is amazing to see how good I feel! I am back to work full time, saliva is about…
-
billie
i haven't seen billie post 4 some time, has anyone heard from her? dj
-
How long will this pain last??
I am 3 weeks post chemo and radiation. The pain when I swallow is excrutiating, so I use my G-Tube for nutrition. I swallow little bits of water or tea, but that's all I am willing to do for now. I rarely take my tylenol 3 for pain, because I don't like the way I feel on the meds, and it constipates me. I do feel less pain…
-
Slept through the night!
This may not be as exciting to anyone but y'all who truly understand. I slept through the night the last two nights in a row. 7 straight, solid hours of sleep. I've been waking up every 2 hours to gag/choke/rinse and spit. But, these last two nights I slept right on through and the gagfest once I got up wasn't too bad. I…
-
Relapse "AA" style
Hello friends,so far Im Cancer free,for that Im grateful.....I Had stage 3 or 4 Patroid Cancer....it varied WHICH docitor I talked to,first they said 4 then 3 one even saidit was said stage 2!!!...but my problem is im an Alcoholic AND drug addict....when they told me I had Cancer I was coming up on 4 years soberity,going…
-
Papapauls news
Hi All! just a quick note to share my good news! I had my first post tx PET scan yesterday and today met with my ROC. The report............No Evidence of Disease!!!!!! Yep, after 15 weeks, I finally got to meet NED officially. ROC says everythings looks great and that the report was one of the best he could give. I won't…
-
Biopsy this morning
Hi again, The biopsy went well and my ENT says that he is 95% sure that I am ok accordind to the samples he took. He had told me before the biopsy that he usually knows byt the samples if the tissues are malignant. I am changing jobs and told him that prior, so that if it was bad, I would stay where I am to get the health…
-
Esophagus Pain Question(s)
Hi all, sorry I have not be on here more, but was on a vacation away from Internet and phone. Nice to do but a little scary when I don’t have contact. I developed yesterday a sharp pain in my esophagus when swallowing. It is mostly in the lower part by what I guess is where it connects to my stomach. It is also painful in…
-
ENT and radiation Onc visit
Yesterday I had my appointment with the ENT at Penn State Hershey Cancer Institute. They first did the videostrobe of my throat, then the doctor came in and we went over it, everything looked great. He felt all around my neck and felt nothing, (the numbness has now gone) he said it has now been four years since treatment,…