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Epiglottis not working right after treatment
Good evening all...My husband is now almost 9 months out of treatment. A couple months ago after continually having trouble with swallowing and choking the ENT sent him for a swallow test and it was positive for aspirations on all foods except really thick ones. The ENT said that treatment can sometimes cause your…
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All is Well
Ruben is approx. 6 weeks out from completing 35 rads with concurrent 3 rounds of Cisplatin, and is doing amazingly well per his medical team. Throughout the treatment, when asked how things are going, Ruben's response was almost always "All is well". He kept the faith, even in the darkest hours. For those of you who are…
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Dad's treatment DONE
Hi Everyone, Dad had his last radiation treatment a few hours ago. Now I hope everything goes well and things start looking up. I know you all have said these next few months he may still be miserable, but if that means no more chemo/rads he will make it through! This treatment in my opinion was one of the worst I have…
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A touching story....
http://www.wnem.com/story/22913077/father-daughter-dance-for-dying-dad Came across this story on our local news website. It is of a father dx with pancreatic cancer and his daughter who wants to fulfill a dream. They are from CA. Very touching. Thought I'd share it. ~C
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Dad's update - 1 year after he started Chemo/rads - all is great!!
Dear friends! I was away from this forum for quite some time now... To tell you the truth time is passing so fast, summer is here, we're really trying to enjoy life. Some of you know me and were a great help for me in times, when it was the worst and when I neede an advice. For all newcomers - this is wonderful place and I…
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Is return of taste associated with return of saliva?
Has anyone who has gotten their taste back early gotten most or all of their saliva back? My taste is largely back at just 4 weeks out from treatment, but I still have dry mouth. But I'm wondering since I have a lot of taste back so soon if I can also expect to get all or most of my saliva back as well? My doctor said…
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Magic Mouthwash and Taste Buds
I was in to see my doctor yesterday for a 4-week follow-up (everything looks good, by the way) and wanted to pass on something she told me about Magic Mouthwash. If you use it before eating it may dull the taste buds (temporarily, not permanently). I found this to be true; I was using it before eating to make eating more…
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I CAN TALK!!!
on 2/28/12 i had a complete laryngectomy for cancer of the larynx, stage 3 (i had 35 rad trmnts in sept./oct., 09, this was a recurrence). since the surgery, i've tried several devices to make me talk. one was a sticky thing that stuck to my neck around the stoma. trouble was they never lasted more than 10 minutes b/c i…
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week 7 for ron
halfway thru week 7 with ron so far so good. 7 chemos done , 1 to go , and 7 left of 39 rads. he has done very well, wednesdays and thursdays are tough, nausea doesnt seem to be curbed much with any med they have tried. no taste but knows to eat to survive. does still eat soft foods. cant get him to touch the ensure…
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Side effects from Eribtux and Carboplatin
My mom is starting this new chemo tomorrow and the doctor told her she could get a rash from one of these drugs. I am wondering if anyone that has taken these chemo drugs experienced any side effects? she is very nervous due to the last chemo combo ended with her in the hospital for 16 days. My mother has SCC of pharynx…
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I need your help! (not cancer related)
So as some of you may know... dad's only has one day left of treatment after today. His birthday is Friday- the day after ending treatment. He keeps telling me "nah, don't get me nothing...I don't want you to," etc... I need your help. I'm having troubles trying to figure out something special he can enjoy right now. He…
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Photo Posting 101
You first save the photo you want on your DeskTop or some where you can find it... and then; 1. Click the small Tree Icon from the Menu Bar under Comment: 2. This opens a box - Insert/Edit Image 3. Click the small file box icon to the right of - General URL 4. That opens a box called - File Browser 5. Click - Upload 6. A…
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Fur Kids ~ Dali' Stare Down
OK, peeples.... The forum is kind of being in a blah sort of state... Maybe time to add a little family life out side of the cancer arena... This is a photo of Kali and myself doing our "Salvador Dali'" stare..., LOL... Post up a few of your favorite fur kid photos... Kali and her sister Jazz were a tremendous part of my…
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NED
Had my 1 year 8 month scope and checkup today, my Dr is quite happy with my progress. He told me usually if a reoccurance of the cancer ,I HAD , is going to happen, it's in the first 2 years. So, the next 4 months is going to be the biggie. Of course, he also added, that a declaration of clear of cancer doesn't come until…
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Been gone for a while
Sorry about being out but have been back to work and am eating just about what I want to now (whew).I have been on from time to time reading your post.Just wanted to say hello to all still out there and to thank all those that have helped me through this fight.Will be getting my(12 week) pet scan tommorow and will learn of…
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HELP Please -Different protocol from different doctor at University of Chicago.
Hello, Different protocol from different doctor at University of Chicago. We just got back from doctor at university of Chicago. He is not happy that my husband has to do second round of radiation and chemo. Per him my husband will have following treatment. One week twice a day radiation and chemo with 3 different…
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Man have I been gone..
Hey everyone, I have been off the board for sometime. Just wanted to pop in and see how everyone's doing. My husband is offshore working, he is doing well. His mouth, teeth, gums and tongue are a complete mess. The doc tried to cut back his pain meds and my husband tried, but he could not eat. His teeth, gums and togue…
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My Brother Has Rung The Bell!!
Well, it has been a long 7 weeks, but my brother has finally finished with his treatments. He is doing pretty well, I guess. He spent one day in the hospital because of severe constipation (not fun), this neck has blistered and is dealing with the typical sores in his mouth. His attitude is still great, however, and he is…
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cant gain weight
it took me 7 months to gain 10 lbs. after my hernia operation i got sick for a week and lost it all. i just had my first double quarter pounder with cheese and fries and a coke since last year when all this crap began. i drink 3 ensures a day, bagel and cream cheese for breakfast and usually a good dinner. i cant figure it…
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Interesting Study from England
20 July 2013 Last updated at 19:22 ET HPV virus 'linked to third of throat cancer cases' There are more than 100 types of HPV One third of people diagnosed with throat cancer are infected with a form of the HPV virus, a study suggests. HPV (human papilloma virus) is the major cause of cervical cancer, and the virus is…
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Hurt to swallow
It has been about 3 weeks since the end of treatment the lymph node on my neck has totally disappeared but it hurts so bad to swallow so I am still taking everything through my tube. Any idea on how long this last?
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Narcotic Withdrawal
I've been on some kind of pain killer since last December with my 1st tonsillectomy. I went off briefly and right back on after my 2nd surgery in February and then third surgery less than two weeks later. I started treatment and have been on them since. Oxycododone, Oxycontin, Hydrocodone and most recently Lyrica and…
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Swallowing Exercises
I posted this for Susan but it's good info for all. Given to me by my Speech/Language Pathologist at Johns Hopkins. If it's not [art of the Superthread, perhaos it can be added. "T" Swallowing Exercises Falsetto Phonation or “Sirening” Make a siren noise from a low pitch to a high pitch. Use a “ng” sound. Hold the pitch…
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Skype
i just got a new PC and anyone with skype i would lve to chat with-just send me your skype name because i am not sure what mine is
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new discussion board announcement
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Update on my mom
Sorry I've been so absent the past week or so. We all know what a whirlwind it is between diagnosis and starting treatment, and I've been going through that with Mom. We got the best news we could get under the circumstances. Her PET scan showed only the cancer we already knew about: a lesion in the lung with involvement…
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Still have my PEG after weight check
Had my weight check this morning. Rad oncologist said last visit "I want to see you maintain or go up a couple of lbs by next visit and we'll talk about getting that tube out." I had gained 5 lbs but then was struck this week with the stomach bug :( I told the nurse (not my usual nurse) about the virus I had, and she said…
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Clean and Green
Hi All Had the PET Scan Thursday morning and asked them when I could call the doc to get the results and they told me he would have them in a few hours but I should wait until yesterday. I dashed from that area of the hospital to the coffee shop next door for my long awaited coffee. I had to rid my mind of the scanxiety so…
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Frustrated
I really thought by now I would be doing great but I'm not . My saliva glands were working then quit was starting to eat getting back to being me then bam quit working no saliva for 3 weeks now the dry mouth is horrible I have tried it all all I can do is sip water all the time. Can't eat or talk have not been out of the…
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Frustrated
I really thought by now I would be doing great but I'm not . My saliva glands were working then quit was starting to eat getting back to being me then bam quit working no saliva for 3 weeks now the dry mouth is horrible I have tried it all all I can do is sip water all the time. Can't eat or talk have not been out of those…